Re: [TMIC] Bladder Control
has he mentioned this to his DR? --- On Sun, 10/24/10, Emily em...@telephonelady.com wrote: From: Emily em...@telephonelady.com Subject: [TMIC] Bladder Control To: tmic-list@eskimo.com Date: Sunday, October 24, 2010, 9:30 PM My husband is on Detrol. During the day he passes his urine with 3-4 hour intervals. During the night……in 6-7 hours he is up every 1-2 hours passing his urine. I thought….okay maybe he is taking the Detrol at the wrong time of day so we switched it from bedtime to morning and it made no difference. Is there anyone else out there that has this same problem? Why would the Detrol work during the day and not at night? Prior to Detrol he was passing urine every 30-45 minutes!!
Re: [TMIC] Bladder control
My spinal mylopathy took out my ability to relax the bladder sphincter. If I didn't cath often enough the detrusers would spasm and force the urine past the sphincter until they were satisfied [but not emptied.] Eventually, the demand to cath was on twenty minute intervals. I went to a Foley indwelling cath and found peace. Pros: Safety for the kidneys Fewer chances by far for UTI's Never get up during the night [BIG plus for a 74 yr old male] Able to surepticiously empty the bag on a long drive using a length of rubber tubing out the open car door Cons: Need to empty the bag without benefit of a natural reminder A bag ignored is an awful mess on floor, pants, chair, A friend made a sensing device that beeps when the bag is nearly full - not yet on the market A cath change every two weeks I've done it myself for a decade now - without any UTI's Takes about twenty minute for a clean, not sterile, procedure Often with a few detruser spasms to punish me for mistakes Last evening's change resulted in NO spasms! Ooops, the buzzer is beeping. Pavlovian response is to go empty the bag NOW Alton
Re: [TMIC] Bladder control
Am I right in thinking that bladder control can be an issue with TM? Sally, You are absolutely right! The bladder and bowels cah be affected in several ways. I have a spastic flaccid bladder. My bladder slowly fills till it contains almost a litre of urine, then, all of a sudden, urinate again, and again, and again. I have learned that by staying by the toilet after the first void and waiting, I can urinate some more- visualization helps. A cystometrogram helps to demonstrate and document the extent of the problem. A Urologist usually performs this exam in the radiology department. I was catheterized, then had various monitoring devises affixed to the lower end of my body and plugged into a computer. No pain, but embarassement a plenty. hope that helps F
Re: [TMIC] Bladder control
Hi, Sally, I was reading all of the notes going back and forth on this and again, I am so thankful that we have each other. It doesn't seem to matter where we live, we're as close as this wonderful e-mail. Hugs for all of you..Jeanne in Dayton ---Original Message--- From: Sally Wilkinson Date: 1/30/2009 3:55:21 AM To: tmic-list@eskimo.com Subject: [TMIC] Bladder control Hi Guys Thank you to all of you who replied! I have forwarded your e-mails to my husband, who I will make sure understands your comments, and gets checked out by his doc for any prostate problems! Thanks again Sx Sally Wilkinson Business Development Manager Genesis Design The Barn Ipsden Oxfordshire OX10 6AS +44(0)1491 682277 sally.wilkin...@genesisdesign.uk.com
Re: [TMIC] Bladder control
Bladder problems are very much a part of TM, but that sounds like symptoms of prostrate problems as well. Definitely should get it checked out. Barbara H. _http://barbarah.wordpress.com/_ (http://barbarah.wordpress.com/) In a message dated 1/29/2009 9:40:39 A.M. Eastern Standard Time, sally.wilkin...@genesisdesign.uk.com writes: Hi Guys Am I right in thinking that bladder control can be an issue with TM? My TM husband thinks its not, and that his visits to the loo 7-10 times a night and needing to suddenly pee urgently at any time have nothing to do with his TM! Kind regards Sally in the UK Sally Wilkinson Business Development Manager Genesis Design The Barn Ipsden Oxfordshire OX10 6AS +44(0)1491 682277 _sally.wilkin...@genesisdesign.uk.com_ (mailto:sally.wilkin...@genesisdesign.uk.com) **A Good Credit Score is 700 or Above. See yours in just 2 easy steps! (http://pr.atwola.com/promoclk/10075x1215855013x1201028747/aol?redir=http://www.freecreditreport.com/pm/default.aspx?sc=668072%26hmpgID=62%26bcd=De cemailfooterNO62)
Re: [TMIC] Bladder control
Sally, Yes, bladder control is an issue, go to this website and look under the symptoms section: http://www.ninds.nih.gov/disorders/transversemyelitis/detail_transversemyelitis.htm#133033234 It includes this: From this wide array of symptoms, four classic features of transverse myelitis emerge: (1) weakness of the legs and arms, (2) pain, (3) sensory alteration, and (4) bowel and bladder dysfunction It seems the muscles do not work as normal. I have had TM for over four years and have to do what I used to do with my children---you'd better try to go otherwise sometimes there is an urgency and I almost don't make it. I know with men over a certain age there are prostrate problems too, that cause trips to the bathromm during the night, but TM defintely is known to create bladder problems. Gary in Michigan, USA - Original Message - From: Sally Wilkinson To: tmic-list@eskimo.com Sent: Thursday, January 29, 2009 9:40 AM Subject: [TMIC] Bladder control Hi Guys Am I right in thinking that bladder control can be an issue with TM? My TM husband thinks its not, and that his visits to the loo 7-10 times a night and needing to suddenly pee urgently at any time have nothing to do with his TM! Kind regards Sally in the UK Sally Wilkinson Business Development Manager Genesis Design The Barn Ipsden Oxfordshire OX10 6AS +44(0)1491 682277 sally.wilkin...@genesisdesign.uk.com
Re: [TMIC] Bladder control
I am in diapers 24/7 due to incontinence of both types. I had a really fun test where they filled my bladder with liquid (water or saline - something like that) and monitored the signal to/from the brain that says PEEE. By the way, the method by which they monitored this was with a wire they stuck up between my ohemmm and my ahemmm - too fun. So I reached 900cc and still no signal. They stopped the test so I didn't get a stretched bladder. The doc had wanted to know why I was having problems with sudden geysers of urine and no warning. Point of all this was supposed to tell them how my bladder communicated because having too much urine collect in the bladder may cause it to back up into the kidneys and harm the kidneys to the point of potentially requiring future dialysis or transplant. They set me up with catheters and all the related supplies so I could drain my bladder at regular intervals and prevent back-ups. This hasn't been too successful because I can't feel my hands and can't feel down there - making getting the cath in a very interesting activity. Your husband is obviously getting a signal to urinate, just too frequently. This could be tm or something else, but there are meds that can reduce the number of trips he has to make, if this is indicated. Best wishes. - Original Message - From: Sally Wilkinson To: tmic-list@eskimo.com Sent: Thursday, January 29, 2009 9:40 AM Subject: [TMIC] Bladder control Hi Guys Am I right in thinking that bladder control can be an issue with TM? My TM husband thinks its not, and that his visits to the loo 7-10 times a night and needing to suddenly pee urgently at any time have nothing to do with his TM! Kind regards Sally in the UK Sally Wilkinson Business Development Manager Genesis Design The Barn Ipsden Oxfordshire OX10 6AS +44(0)1491 682277 sally.wilkin...@genesisdesign.uk.com
Re: [TMIC] Bladder control
Hi, Sally! It's nice to hear from you! When I first got home from rehab, they had set me up to to cath's and after a day of trying to prop a mirror to see my ohemmm/ahemmm, I said 'enough of this!' and began making myself go to the bathroom every half hour. I, too, have no feeling and so it was awhile before it began working on it's own. I guess my brain realized I was just too stubborn and was NOT going to use those horrible caths. I still have to use protection because occasionally my brain says 'I have to go...NOW' and it's already too late but the protection if just part of my life. I now go about every two hours and most of the time, it works. It's just part of my life. If we go out, I use extra protection and always go any chance I can. As far as the BM, I talked about that in an earlier e-mail and have that worked out pretty well. This issue is a reality and a very much part of TM so it is good to hear how others work it out (oops...pun). Jeanne ---Original Message--- From: gor...@earthlink.net Date: 1/29/2009 11:56:08 AM To: tmic-list@eskimo.com Subject: Re: [TMIC] Bladder control I am in diapers 24/7 due to incontinence of both types. I had a really fun test where they filled my bladder with liquid (water or saline - something like that) and monitored the signal to/from the brain that says PEEE. By the way, the method by which they monitored this was with a wire they stuck up between my ohemmm and my ahemmm - too fun. So I reached 900cc and still no signal. They stopped the test so I didn't get a stretched bladder. The doc had wanted to know why I was having problems with sudden geysers of urine and no warning. Point of all this was supposed to tell them how my bladder communicated because having too much urine collect in the bladder may cause it to back up into the kidneys and harm the kidneys to the point of potentially requiring future dialysis or transplant. They set me up with catheters and all the related supplies so I could drain my bladder at regular intervals and prevent back-ups. This hasn't been too successful because I can't feel my hands and can't feel down there - making getting the cath in a very interesting activity. Your husband is obviously getting a signal to urinate, just too frequently. This could be tm or something else, but there are meds that can reduce the number of trips he has to make, if this is indicated. Best wishes. - Original Message - From: Sally Wilkinson To: tmic-list@eskimo.com Sent: Thursday, January 29, 2009 9:40 AM Subject: [TMIC] Bladder control Hi Guys Am I right in thinking that bladder control can be an issue with TM? My TM husband thinks its not, and that his visits to the loo 7-10 times a night and needing to suddenly pee urgently at any time have nothing to do with his TM! Kind regards Sally in the UK Sally Wilkinson Business Development Manager Genesis Design The Barn Ipsden Oxfordshire OX10 6AS +44(0)1491 682277 sally.wilkin...@genesisdesign.uk.com
Re: [TMIC] Bladder control
I sure would, too. It is not worth the worry and if it is the prostate, they have different meds that can help it. Please keep us posted?? Jeanne ---Original Message--- From: montzma...@aol.com Date: 1/29/2009 3:10:29 PM To: jrush...@columbiaenergyllc.com Subject: Re: [TMIC] Bladder control SALLY IT SOUNDS TO ME ITS A TM ISSUE. IT COULD BE HIS PROSTRATE ALSO.WOW I CAN FEEL EVERYTHING AND HAD NO BLADDER ARE BOWEL ISSUES IN 17 YEARS WITH TM. I AM VERY LUCKY .A FEW BLADDER INFECTIONS BUT THAT WAS ENOUGH FOR ME! I WOULD HAVE IT CHECKED OUT! JUST MY OPINON1! TIAD PAM!!! From Wall Street to Main Street and everywhere in between, stay up-to-date with the latest news.
RE: [TMIC] Bladder control
That is the same I said in the beginning of TM, because I hatet the catherisasion in the hospital. Untill I learned to do it myself, instead of sitting on the toilet half the night, just before sleeping and sleep the hole night in one peace. In a few days I did not mind to do it, at all. It brought back the rest in my body and legs. He is lucky that his bladder stays closed, because it can also the other way around, as you could read. he just has to put a knob over in his mind. I caterise three times a day, right out of bed in the morning, just before dinner and before going to sleep. Between, just like your husband, little pees. When the bladder is full, it opens not so well as it is been half full, is my expirence. Ones he is on that, there will be much more rest during the day, and he will be more active for pleasure instead of using all his power to go to the toilet the hole day. Wim from Holland. From: sally.wilkin...@genesisdesign.uk.comto: tmic-l...@eskimo.comdate: Thu, 29 Jan 2009 14:40:02 +Subject: [TMIC] Bladder control Hi Guys Am I right in thinking that bladder control can be an issue with TM? My TM husband thinks its not, and that his visits to the loo 7-10 times a night and needing to suddenly pee urgently at any time have nothing to do with his TM! Kind regards Sally in the UK Sally Wilkinson Business Development Manager Genesis Design The Barn Ipsden Oxfordshire OX10 6AS +44(0)1491 682277 sally.wilkin...@genesisdesign.uk.com _ Nieuw: nu ook chatten op je mobiel! http://www.overaljevriendenbijje.nl/#superdeal
