Re: [TMIC] New Neurologist
Way ta go, pHranq3e go get'em, mate.!!! Yes, Think of Doctor visits as a Rugby match... in the rain pH
Re: [TMIC] New Neurologist
In a message dated 6/27/2006 11:40:44 PM Eastern Standard Time, [EMAIL PROTECTED] writes: I do/did wonder why some doctors have their patients have yearly mri's orwonder maybe why some patients are able to have access to yearly mri's. I think a lot has to do with the way individual neuros think. When I was first diagnosed with TM, either the Avonex type drugs weren't being used for MS yet or at least not widely. When I asked about having a follow-up MRI done, my neuro said it wouldn't really be needed since my symptoms weren't worsening and any results from the MRI wouldn't change how we were treating it (which, again, wouldn't be the case these days, because they could start the Avonex drugs to try to prevent another attack). He had had a patient who felt she had MS and kept pushing for that diagnosis, and he did a follow-up MRI which showed that she did indeed have MS. But when she changed her diagnosis, her insurance dropped her. She called him again begging for him to change the diagnosis back, but of course he couldn't do that. So with that background experience, he was reluctant to give patients an MS diagnosis unless it was just unavoidable, and that rendered follow-up MRIs as unnecessary in his mind unless the patient was having worsening symptoms. We've moved, so I don't see him any more, but he might have changed his stance since there are drugs to help with MS. And I don't know if insurance companies would still do that. Barbara H.
RE: [TMIC] New Neurologist
My Neuro has claimed (right after I paid the $30.00 co-payment) that he can't do anything without an fresh MRI Bernie -Original Message- From: Natalie Boyles [mailto:[EMAIL PROTECTED] Sent: Tuesday, June 27, 2006 11:44 PM To: [EMAIL PROTECTED]; [EMAIL PROTECTED]; TMIC List Subject: Re: [TMIC] New Neurologist I do/did wonder why some doctors have their patients have yearly mri's or wonder maybe why some patients are able to have access to yearly mri's. I went to Johns Hopkins and my mri's were over yr old, but they did not do new ones. Hope this does not sound too bad. But do you, Frank, think that perhaps as a doctor you may get better treatment than some of us. I did finally get a new mri after 5yrs, but seems it may have come too late. Wonder if this means I should sue. (not a question, just thinking) Some of us may want better care, even ask for it, but it ain't always there. I am at a loss as to how the medical system works. Natalie - Original Message - From: [EMAIL PROTECTED] To: [EMAIL PROTECTED]; TMIC List tmic-list@eskimo.com Sent: Monday, June 26, 2006 9:48 AM Subject: Re: [TMIC] New Neurologist Gary, I was afflicted in 2000, and have no further episodes, but continue to get MRIs every year even though there has been no changes in MRI since 2000. they just want to make sure that MS is not creeping in to the picture F
Re: [TMIC] New Neurologist
I get an MRI every six months for my Devic's. I think it's because it's a relapsing condition. Grace On 6/28/06, Butcher, Bernie [SFS] [EMAIL PROTECTED] wrote: My Neuro has claimed (right after Ipaid the $30.00 co-payment) that hecan't do anything without an fresh MRI Bernie-Original Message-From: Natalie Boyles [mailto:[EMAIL PROTECTED]]Sent: Tuesday, June 27, 2006 11:44 PMTo: [EMAIL PROTECTED]; [EMAIL PROTECTED]; TMIC ListSubject: Re: [TMIC] New NeurologistI do/did wonder why some doctors have their patients have yearly mri's or wonder maybe why some patients are able to have access to yearlymri's. I went to Johns Hopkins and my mri's were over yr old, but theydid not do new ones.Hope this does not sound too bad. But do you, Frank, think that perhaps as a doctor you may get better treatment than some of us. I did finallyget a new mri after 5yrs, but seems it may have come too late. Wonder ifthis means I should sue. (not a question, just thinking)Some of us may want better care, even ask for it, but it ain't always there.I am at a loss as to how the medical system works.Natalie- Original Message -From: [EMAIL PROTECTED]To: [EMAIL PROTECTED]; TMIC List tmic-list@eskimo.comSent: Monday, June 26, 2006 9:48 AMSubject: Re: [TMIC] New Neurologist Gary, I was afflicted in 2000, and have no further episodes, but continue togetMRIs every year even though there has been no changes in MRI since 2000. they justwant to make sure that MS is not creeping in to the picture F
Re: [TMIC] New Neurologist
But do you, Frank, think that perhaps as a doctor you may get better treatment than some of us? Natalie, Maybe so, also I am very prepared for my encounters with my physicians- partially through the info I receive here from all of you. I make notes- actually have an Agenda for my appointments. I arrive with list of current meds, doses and frequency; have an interval history since last appointment (put together from daily notes of symptoms, problems,etc), have a list of new meds (like Lyrica that I tried after my last appointment), also list of tests that might be done (like liver because of my lipitor). Someone once said that we need to be professional patients and advocates for ourselves. F
Re: [TMIC] New Neurologist
But do you, Frank, think that perhaps as a doctor you may get better treatment than some of us? Natalie, Maybe so, also I am very prepared for my encounters with my physicians- partially through the info I receive here from all of you. I make notes- actually have an Agenda for my appointments. I arrive with list of current meds, doses and frequency; have an interval history since last appointment (put together from daily notes of symptoms, problems,etc), have a list of new meds (like Lyrica that I tried after my last appointment), also list of tests that might be done (like liver because of my lipitor). Someone once said that we need to be professional patients and advocates for ourselves. F
Re: [TMIC] New Neurologist
All the notes,history, and other things you state have always been required and given at my neuro apptments. I even brought one of them the info about TM from the TM website. In fact, I have noticed doctors at least the specialist I have gone to are very insistent that they have all past reports and I must always fill out pages of history ahead of time for them. Natalie - Original Message - From: [EMAIL PROTECTED] To: Natalie Boyles [EMAIL PROTECTED]; [EMAIL PROTECTED]; TMIC List tmic-list@eskimo.com Sent: Wednesday, June 28, 2006 11:42 AM Subject: Re: [TMIC] New Neurologist But do you, Frank, think that perhaps as a doctor you may get better treatment than some of us? Natalie, Maybe so, also I am very prepared for my encounters with my physicians- partially through the info I receive here from all of you. I make notes- actually have an Agenda for my appointments. I arrive with list of current meds, doses and frequency; have an interval history since last appointment (put together from daily notes of symptoms, problems,etc), have a list of new meds (like Lyrica that I tried after my last appointment), also list of tests that might be done (like liver because of my lipitor). Someone once said that we need to be professional patients and advocates for ourselves. F
Re: [TMIC] New Neurologist
I too do the same. Take a list of my meds and what I amts I take. Have questions ready to ask. My appt is only 1/2 hour and I try and get in as many questions as I can and have always got the answers I need. I have done this since my children were tiny. Always helped me out then. They are now 38 and 35 so even with the Neurontin my memory for those kinds of things is still working. LOL Heather in Calgary - Original Message - From: BobbyJim To: [EMAIL PROTECTED] ; Natalie Boyles ; [EMAIL PROTECTED] ; TMIC List Sent: Wednesday, June 28, 2006 3:14 PM Subject: Re: [TMIC] New Neurologist Way ta go, pHranq3e go get'em, mate.!!! Here as well, we go to the neuro loaded with facts and questions and you should see the difference on how me missus is treated. Take the advantage and keep it, y'all. Bobberino, in 90ยบ Elvisland. But at least not the rain the East Coast is getting, even tho we need SOME of it :) From: [EMAIL PROTECTED] To: Natalie Boyles ; [EMAIL PROTECTED] ; TMIC List Sent: Wednesday, June 28, 2006 10:44 AM Subject: Re: [TMIC] New Neurologist But do you, Frank, think that perhaps as adoctor you may get better treatment than some of us?Natalie,Maybe so, also I am very prepared for my encounters with my physicians- partially through the info I receive here from all of you. I make notes- actually have an "Agenda" for my appointments. I arrive with list of current meds, doses and frequency; have an interval history since last appointment (put together from daily notes of symptoms, problems,etc), have a list of new meds (like Lyrica that I tried after my last appointment), also list of tests that might be done (like liver because of my lipitor).Someone once said that we need to be professional patients and advocates for ourselves.F No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.1.394 / Virus Database: 268.9.6/378 - Release Date: 6/28/2006
Re: [TMIC] New Neurologist
Gary, Oh. I was under the impression that the reason for the steriods at initial onset wasto stop the inflammation. I took extremely large doses for about 5 days and am completely convinced that if I had not, my lesionwould have been much larger and I would have been paralyzed. Did your doctor think the inflammation had subsided and the damage (lesion) was already done? I do agree with him on taking the MRI's. It can't really hurt (except for the cost). I have had many more since onset in 1999. Usually, I would have a testwhen I had a new symptom.Symptoms usually related to a problem (such as a kidney or bladder infection) resulting from my residuals. Although, my neurologist wanted to keep up for a while to make sure I didn't have any more lesions. At this point I probably won't have any more mri's unless I have a problem. (onset was 7 years ago) As far as fatigue medicine, my favoriteis provigil. I love it. It worked, no side effects. But of course, my health ins. doesn't pay for it anymore since it's only fda approved for narcolepsy and MS fatigue. So, I've tried all the others out there. Either they didn't work or too many side effects. So, now I take adderall (amphetamines) 15mg-2x a day. Works great, but is very short lived. The great side effect is that so far I've lost 15lbs. in three months! Great for me because since onset I had gained over 30 lbs. I lost about 15 back in 2001 when I stopped neurontin. So now, I'm almost back to the weight I was! Yeah. It does make me a little jittery especially if I drink coffee, so I have had to cut that out to the occasional cup. Since it's summer, I'm opting for the sweet southern tea instead. -Sandy Brassil Charlotte, NC -Original Message-From: [EMAIL PROTECTED]To: [EMAIL PROTECTED]; tmic-list@eskimo.comSent: Mon, 26 Jun 2006 22:11:30 -0400Subject: Re: [TMIC] New Neurologist I refused the steroids because I was able to walk (used a cane for a while) and the neurologist painted a pretty unattractive picture of the possible side affects. Figured I'd just live with my symptoms, which I have for two years butI amfortunate not to be asbadlystricken as some on this "list" . - Original Message - From: [EMAIL PROTECTED] To: [EMAIL PROTECTED] ; tmic-list@eskimo.com Sent: Monday, June 26, 2006 8:34 AM Subject: Re: [TMIC] New Neurologist Why would you refuse steriods?-Original Message-From: [EMAIL PROTECTED]To: TMIC List tmic-list@eskimo.comSent: Sun, 25 Jun 2006 22:08:19 -0400Subject: [TMIC] New Neurologist I was just wondering about your thoughts Two years ago I was "hit" with TM (C-3), spent a couple days in the hospital, refused steroids, left with a cane and went back to work a month later, just living with the stiffness, numbness, burning, fatigue, etc. The two neuorologists who saw me anddiagnosed menever mentioned a follow-up so I just went to my GP. Upon recommendation by some on this list to keep in touch with a newologoist, and wishing for something for the fatigue, I went to a neurologist who said I should have had follow-ups by a neuro and we shouldn't just assume my TM is idiopathic but could be a result of MS ( my initial MRI showed no brain lesions). He said I could have gotten more "small" lesions with no further symptoms. If so, these small lesions could some day come together and, his quote, "all hell break loose". He wouldn't prescribe anything long term for fatigue because he wanted more MRIs. So, tomorrow I will have them. I almost wish I hadn't gone to him as I don't think I have gotten "worse" but learned to live with the symptoms. Just not sure I agree with his reasoning; haven't really seen this view from this list. Any thoughts? Gary in Michigan Check out AOL.com today. Breaking news, video search, pictures, email and IM. All on demand. Always Free. Check out AOL.com today. Breaking news, video search, pictures, email and IM. All on demand. Always Free.
Re: [TMIC] New Neurologist
Sandy,
I guess the doctors figured the damage was done yet
they did mention steroids but only said that if I had been diagnosed with MS I
really had no choice but to take it. The one neuro who talked to me about
it did emphasize side effects and didn't seem persuasive about taking it.
I don't think I got any worse since the onset so I guess not taking the steroids
didn't result in more damage.
This neuro I just went to last week is suggesting I
may have gotten small lesions with no symptoms so thus the three MRIs I got
yesterday.
I was going to get something for fatigue but
decided to wait until the test results.
I think the doctordid talk about
Provigil.
Thanks for your input,
Gary
- Original Message -
From:
[EMAIL PROTECTED]
To: [EMAIL PROTECTED] ; tmic-list@eskimo.com
Sent: Tuesday, June 27, 2006 10:58
AM
Subject: Re: [TMIC] New Neurologist
Gary,
Oh. I was under the impression that the reason for the steriods at
initial onset wasto stop the inflammation. I took extremely large
doses for about 5 days and am completely convinced that if I had not, my
lesionwould have been much larger and I would have been paralyzed.
Did your doctor think the inflammation had subsided and the damage
(lesion) was already done?
I do agree with him on taking the MRI's. It can't really hurt
(except for the cost). I have had many more since onset in 1999.
Usually, I would have a testwhen I had a new
symptom.Symptoms usually related to a problem (such as a kidney or
bladder infection) resulting from my residuals. Although, my neurologist
wanted to keep up for a while to make sure I didn't have any more
lesions. At this point I probably won't have any more mri's unless I
have a problem. (onset was 7 years ago)
As far as fatigue medicine, my favoriteis provigil. I love
it. It worked, no side effects. But of course, my health ins.
doesn't pay for it anymore since it's only fda approved for narcolepsy and MS
fatigue. So, I've tried all the others out there. Either they
didn't work or too many side effects. So, now I take adderall
(amphetamines) 15mg-2x a day. Works great, but is very short
lived. The great side effect is that so far I've lost 15lbs. in three
months! Great for me because since onset I had gained over 30 lbs.
I lost about 15 back in 2001 when I stopped neurontin. So now, I'm
almost back to the weight I was! Yeah. It does make me a little
jittery especially if I drink coffee, so I have had to cut that out to the
occasional cup. Since it's summer, I'm opting for the sweet southern tea
instead.
-Sandy Brassil
Charlotte, NC
-Original Message-From: [EMAIL PROTECTED]To:
[EMAIL PROTECTED]; tmic-list@eskimo.comSent: Mon, 26 Jun 2006 22:11:30
-0400Subject: Re: [TMIC] New Neurologist
I refused the steroids because I was able to walk (used
a cane for a while) and the neurologist painted a pretty unattractive picture
of the possible side affects. Figured I'd just live with my symptoms,
which I have for two years butI amfortunate not to be
asbadlystricken as some on this "list" .
- Original Message -
From:
[EMAIL PROTECTED]
To: [EMAIL PROTECTED]
; tmic-list@eskimo.com
Sent: Monday, June 26, 2006 8:34
AM
Subject: Re: [TMIC] New
Neurologist
Why would you refuse steriods?-Original
Message-From: [EMAIL PROTECTED]To:
TMIC List tmic-list@eskimo.comSent:
Sun, 25 Jun 2006 22:08:19 -0400Subject: [TMIC] New Neurologist
I was just wondering about your
thoughts
Two years ago I was "hit" with TM (C-3), spent
a couple days in the hospital, refused steroids, left with a cane and went
back to work a month later, just living with the stiffness, numbness,
burning, fatigue, etc. The two neuorologists who saw me
anddiagnosed menever mentioned a follow-up so I just went to my
GP.
Upon recommendation by some on this list to
keep in touch with a newologoist, and wishing for something for the fatigue,
I went to a neurologist who said I should have had follow-ups by a neuro and
we shouldn't just assume my TM is idiopathic but could be a result of MS (
my initial MRI showed no brain lesions). He said I could have gotten
more "small" lesions with no further symptoms.
If so, these small lesions could some day come
together and, his quote, "all hell break loose".
He wouldn't prescribe anything long term for
fatigue because he wanted more MRIs. So, tomorrow I will have
them.
I almost wish I hadn't gone to him as I don't
think I have gotten "worse" but learned to live with the symptoms.
Just not sure I agree with his reasoning; haven't really seen this view from
this list
Re: [TMIC] New Neurologist
I do/did wonder why some doctors have their patients have yearly mri's or wonder maybe why some patients are able to have access to yearly mri's. I went to Johns Hopkins and my mri's were over yr old, but they did not do new ones. Hope this does not sound too bad. But do you, Frank, think that perhaps as a doctor you may get better treatment than some of us. I did finally get a new mri after 5yrs, but seems it may have come too late. Wonder if this means I should sue. (not a question, just thinking) Some of us may want better care, even ask for it, but it ain't always there. I am at a loss as to how the medical system works. Natalie - Original Message - From: [EMAIL PROTECTED] To: [EMAIL PROTECTED]; TMIC List tmic-list@eskimo.com Sent: Monday, June 26, 2006 9:48 AM Subject: Re: [TMIC] New Neurologist Gary, I was afflicted in 2000, and have no further episodes, but continue to get MRIs every year even though there has been no changes in MRI since 2000. they just want to make sure that MS is not creeping in to the picture F
Re: [TMIC] New Neurologist
Why would you refuse steriods?-Original Message-From: [EMAIL PROTECTED]To: TMIC List tmic-list@eskimo.comSent: Sun, 25 Jun 2006 22:08:19 -0400Subject: [TMIC] New Neurologist I was just wondering about your thoughts Two years ago I was "hit" with TM (C-3), spent a couple days in the hospital, refused steroids, left with a cane and went back to work a month later, just living with the stiffness, numbness, burning, fatigue, etc. The two neuorologists who saw me anddiagnosed menever mentioned a follow-up so I just went to my GP. Upon recommendation by some on this list to keep in touch with a newologoist, and wishing for something for the fatigue, I went to a neurologist who said I should have had follow-ups by a neuro and we shouldn't just assume my TM is idiopathic but could be a result of MS ( my initial MRI showed no brain lesions). He said I could have gotten more "small" lesions with no further symptoms. If so, these small lesions could some day come together and, his quote, "all hell break loose". He wouldn't prescribe anything long term for fatigue because he wanted more MRIs. So, tomorrow I will have them. I almost wish I hadn't gone to him as I don't think I have gotten "worse" but learned to live with the symptoms. Just not sure I agree with his reasoning; haven't really seen this view from this list. Any thoughts? Gary in Michigan Check out AOL.com today. Breaking news, video search, pictures, email and IM. All on demand. Always Free.
Re: [TMIC] New Neurologist
The current thinking in the MS world is that we do have what they call "silent attacks" that occur between those that we do notice. I guess this came about because some MS patients were having follow up MRIs and they were noticing new/old lesions. That is that they had lesions they had not documented on MRI previously but they were not necessarily new or active. I guess they occur between noticeable attacks. I would thinkthat these silent attacks are nothing new in MS but more an artifact of the MRI. We know more about how MS progresses because of the test. But the disease is still the same as it has always been. My neuro says I only need to do a follow-up MRI when I have new symptoms and feel like I am having a new attack. But the MS folks now think that you can be having damage that you do not even notice so regular follow-up MRIs may be a benefit. I think it boils down to one of those TM/MS differences/similarities that we like to discuss from time to time. Sandy in sunny Wisconsin where the rain has finally stopped. - Original Message - From: [EMAIL PROTECTED] To: TMIC List Sent: Sunday, June 25, 2006 9:08 PM Subject: [TMIC] New Neurologist I was just wondering about your thoughts Two years ago I was "hit" with TM (C-3), spent a couple days in the hospital, refused steroids, left with a cane and went back to work a month later, just living with the stiffness, numbness, burning, fatigue, etc. The two neuorologists who saw me anddiagnosed menever mentioned a follow-up so I just went to my GP. Upon recommendation by some on this list to keep in touch with a newologoist, and wishing for something for the fatigue, I went to a neurologist who said I should have had follow-ups by a neuro and we shouldn't just assume my TM is idiopathic but could be a result of MS ( my initial MRI showed no brain lesions). He said I could have gotten more "small" lesions with no further symptoms. If so, these small lesions could some day come together and, his quote, "all hell break loose". He wouldn't prescribe anything long term for fatigue because he wanted more MRIs. So, tomorrow I will have them. I almost wish I hadn't gone to him as I don't think I have gotten "worse" but learned to live with the symptoms. Just not sure I agree with his reasoning; haven't really seen this view from this list. Any thoughts? Gary in Michigan
RE: [TMIC] New Neurologist
For me, steroids (prednesone) makes me feel and walk much better . I was on them last December for 2 months, I was ready to throw away my cane. Then they made me stop - prednesone for long periods of time are no good for other body parts Bernie Butcher [EMAIL PROTECTED] From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] Sent: Monday, June 26, 2006 8:34 AMTo: [EMAIL PROTECTED]; tmic-list@eskimo.comSubject: Re: [TMIC] New Neurologist Why would you refuse steriods?-Original Message-From: [EMAIL PROTECTED]To: TMIC List tmic-list@eskimo.comSent: Sun, 25 Jun 2006 22:08:19 -0400Subject: [TMIC] New Neurologist I was just wondering about your thoughts Two years ago I was "hit" with TM (C-3), spent a couple days in the hospital, refused steroids, left with a cane and went back to work a month later, just living with the stiffness, numbness, burning, fatigue, etc. The two neuorologists who saw me anddiagnosed menever mentioned a follow-up so I just went to my GP. Upon recommendation by some on this list to keep in touch with a newologoist, and wishing for something for the fatigue, I went to a neurologist who said I should have had follow-ups by a neuro and we shouldn't just assume my TM is idiopathic but could be a result of MS ( my initial MRI showed no brain lesions). He said I could have gotten more "small" lesions with no further symptoms. If so, these small lesions could some day come together and, his quote, "all hell break loose". He wouldn't prescribe anything long term for fatigue because he wanted more MRIs. So, tomorrow I will have them. I almost wish I hadn't gone to him as I don't think I have gotten "worse" but learned to live with the symptoms. Just not sure I agree with his reasoning; haven't really seen this view from this list. Any thoughts? Gary in Michigan Check out AOL.com today. Breaking news, video search, pictures, email and IM. All on demand. Always Free.
Re: [TMIC] New Neurologist
Gary, I was afflicted in 2000, and have no further episodes, but continue to get MRIs every year even though there has been no changes in MRI since 2000. they just want to make sure that MS is not creeping in to the picture F
Re: [TMIC] New Neurologist
Gary, I was afflicted in 2000, and have no further episodes, but continue to get MRIs every year even though there has been no changes in MRI since 2000. they just want to make sure that MS is not creeping in to the picture F
Re: [TMIC] New Neurologist
I refused the steroids because I was able to walk (used a cane for a while) and the neurologist painted a pretty unattractive picture of the possible side affects. Figured I'd just live with my symptoms, which I have for two years butI amfortunate not to be asbadlystricken as some on this "list" . - Original Message - From: [EMAIL PROTECTED] To: [EMAIL PROTECTED] ; tmic-list@eskimo.com Sent: Monday, June 26, 2006 8:34 AM Subject: Re: [TMIC] New Neurologist Why would you refuse steriods?-Original Message-From: [EMAIL PROTECTED]To: TMIC List tmic-list@eskimo.comSent: Sun, 25 Jun 2006 22:08:19 -0400Subject: [TMIC] New Neurologist I was just wondering about your thoughts Two years ago I was "hit" with TM (C-3), spent a couple days in the hospital, refused steroids, left with a cane and went back to work a month later, just living with the stiffness, numbness, burning, fatigue, etc. The two neuorologists who saw me anddiagnosed menever mentioned a follow-up so I just went to my GP. Upon recommendation by some on this list to keep in touch with a newologoist, and wishing for something for the fatigue, I went to a neurologist who said I should have had follow-ups by a neuro and we shouldn't just assume my TM is idiopathic but could be a result of MS ( my initial MRI showed no brain lesions). He said I could have gotten more "small" lesions with no further symptoms. If so, these small lesions could some day come together and, his quote, "all hell break loose". He wouldn't prescribe anything long term for fatigue because he wanted more MRIs. So, tomorrow I will have them. I almost wish I hadn't gone to him as I don't think I have gotten "worse" but learned to live with the symptoms. Just not sure I agree with his reasoning; haven't really seen this view from this list. Any thoughts? Gary in Michigan Check out AOL.com today. Breaking news, video search, pictures, email and IM. All on demand. Always Free.
Re: [TMIC] New Neurologist
I don't think it's too unusual for a new neurologist to want to ask for another MRI to see what, if anything has been happening since your onset. I saw my neuro regularly for maybe a year or so after initial onset, but he never did a follow-up MRI. When we moved away, I didn't get a new neuro since I was pretty much on a plateau as far as recovery goes (still some minor improvements 10+ year later, but not as big as the first few months). My GP is knowledgeable about TM, so that helps, too. But I do know some people whose doctors follow up with MRIs from time to time just to check on what's going on. I've been curious, myself, but not enough to ask for one. My GP told me he'd refer me for one if I ever wanted it. Barbara H. In a message dated 6/25/2006 10:09:02 PM Eastern Standard Time, [EMAIL PROTECTED] writes: I was just wondering about your thoughts Two years ago I was "hit" with TM (C-3), spent a couple days in the hospital, refused steroids, left with a cane and went back to work a month later, just living with the stiffness, numbness, burning, fatigue, etc. The two neuorologists who saw me anddiagnosed menever mentioned a follow-up so I just went to my GP. Upon recommendation by some on this list to keep in touch with a newologoist, and wishing for something for the fatigue, I went to a neurologist who said I should have had follow-ups by a neuro and we shouldn't just assume my TM is idiopathic but could be a result of MS ( my initial MRI showed no brain lesions). He said I could have gotten more "small" lesions with no further symptoms. If so, these small lesions could some day come together and, his quote, "all hell break loose". He wouldn't prescribe anything long term for fatigue because he wanted more MRIs. So, tomorrow I will have them. I almost wish I hadn't gone to him as I don't think I have gotten "worse" but learned to live with the symptoms. Just not sure I agree with his reasoning; haven't really seen this view from this list. Any thoughts? Gary in Michigan
