Jody,
In the beginning of the treatment ( first year) my son had many side effects
but now he is fine and doing well. I guess the body needs at least a year to
be used to that.
Keep going 'cause everything is going to be all right.
blessings from Brazil,
Ricardo.
ps: do not forget to have a natural
This is quite different in that I cannot take it at all because of causing a
brain bleed which could be severe enoughtokill me.
I think all of them are related enough that I am going to have to rely on
natural medicine and God only to keep me alive.?
Do you know of anyone else on this site who
Hi Jody and yes I had to do this when I first started Gleevec.
Your blood will go up and down for a while, but then mine finally got into
line.
Gleevec quit working for me after 5 years and i was put on Tasigna.
I had the same thing happen with my blood again and had to have 2
transfusions.
In a message dated 3/13/2009 1:56:26 A.M. Eastern Daylight Time,
Hi Susan,
I pray they will find something that will work for you.
I have found that the nilotinib (Tasigna) has been the best for me so far.
Did you onc try a lower dose of Tasigna?
Blessings,
Jeanie<3
rszim0...@aol.com writes:
Hi everyone. After 4 1/2 years on Gleevec my doctor switched me to Sprycel. I
had continued to have multiple side effects on the Gleevec so in late Nov he
put me on the Sprycel. I really seemed to do better on it but I did notice my
hair was coming out pretty fast. It never did that with the Gle
Hi Suzan,
I had those skin ulcers on Gleevec.
They would start out looking like a small blister and then grow to the size
of a boil. They sure were painful. Then one day, they went away.
I failed on Gleevec and am now on Tasigna.
We have a special Tasigna support group for CML WARRIORS who
after 6 years on Gleevec my mother is still PCU, we are happy about that, but
she has been having lots of problem with her stomach, 2 days ago she went to
hospital because a
gastroenteritis, now she is at home but hasn´t taken gleevec for 3 days, she
wants to start it again tomorrow.
the quest
Has your mother been making sure she is eating a large meal with her Gleevec
and drinking a large glass of water with it? This is very important. Her
Doctor might take her off until her tummy gets well.
What does her onc say?
Blessings,
Jeanie<3
In a message dated 3/14/2009 2:22:41 P.M. Eas
her onc doesn´t say too much. she always takes it with large meal and water.
she has been off gleevec for 3 or 4 days because we think is better. tomorrow
if she is ok , she will take it.
- Original Message -
From: icandoall...@aol.com
To: CMLHope@googlegroups.com
Sent: Saturda
In a message dated 3/14/2009 2:31:26 P.M. Eastern Daylight Time,
anab...@hotmail.com writes:
her onc doesn´t say too much. she always takes it with large meal and water.
she has been off gleevec for 3 or 4 days because we think is better.
tomorrow if she is ok , she will take it.
Great!
Hi there,
could you post the site that you found concerning side effects with
Sprycel. My husband has been on Sprycel for approx
two years and has had terrific stomach aches. He has had all the
stomach tests and nothing has been found, so the onc decided to
stop Sprycel for a month. Now he is
I was having nausea problems for awhile so I stopped Gleevec for 8 days.
Then restarted on the 9th day and my nausea has not returned. I didn't tell
my
Doctor.
greenie
**Need a job? Find employment help in your area.
(http://yellowpages.aol.com/search?query=employment_agenci
Hi here is the link http://www.rxlist.com/sprycel-drug.htm good luck.
Suzan
--- On Sat, 3/14/09, Tanya Metaksa wrote:
From: Tanya Metaksa
Subject: [CMLHope] Re: Sprycel
To: CMLHope@googlegroups.com
Date: Saturday, March 14, 2009, 2:03 PM
Hi there,
could you post the site that you found c
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