jeanie, Who is your doctor at Moffitt
Date: Wed, 14 Jan 2015 21:32:26 -0800
From: rbhuffm...@gmail.com
To: cmlhope@googlegroups.com
CC: icandoall...@aol.com
Subject: Re: [CMLHope] My Update anyone had relapse after 5 years on tkis?
I am my own advocate, I do have two ONCs. One is at a new r
Thanks for your service. The only reason I use the VA is to get my
medicine. Seeing I am a cancer patient I am forced to see an Oncologist
get them to sing the prescription. Without the VA I could not afford the
Health Insurance copay until I could get assistance from the Drug
company. He w
good luck on your BMB tomorrow Jeannie. I will be thinking of you. AS for
results of endoscopies, I had a small stomach ulcer..the result of taking
NSAIDS on an empty stomach... to battle a broken hand. it was years ago but
Iearned my lesson.
I never take any pain med without food.
thinking
Wanted to add that you are the first one that went through "Getting off
Gleevec" trial that I have heard off. Thanks so much for that!!!
Great news!!!
Hang in there!!
Jeanie🐟🐟
Sent from my iPhone
> On Jan 14, 2015, at 2:19 AM, Rien Jonkers wrote:
>
> Thank you Peter, for your quick reply. I
Hi Rien
In my 11 years on tki's nothing surprises me anymore!!!
I recently suffered from terrible jaw and ear pain. It finally went away but
my blood counts went way up.
Have you bruise your mouth?
Has this been going on for a long time?
Sometimes a wait and see might work.
Keep a close check o
Hi Jeanie,
I wish you good luck with your BMA. I'm praying for the best.
18's,
Marty
On Thu, Jan 15, 2015 at 1:34 PM, 'Icandoallttc' via CMLHope <
cmlhope@googlegroups.com> wrote:
> Hi all and thanks so much for the updates in endoscopy.
> Did anyone have anything discovered during the procedu
Hi again Greenie,
Like you said, don't look back but only forward.
By the way, I am an animal lover whether it be dogs, cats, birds or fish.
I am glad to hear that you threw back those fish where they belong.
18's,
Marty
On Thu, Jan 15, 2015 at 2:17 PM, Myvety2k via CMLHope <
cmlhope@googlegr
Marty, by the way my first Doctor at Northwestern, Dr. Tallman worked with
Doctor Druker. He left their and went to Chicago. Now he's at Cornell
University. My Doctor now in Chicago is the same one that Susan has, Dr.
Altman.
greenie
In a message dated 1/15/2015 1:09:00 P.M. Eastern
Marty, My aunt left me some stock and money and one of the stocks was
Novartis and my stock guy told me to sell it. That was before Gleevec was in
any kind of study. Because of him I also lost $43,000.00 and I pulled my
money out and fired him. If I, would have, could of. Of course I wish
Hi all and thanks so much for the updates in endoscopy.
Did anyone have anything discovered during the procedure?
I have had an ongoing pain in my right side. I am hoping they can solve the
mystery.
Getting the Bma early in the morning. No food or drink after midnight. Sure
will miss my m
Hi Jeanie,
Yup, I've had them too. I've had 15 of them to exact. For me they were
painless. I had general anaesthesia and woke up as they were taking me to
recovery. I have a lot of trouble with anaesthesia, so me waking up while
they were taking me to recovery was no big surprise. I once woke up
Hi Greenie,
First, where in Florida do you live? I am on the east coast, Boynton Beach.
If we are not to far maybe we can do lunch one of these days. If my memory
serves me right I think that you may be in Ft Meyers??? If so then I guess
that lunch is out of the question...
About STI571. Do you k
Thank you Peter, for your quick reply. I was very and still am a bit
worried, I got cancer already there times (colon, skin and leucemia) and do
not like very much the idea of getting snotter one! Your experience makes
me hope that probably my strange blue/violet spot will be something as you
descr
On Wednesday, January 14, 2015, Richard H wrote:
> I am my own advocate, I do have two ONCs. One is at a new regional cancer
> center and i am completing 12 years of treatment with. The other is with
> the VA. They are assigning me underqualified Drs. that should not be
> trying to treat me, b
Thank you Marty, Everything you wrote is so true about Gleevec and CML.
It's unfortunate that greed and money has to be in the equations in the
final outcome. After Interferon that almost killed me all that was left was
Hydrea. So when Doctor Tallman called me and wanted be in his study
Hi Greenie,
So you have been on Gleevec for 15 years. That is something good to know
because what would you have done without Gleevec? This drug is responsible
for saving countless lives. Thank GOD it is here or you wouldn't be here
right now.
If it weren't for dialysis neither would I be here ri
A Fantastic message from your friendHave a great day, Marty!A.
From: Marty Gartenberg
To: cmlhope@googlegroups.com
Sent: Thursday, January 15, 2015 5:18 AM
Subject: Re: [CMLHope] Facing misfortune
Hi Angie,
Very well said.
It reminds me of when I had my bone marrow transpla
Hi Greenie 15 yrs on glivec, i will be 14yrs this yr (started roughly 3
yrs after dx)
Shannon
On Saturday, January 10, 2015 at 12:11:08 AM UTC+11, greenie wrote:
>
> Jeanie, as of Jan. 10th I will have been on Gleevec for 15 years.
> Starting to retain fluid around my ankles a little but that
Hi Angie,
Very well said.
It reminds me of when I had my bone marrow transplant and had to live in a
plastic bubble in the hospital for many months. A friend of mine came to
see me and even though he couldn't come into the bubble he pasted this on
the outside of that bubble. Any time that I had a
Richard, I am a vet and I would never go to the VA for treatment even for a
hang nail, because I have had previous dealings with them. They were
recently in the news for everything that they were not doing for most of us
vets.
When someone has CML or any other major disease then most of the doctor
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