Hi Jeanie: My next blood test will be on Aug 5, one month after my last one. I
will have been on one tablet per two week period, so I haven't had a blood test
for a month. Will see how that works. Looks like you are doing OK
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Hi John and good to hear from you. Hope your blood stays good.
I don't have to go back until sept 3rd. I don't like waiting that long for
blood test so I will get my PCD to do a blood test next week.
I still take 1 pill daily.
My Motto: Faith and Pills
Jeanie 🐟🐟18,s
Dx 1/2004. CML Leukemia
Hi Joyce.
It looks like your liver counts are 1-10% common to increase on that drug.
Read the information that comes with the meds. Read the whole document
through.
They will stabilize as well as other side effects.
It seems I will go from one side effect to another as time passes.
Fight
Just wanted to say that I take OTC pain killers and have tried prescription
ones. I have a right side pain that won't go away and they can't find out what
it is. Nothing seems to help the pain.
They are doing a ct scan in Sept to see if they can find it but they have
already done that with no
I was diagnosed in jan 2015 and put on tasigna, my numbers are great as was the
last bone marrow test. The ph chromosome was almost undectable!
Yes I know all of this great news and I am glad, however the 'rash' side effect
has me a virtual prisoner! My face, neck chest hands and feet are a mess.
Was just wondering if anyone has heard from Skip in a while? I know I
haven't been very faithful here lately and may have missed any reports
about him or posts from him. The reason I am asking, I've met a woman who
is a 20 or 22 year survivor with CML and apparently none of the TKI's
worked
I don't always post, but I check the messages pretty much everyday and have not
seen anything from Skip. I was thinking about him, too, and wondering why we
have not heard anything from him. Skip, we are missing you.
Joyce in IL
On Jul 24, 2015, at 1:17 PM, Suzieq wrote:
> Was just wo
Hi Suzieq,
I also haven't heard from Skip. I tried contacting him trough skype but
nothing yet.
I will keep tiring.
18's
Marty
On Fri, Jul 24, 2015 at 2:17 PM, Suzieq wrote:
> Was just wondering if anyone has heard from Skip in a while? I know I
> haven't been very faithful here lately and
Almost undetectable after only 8 months - that's wonderful! I would gladly
put up with the rash if I had those those results.
I got the Tasigna rash about one year after starting Tasigna. The
dermatologist was clueless ("I dunno, must be the medication").
Anyways, those nasty pimples wandered in
Hi Kate and welcome. Rash is a bad side effect. Glad you are doing so good on
tasigna. I didn't. Dropped my counts too low and quit working for me but
many patients do good on it. This rash will go away hopefully soon. Use
creams until you find one that helps. Good luck.
My Motto: Faith
Good luck susieq. I haven't heard from Skip.
My Motto: Faith and Pills
Jeanie 🐟🐟18,s
Dx 1/2004. CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib January 2015
Dr Balducci Moffitt Cancer Center
> On Jul 24, 2015, at 2:17 PM, Suzieq wrote:
>
Jeanie,
I know you have been dealing with that pain for a long time. Medicine has come
so far and yet the Good Lord holds some secrets from us. I hope in Sept they
will get a clue as to the pain's cause.
Joyce in IL
On Jul 24, 2015, at 11:20 AM, 'Icandoallttc' via CMLHope wrote:
> J
Hi Joyce, I am so glad that your husband's CML numbers are going in the right
direction. The cml journey is often a balancing act, between the right dosage
and side effects...Maybe your husband could be on 150 of busutinif with time???
It seems that 200 put him close to remission. I had to go of
Peter, I too had the tasigna rash, severe at three quarters of the standard
doseage. My eye brows fell out and half my hair as well..lowering the doseage
helped the severity of the rash..but in the end, my liver didn't like the
drugI know many people that do really well on the drug, and hav
A-okay. Working with my ONC is what I have been doing since Feb. 2002.
This is a second round for me. At 5 1/2 years I been through this on 400mg
Gleevec for 6 months.. This time from Nov. 2014 I am on 300mg Gleevec. I
have been on and off Iron pills 65mg and also Procrit. I get my medicine
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