Tina,
You wondered what the cost of Tasigna is. I have been on it for almost
three years. Last time I checked I think it was approximately $27,800 for
three months worth. I am VERY thankful for insurance that pays for all this!
(it is probably even more by now).
Nancy in NY
--
[CMLH
In a message dated 9/5/2010 6:20:34 A.M. Eastern Daylight Time,
cmlhope+nore...@googlegroups.com writes:
Today's Topic Summary
Group: _http://groups.google.com/group/cmlhope/topics_
(http://groups.google.com/group/cmlhope/topics)
* _Chest heaviness_ (mip://08b75260/default.html#g
Hi Peg,
I was on Gleevec for 4 1/2 yrs. and switched to Tasigna in June of 2008.
I've been on T. ever since. I had an EKG before starting Tasigna, then had
several EKG's in the early months. Since I had no QT problems, I am now
down to one EKG a year. I started Tasigna at 400 mg. per d
Hi Judi,
The idea to switch drugs came from my dr. I was hesitant and afraid at
first, but due to the pleural effusions and ascites, I was talked into it.
I'm so happy I did!
Good luck,
Nancy in NY
Tasigna 800 mg. per day
--
[CMLHope]
A support group of http://cmlhope.com
I was on Gleevec for 4 1/2 yrs. I was tired, retaining fluid (pleural
effusions and ascites) had those horrible swollen eyes, and worst of all had
the "bathroom issues". That was the worst. If I felt like I had to go, I
HAD to go, like immediately! That is pretty much the reason I retired
Wow, I didn't realize Tasigna could cause diabetes! I've been on it for
two years and so far so good. Three months ago my checkup showed high
glucose, however. This time, last week, my glucose was normal. Should I
watch
that level carefully? One more thing to worry about.
Nancy in NY
-
I had the same problem. Now, I've been on Tasigna for two years and have
no more swelling. When I look at pictures of myself taken while on
Gleevec, I immediately notice the swollen eyes. At the time, I didn't realize
how noticeable it was, but now that it's gone, I do. I used to put cl
I have been on Tasigna for two years. I go to the dentist twice a year
and have not had a cavity in the time I've been on Tasigna. Please keep us
posted on your progress, and if you find out that Tasigna has had anything
to do with your problem.
Thanks!
Nancy in NY
--
[CMLHope]
A support
Thanks for the information. I still don't understand, however. Are we
more at risk than the general population because a live virus is used? If
our counts are good I don't understand why we are more at risk.
Nancy in NY
--
[CMLHope]
A support group of http://cmlhope.com
---
I was thinking about asking for the shingles shot. Millie, did your dr.
say why you couldn't have it? I'm on Tasigna also.
Nancy in NY
--
[CMLHope]
A support group of http://cmlhope.com
-
You received this message because you are subscribed t
Thanks for your replies. I don't understand a thing about the donut hole,
but it sounds like it wasn't good. I can't believe some of you had to pay
such high prices, even if temporary. I am certainly hoping this new bill
will enable Medicare to pay for our meds. Did I read that the new b
I'm glad the bill passed. I was worried about the lifetime cap that my
ins. policy has. I'm already past $500,000. Now that won't be such a worry.
I don't understand everything about the bill, however. I am too young
for Medicare and am fortunate to have a good insurance policy from my
Nancy,
I have been on Tasigna since June 2008. The fasting has been the most
difficult part of being on this drug for me. I am doing very well and hope
this continues. My schedule seems to work best with me taking my drugs at 10
a.m. and about 10 p.m. I can get up, eat breakfast, then t
I have been on Tasigna since June, 2008. In the early days, I did have a
very itchy scalp and some hairloss. The both stopped after a short time,
however. I think it was about six weeks or so. Good luck.
Nancy in NY
--
[CMLHope]
A support group of http://cmlhope.com
-
I just heard the news that Kareem Abdul Jabbar has cml. I'm always sorry
to hear that one more person has been diagnosed, however, I thought maybe
it was good that he brought awareness to the symptoms/disease by speaking out
publicly. Now, after researching on the internet, I have read that
I don't know anything about psa tests, and their increase after cml
diagnosis. However, I am an ovarian cancer survivor and was long before my
cml
diagnosis. The test for ovarian is a ca-125. I was followed for nine years
after ovarian treatment and my ca-125 was always in the normal ran
From: NChando
To: cmlh...@yahoogroups.com
Sent: 3/27/2009 8:58:25 A.M. Eastern Daylight Time
Subj: Bev
Hi Bev,
What dose of Gleevec are you on? After your Gleevec vacation, you might
want to consider switching drugs. I started having side
Happy Anniversary Suzie Q and Jeannie! I'm also a five yr. survivor this
month. I was diagnosed on Jan. 13, 2004 -worst day of my life! Glad we're
all
still here!! I'm on Tasigna and doing well.
Nancy in NY
**Know Your Numbers: Get tips and tools to help you improve your
cred
Hi Millie,
It looks like we've been on Tasigna for about the same amount of time. I
recently had a pcr test and it came back undetectable! I'm on 800 mg. and I
feel pretty good. Where is your dr. located? Mine is at MSKCC in NYC.
Good luck to you on Tasigna!
Nancy in NY
***
Hi Jeanie,
I'm glad to hear you got through the transfusion ok. I'm sure you will feel
better because of it. Good luck with all your other tests including the ct
scan.
I read an earlier post of yours and realized that we were diagnosed at the
same time, January 2004. I was on Gleevec f
Jeannie,
I understand your feeling about the transfusion. I never wanted one either,
but two years ago I needed it for the same reason as you. (I was on Gleevec
at the time). I had the transfusion, felt much better, and never needed
another one.
Now I'm on 800 mg. Tasigna. I'm PCRU and
Jeanie,
Hi! I've been on Tasigna since July. I take 800 mg. (400 twice a day). I
just got the results of my first FISH and PCR (done by peripheral blood)
since starting Tasigna. I was totally UNDETECTABLE! Wasn't that great? I
was
taken off Gleevec because of fluid retention and acc
I receive my Gleevec from Medco. I have never had a problem. I use their
online ordering. They give me an e-mail when I can renew. It's always well
in advance of being out of pills. I click on renew and within a few days the
meds arrive. Have you tried the online renewals? It has work
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