Seems normal to me. I'm only on 400mg and I've been anemic and had
neutropina for over three years now.
Richard
62 yrs old, dxd 2/2003
sheila wrote:
Is it normal to be anemic while taking gleevec? Last summer before I
was diagnosed I was anemic and after I started taking gleevec my
For what it's worth, My counts have been low and stable for 3 years on Gleevec. I seem to be doing just fine.On 9/19/06, Sandy Johnson
[EMAIL PROTECTED] wrote:Thanks Cindy,any information I get is helpful. I was wondering what they would do for his RBC if it got to low. Randy's counts were real
I've been drawing SSDI for three years now.Good luck,Richard TroxelOn 9/11/06, [EMAIL PROTECTED]
[EMAIL PROTECTED] wrote:
I dont know exactly what you are wanting but I recieve SSI Dissability that is Social security Supplemental Income based on a Dissability which I was drawing before I was Dx
I eat one to two bananas every day and take a calcium supplement. Further I do daily stretching exercises and have managed to keep my cramping down to mild levels.Richard T.dx 2/03 pcru 9/2004
On 8/28/06, Renee [EMAIL PROTECTED] wrote:
I have cramps in my hands, feet, legs, side, and back.I was
Hi Cindy,I can remember my mother telling me that as a child I had a heart murmur but that the doctors insisted I would grow out of it, I did.Now my cardiologist has found that I again have a heart murmur, I'm 62. She says that this is very common in men and women at my age and should not
Avis,Hi, I don't think Dona will have a problem with Vicodin as long as she does not take too many. The problem with Tylenol is when people take large quantities for prolonged periods. Two or Three Vicodin a day (the 5/500mg variety) should not be a problem. Another word of caution is to be
Hello Tony,I take Vicodin too for pain, usually only one and no more than two in a 24hr period. The 5mg of hydrocodone is not a problem unless you get addicted. The 500mg of Acetaminophen is the problem for us CMLers on Gleevec. Acetaminophen is hard on the liver as is Gleevec and can create a
I am not a doctor but I go to one. This, to me, does not sound like a reaction to Gleevec. It may be a reaction to deodorant or something else. Antihistamines might help but you also might want to see a doctor if it does not clear right up.
Richard T.On 7/12/06, Ana [EMAIL PROTECTED] wrote:
Hi Steve,I'm sorry to hear about Vaessa. I was diagnosed in Feb., 2003. To give you some simple answers. Yes, it is common to begin with 600 or 800 mg of Gleevec. The theory is that the quicker a patient achieves remission, the better the long term outcome. Most people take, on average, 18 months
Everyone is different. Some get no side effects(adverse) while others seem to be in misery. For most of us it is a matter of identifying what are Gleevec side effects and dealing with those effects. Dealing with them can include other medications, vitamins, minerals, diet, exercise and especially
I have not heard of it with CML.Richard Troxeldx 2/2003On 6/7/06, sassy [EMAIL PROTECTED]
wrote:Hello everyoneWell the other half has done it again. Foot was swollen,took him to
local MDdid a blood test and a doppler He has a deep vein thrombosisCommen with people with leukemia. So I'm asking
Welcome, Rosie. to the club no one wants to join!A lot of good people here and a lot of good information, both scientific and anecdotal, to help you through. Do be shy about asking
anything, we've been through it all, when you look at us collectively. Richard Troxeldx 2/2003On 6/6/06, Rosie
Hi Susan,I'm one who has been advocating Iron suppliments but I always ad the caveat that Iron should only be taken on the advice of a doctor who will monitor your iron levels. Too much Iron comes with a whole host of serious health problems. If you are Iron deficient then you need to take iron,
I've become a huge believer in Flaxseed oil. I began taking it for the Omega 3 and was pleasantly surprised by the improvement of my skin. My skin had bothered me for years, especially in the winter, and had gotten worse with CML and the Gleevec. Within a couple of months my skine was more supple
Hi Allyson,I had both terrible nails and bad skin problems for about a year. Be careful about catching secondary infections while your nails are like this. I got a pseudo-monas infection in my finger nails, they turned green! I also got a bad case of fungus under my toe nails and had to have two
Thank you! Yes, May 7 long, long ago!On 5/4/06, Rob [EMAIL PROTECTED] wrote:
Happy Birthday Richard.RobOn 5/4/06,
[EMAIL PROTECTED] [EMAIL PROTECTED]
wrote:
I think I understood that your birthday will be May 7th?? if
so, and regardless when...
Happy Birthday to you
Happy Birthday to you
For everyone who wants to use a free email service I strongly recommend G-mail by Google. They provide huge amounts of free storage space and your mail box is never full. Their interface is unique and innovative with some really useful features.
Richard Troxeldxd 2/03Gleevec 3/03PCRU 9/04Zavie's
Happy birthday!Mine was in 44, 62 years ago this Sunday! Here's wishing we both can look forward to many, many more!Richard Troxel-- dxd 2/03Gleevec 3/03PCRU 9/04Zavie's Zero club #727
On 5/1/06, anjana [EMAIL PROTECTED] wrote:
Dear Pat,A happy birthday to you.Glad you had such a good time.My
Good luck Jeanie! I'm sure you'll be just fine. So far their web site does indicate the CML program is still open while others are closed due to lack of funds.On 4/13/06,
[EMAIL PROTECTED] [EMAIL PROTECTED] wrote:
Hi Richard,
Just wanted you to know that psi is sending me an application.
I
Here you go!http://www.uneedpsi.org/On 4/6/06, [EMAIL PROTECTED]
[EMAIL PROTECTED] wrote:
Hi Richard and thanks,
I'll see if they can help me.
Do you have their website?
Jeanie3
In a message dated 4/5/2006 2:30:57 PM Eastern Daylight Time, [EMAIL PROTECTED] writes:
Hi JeaniE,
Yes, PSI pays
Hello Wife Kay,On Dec. 13, 2005, I had prostate surgery, removal to be exact, after being on Gleevec for nearly three years. The problem I had was because of a severly supressed platalet count for reasons other than Gleevec. I had a lot of bleeding and required seven units of whole blood. Since
Hi BJ, welcome to the club nobody wants to join!It is a terrible sticker shock! Some people are lucky enough to have health insurance which covers the Gleevec in whole or mostly. Without insurance, unless you are rolling in money, it's tough!!! My insurance used to cover all but $30 per month.
Zavie,I have two questions about your Chat Reminder...1. 9:00 AM in what time zone? and2. How/Where do we get into this chat?Richard TroxelLos Angeles, CA
On 3/24/06, Zavie miller [EMAIL PROTECTED] wrote:
http://360.yahoo.com/brorichard2005
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Hi Cathy,
I'm glad your doctor is getting good information and that you are
following his advice. My first ONC was a nice man who did not know
enough and had me on a "yo-yo" routine of changing doses and very low
doses... this ended up delaying my response to Gleevec and endangered
me to
Hi Mike and Janet,Same here, as with Janet, recurring sinus congestion. Flonase helps but sometimes gives me a nose bleed. Usually I just ride it out in about 7 - 10 days.Richard Troxel
[EMAIL PROTECTED]On 2/18/06, Janet [EMAIL PROTECTED] wrote:
Hi Mike,I have had recurring sinus congestion for
Jeanie, You have a $2500 copay? That's almost the entire cost of a 30 day supply! RichardOn 2/6/06, [EMAIL PROTECTED]
[EMAIL PROTECTED] wrote:
Hi all,
I get my Gleevec through mail order.
I have never had any problem as long as they get their $2500 co pay.
I do have to sign for however.
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