..so prayers are welcome, as always. Hopefully still in remission
> being of sprycel for the last month...Will do BCR at the end of December.
> keeping fingers crossed.
>
>
>
> Love, Beth.
>
> -Original Message-
> From: 'Icandoallttc' via CMLHope
> To
fully they
>> will finally get the idea after many months of them sending me their
>> advertisement faxes. Maybe everyone should follow my example.
>>
>> 18's,
>>
>> Marty
>>
>>> On Fri, Dec 5, 2014 at 8:12 PM, Marty Gartenberg wrote:
>&
>>> >>> May love walk by your side.
>>> >>>
>>> >>> May friendship sing in your smile
>>> >>>
>>> >>> May opportunity remember to knock on
>>> >>> your door and surprise you once in a while.
>>
You never forget how dearly I wish a Happy...'Everything' for you.
>> >>>
>> >>> Please Chris if you could read this to her.
>> >>>
>> >>> 18's,
>> >>>
>> >>> Marty
>> >>>
>
Hanukkah (_/_ (http://en.wikipedia.org/wiki/Help:IPA_for_English) _ˈ_
(http://en.wikipedia.org/wiki/Help:IPA_for_English#Key) _h_
(http://en.wikipedia.org/wiki/Help:IPA_for_English#Key) _ɑː_
(http://en.wikipedia.org/wiki/Help:IPA_for_English#Key) _n_
(http://en.wikipedia.org/wiki/Help:IPA_for_
In a message dated 11/27/2014 11:10:05 A.M. Eastern Standard Time,
cmlhope@googlegroups.com writes:
Sent from my iPhone
On Nov 26, 2014, at 10:43 AM, icandoallttc via CMLHope
<_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) > wrote:
Wow!! Glad I can get it
p the Christmas lights burning just for her everyone!
Blessings
Jeanie<3
In a message dated 11/27/2014 11:10:05 A.M. Eastern Standard Time,
cmlhope@googlegroups.com writes:
Sent from my iPhone
On Nov 26, 2014, at 10:43 AM, icandoallttc via CMLHope
<_cmlhope@googlegroups.com_ (mai
There are 2 studies that are ongoing now. Patients who have reached
molecular remission 2 or more years ago can participate. One study is being
done at Hackensack Hospital in New Jersey. I believe that the other one is
taking place in California. The patients that are participating must
Sent from my iPhone
> On Nov 26, 2014, at 10:43 AM, icandoallttc via CMLHope
> wrote:
>
> Wow!! Glad I can get it anyway.
> Happy turkey day🎅🎅🎄🎶🎶
>
> Sent from my iPhone
>
>> On Nov 25, 2014, at 3:11 PM, icandoallttc via CMLHope
>>
Pumpkin pie ready.
I'm hungry!!
Great day to all!!
Blessings
Jeanie 🎅
Sent from my iPhone
> On Nov 26, 2014, at 10:43 AM, icandoallttc via CMLHope
> wrote:
>
> Wow!! Glad I can get it anyway.
> Happy turkey day🎅🎅🎄🎶🎶
>
> Sent from my iPhone
>
&
Wow!! Glad I can get it anyway.
Happy turkey day🎅🎅🎄🎶🎶
Sent from my iPhone
> On Nov 25, 2014, at 3:11 PM, icandoallttc via CMLHope
> wrote:
>
> Yummy. I love them too!
> Cranberry sauce my favorite!!
> Whole berry
> Blessings
> Jeanie🎅
>
> Sent from m
Yummy. I love them too!
Cranberry sauce my favorite!!
Whole berry
Blessings
Jeanie🎅
Sent from my iPhone
> On Nov 25, 2014, at 12:34 AM, Richard H wrote:
>
> Sounds delicious! I have become addicted to southern Sweet Tater Pie. I had
> a friend that made it. Her farther would bring her a bu
Yum! Can't wait to eat turkey!!
Have fun every one!
Jesnie🎅
Sent from my iPhone
> On Nov 24, 2014, at 10:59 PM, Marty Gartenberg wrote:
>
> Here is a dish that my wife Shelly makes every Thanksgiving. We hope that you
> enjoy it.
>
> 18's,
>
> Marty
>
> Shelly’s Sweet Potato Casserole
>
Great to hear from you. Have fun.
Jeanie🎅
Sent from my iPhone
> On Nov 24, 2014, at 7:06 PM, mar...@enter.net wrote:
>
>
> Dear CML Friends,
>
> I haven't posted in an age. But I do check every day to see what folks are
> saying and doing. Cheryl-Anne Simoneau will visit her sister in Whiteh
Glad you are doing so good. Every day is a miracle for every one who suffers
with cancer. Come let us give thanks for this day.
Eat lots of turkey!!
Blessings
Jeanie🐠❤️❤️
Sent from my iPhone
> On Nov 24, 2014, at 11:25 AM, "'Susan Zimmerman' via CMLHope"
> wrote:
>
> Hi Maria,
>
> Sure do h
treaching..stay close...emails...this is such a
> lovely group..and I wish all of you..each and everyone..a pain free, peaceful
> Thanksgiving..I am thankful for all of you.
>
> Fondly,Beth
>
>
> -Original Message-
> From: icandoallttc via CMLHope
> To: cmlh
s because I have never been able to tolerate more than 40% of any drug or
> lessStay close. take care, Beth
>
> -Original Message-
> From: icandoallttc via CMLHope
> To: cmlhope
> Sent: Tue, Nov 18, 2014 4:05 pm
> Subject: Re: [CMLHope] Beth sprycel ?
>
>
Hi Maria
So sorry you are feeling bad. I know just how you feel. We all go through these
trying times. Hang in there and fight.
I have been on sprycel for 5 years now. I fight these awful headaches all the
time.
I hope your counts come back with good results.
Blessings
Jeanie 🐠
Sent from my
Key west is a good place to be in Florida.
It's always warm there!!
If you haven't been go try it out. I love it!!
🐠
Sent from my iPhone
> On Nov 18, 2014, at 9:15 PM, Myvety2k via CMLHope
> wrote:
>
> Susan, by Sunday it's going to be in the 80's all week.
>
> greenie
>
> In a message da
I love that!!
Thanks so much Marty!
🐾🐾
Sent from my iPhone
> On Nov 18, 2014, at 5:50 PM, Marty Gartenberg wrote:
>
> Hi Susan,
>
> Here are those footprints you wanted.
>
> 18's,
>
> Marty
> Footprints in the Sand
>
>
>
>
>
>> On Tue, Nov 18, 2014 at 9:24 AM, 'Susan Zimmerman' via CMLH
Hi Susan.
I love New Orleans. We used to go twice a year.
We stayed at harrah's.
You can walk to the river walk from there.
Have a great time and eat some fried or fresh oysters for me.
Blessings
Jeanie🐟
Sent from my iPhone
> On Nov 18, 2014, at 3:09 PM, "'Susan Zimmerman' via CMLHope"
>
so am
> very blessed. Just navigating side effects, and the muscle issues...doing the
> best I can...
>
> take good care...
>
> Love, Beth
>
> -Original Message-
> From: icandoallttc via CMLHope
> To: cmlhope
> Sent: Tue, Nov 18, 2014 3:53 pm
> Subject:
good care...
>
> Love, Beth
>
> -Original Message-
> From: icandoallttc via CMLHope
> To: cmlhope
> Sent: Tue, Nov 18, 2014 3:53 pm
> Subject: [CMLHope] Beth sprycel ?
>
> Hi Beth
> Sorry you haven't been well. Prayers to you and family.
> When yo
Unusually cold in FL.
Get out your sweaters.
Blessings
Jeanie🐠
Sent from my iPhone
> On Nov 18, 2014, at 3:09 PM, "'Susan Zimmerman' via CMLHope"
> wrote:
>
> Greenie, we're traveling to Florida to Treasure Island, arriving Saturday the
> 22nd. Only be there 4 days, then going to New Orle
Hi Beth
Sorry you haven't been well. Prayers to you and family.
When you stop your sprycel do you just quit? If you do do you have withdrawal?
Just wondering. I thought you were never supposed to just quit a drug.
Let me know And thanks.
Blessing
Jeanie🐟
Sent from my iPhone
> On Nov 18, 201
Great day I Florida. Glad everyone is good.
Happy dance to all.
Jeanie 🐟
Sent from my iPhone
> On Nov 18, 2014, at 9:04 AM, "'Susan Zimmerman' via CMLHope"
> wrote:
>
> Thanks Marty and everyone for your kind words. I'm also gaining back energy
> daily.
>
> Hey there, as a wrestler that M
Yahoo Greenie
So happy for you!!
Blessing
Jeanie
Sent from my iPhone
> On Nov 11, 2014, at 4:05 PM, Myvety2k via CMLHope
> wrote:
>
> I received my results back from my 6 month blood work today and I'm Negative
> on BCR-ABL.
>
> greenie
>
> In a message dated 11/11/2014 2:14:49 P.M. Easte
Hi Susan and welcome to the group. We all have different stories in our
journey fighting leukemia.
I was dx in 2004 and have been on gleevec, tasigna, and now am on sprycel.
Like Skip cml has thrown the works at me but I keep fighting.
I find that people don't realize that chemo comes in a pil
Happy Veterans Day to all
Jeanie🌲🇺🇸🇺🇸
Sent from my iPhone
> On Nov 11, 2014, at 1:56 PM, Myvety2k via CMLHope
> wrote:
>
> Thank you Elizabeth, I served 6 years in the Navy.
>
> greenie
>
> In a message dated 11/11/2014 1:43:34 P.M. Eastern Standard Time,
> ksnwo...@prodigy.net writes:
>
Hi Elizabeth
I had to have transfusions on
Tasigna. My onc didn't like my
Number to go under 8. I
Believe he could have just taken
Me off the drug to correct the
Problem but who knows
I fought having the transfusions
But finally gave in.
That was about 5 years ago
Good luck and blessing
Jeani
Thanks Skip,
Hope you are good. I am still having problems with my jaw and ear.
I might need to it checked out if it doesn't clear up.
Happy Saturday everyone.
Jeanie
Sent from my iPhone
> On Nov 8, 2014, at 1:08 PM, "'Skip Duffie' via CMLHope"
> wrote:
>
> due to so much trouble with face
That was old news. I hope everyone is good today. Spending Halloween with
family. Be safe and don't eat too much candy hehe
Jeanie
Sent from my iPhone
> On Jul 16, 2014, at 10:35 PM, Maria Cashion wrote:
>
> Thanks, Marty. It really helps a lot to have feedback from people who know
> what
Thanks I wish I could do that but I have been on 3 tkis and was in blast
once. I started sprycel in sept 2009.
Thanks again.
Did they give any reasons for wanting to stop sprycel?
Jeanie
Sent from my iPhone
> On Aug 6, 2014, at 8:11 PM, Marty Gartenberg wrote:
>
> Hi Everyone,
>
> I ju
ecause any IV will grow germs so they simply replace it even if
> you don't use it. Same for the IV itself, they usually start a new IV usually
> every there days.
>
> 18's,
>
> Marty
>
>> On Sat, Oct 25, 2014 at 4:17 PM, icandoallttc via CMLHope
>> wro
ered those three words to this day. She said
> "It's only temporary" and even though I suffered greatly I would say those
> words over and over again. They helped me deal with the pain, but it still
> hurt and I wouldn't let my mind soak it in.
>
> 18's,
&
artenberg
>> To: cmlhope
>> Sent: Tue, Oct 21, 2014 6:51 pm
>> Subject: Re: [CMLHope] Onc Visit
>>
>> Hi Jeanie,
>>
>> Maybe you should get your onc to watch the video.
>>
>> 18's,
>>
>> Marty
>>
>>> On Tue, O
7;s,
>
> Marty
>
>> On Tue, Oct 21, 2014 at 6:06 PM, icandoallttc via CMLHope
>> wrote:
>> Thanks for that Marty. I wish my onc would go over results like that! He
>> doesn't even show them to me during our visits. He just says everything is
>> ok.
Great news Richard ,
Hope you do well on the new meds!!
Blessings,
Jeanie
Thanks for sharing
Sent from my iPhone
> On Oct 24, 2014, at 1:11 AM, Richard H wrote:
>
> I don't mind sharing my results. My reports are based on the international
> scale. My first results after starting my vacation
r 14 years now. Cheers John
>
> Sent from my iPad
>
>> On Oct 23, 2014, at 2:22 PM, icandoallttc via CMLHope
>> wrote:
>>
>> Hi John,
>> What happened to you on sprycel? I have been on it for 5 years. Headaches
>> and sinus pain has been my main probl
Hi John,
What happened to you on sprycel? I have been on it for 5 years. Headaches and
sinus pain has been my main problems on it.
Jeanie
Sent from my iPhone
> On Oct 22, 2014, at 7:13 PM, John Barrons wrote:
>
> Hi Jeanie: Thanks for your support. I have been on gleevec and sprycel and
>
Hi John,
I wish you good luck today. Just wanted to tell you I never reached pcru until
I went in sprycel. I had been on gleevec for 5
Years with no response.
I had low blood counts on tasigna and had to have transfusions.
Hang in there. You will make it through. Just keep fighting.
Jeani
Hi Richard and all,
Great news Richard! I have had 2 mutations so far. I'm on sprycel now and
doing good on it. I know it is scary to go on a new drug as I have had to do
it three times now, but just look forward to the new drug helping your fight
against leukemia. Good luck in all.
Jeanie
Thanks for that Marty. I wish my onc would go over results like that! He
doesn't even show them to me during our visits. He just says everything is ok.
I would like everyone's input on this please. It will be interesting to see how
our doctors treat our counts and etc.
I always get a copy
months...still plugging along..great
> role model..hs lots of health stuff...older age mostly...but wants to walk
> and play and snooze every day..still eats well..and loves her treats.I
> love her so.
>
> love and prayers to all my colleagues and friends here...too many names
gt; would report in ...the warm water PT is my saving grace..feel so much better
>> in there... three times a week...working part timeold pooch Gracie now
>> 15.5lost her hearing int he last few months...still plugging
>> along..great role model..hs lots of health stuff.
Good morning Marty and great one to you I hope!
I will pray for your kidney, and hope the best results for you daily.
I am still hanging in there, and know you miss PA.
That is one beautiful state.
Cooler weather in FL and it is much welcomed.
Love,
Jeanie<3
In a message dated 9/22/2014 4:27:49
Hi Beth and so glad to hear from you and that you are doing well. It is
good to hear that you are still on Sprycel and doing good. I am on 100 mgs
daily and so far, no PE.
Blessings and keep fighting!
Jeanie<3
In a message dated 9/21/2014 11:17:31 P.M. Eastern Daylight Time,
cmlhope@goo
Thank you Marty, and I believe the same things as you do; faith is looking
forward for something you can't see but you know it's there. The cure
will come and I hope we will be here to see it.
Thanks for the uplift and Happy New Year and many blessings to come/
Jeanie<3
In a message dated
Hi all, As you read this say a prayer for Marty. He is truly a great CML
warrior and a great uplifter of this group.
I pray the holy angels will keep watch over Marty at all times and send
out our prayers to you and to all our CML'ers that are fighting the battle of
life right now as they re
Good Morning to you Marty,
I sure hope your surgeries go well. I know you are a fighter and will get
through it all with your faith and great warrior skills.
I am fighting these high blood platelets and hope they are good on my visit
to Moffitt Thur. I will let you know.
As you know, they hav
_
(http://learntoballroomdanceonline.com/) " <_ballroom101@gmail.com_
(mailto:ballroom...@gmail.com) > wrote:
Interesting Jeanie, my oncologist says that while the diuretics help with
overall water retention, it does not remove the fluid in the pleura.
h...?
On Fri, Sep 19, 2014 at 9:06 A
h...?
On Fri, Sep 19, 2014 at 9:06 AM, ICANDOALLTTC via CMLHope
<_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) > wrote:
Yes they do treat it with diuretics. Here is an article on it. Depends on
your health.
http://emedicine.medscape.com/article/299959-medication
Jea
Hi all,
I have been on Sprycel for 5 years this month. I have never had PE and
it was the only drug that put me in remission. I went through Gleevec and
Tasigna for about 5 years.
I have had other issues though and sinus headaches with migraines is one of
the main ones. The jaw problem st
Hi Susan, and yes, I do have one more tki to fall back on. I see my onc
the end of this month; will let everyone know what happens.
Enjoying Fl as usual. Looking forward to fall.
Blessings,
Jeanie<3
Jaw is some better.
In a message dated 9/8/2014 6:26:31 P.M. Eastern Daylight Time,
cmlhop
Yes they do treat it with diuretics. Here is an article on it. Depends on
your health.
http://emedicine.medscape.com/article/299959-medication
Jeanie<3
In a message dated 9/19/2014 6:54:43 A.M. Eastern Daylight Time,
pksch...@gmail.com writes:
>From what I have read here and elsewhere, it
Good luck Joyce; hope he gets well soon.
Blessings,
Jeanie<3
In a message dated 9/19/2014 2:54:51 A.M. Eastern Daylight Time,
joy...@htc.net writes:
Thanks, Michelle, for your post and the link to your site. The effusion
seems to be around his heart but is not causing a lot of problems..
Thanks for that article; we all need to know what we are facing with
Sprycel.
Blessings,
Jeanie<3
In a message dated 9/18/2014 7:19:13 P.M. Eastern Daylight Time,
ballroom...@gmail.com writes:
Joyce,
I have had to go off of Sprycel several times due to pleural effusion,
which typical
Hi Jeff, do you eat with the boslif? I always had to eat a lot with
Gleevec. You don't have eat with Sprycel but I do anyway. Take it with my
breakfast.
Good luck.
Blessings,
Jeanie
In a message dated 9/17/2014 7:44:20 A.M. Eastern Daylight Time,
jj.john...@sympatico.ca writes:
Hi
:42 AM, ICANDOALLTTC via CMLHope
wrote:
Hi Skip, Yes I am interested in one of your lab reports. Just to compare
with mine.
Thanks a lot and keep fighting. I find myself worrying too much about my
platelets! Millie always told me to quit worrying so much. She was right!
Tha
I tire when blood is down below 100. PlATELETS do not seem to bother
me..
On Monday, September 15, 2014 11:42 AM, ICANDOALLTTC via CMLHope
wrote:
Hi Skip, Yes I am interested in one of your lab reports. Just to compare
with mine.
Thanks a lot and keep fighting. I f
Hi Lenda and thanks so much for that info on the jaw. I hadn't found
anyone else that had it and was so sure it was from the Sprycel. I had the
sinus headaches ever since I have been on the drug. I just woke up one
morning and my jaw was killing me. Yes painful to chew and worse in the
thankful for everyday and I guess
it is what it is.
Carolyn K
ICANDOALLTTC via CMLHope wrote:
> Hi all and glad to have everyone's input on this PE. I told my onc a
few
> months back that I was afraid of PE but he said that was the last thing
I
> needed to worry ab
7 years this Dec
On Thursday, September 4, 2014 9:31:55 AM, ICANDOALLTTC via CMLHope
wrote:
Thanks Marty, being positive is one of our healing factors, but sometimes
when we feel so bad and know we have to take our chemo every day, our mind
gets bogged down with our illne
Hi all and glad to have everyone's input on this PE. I told my onc a few
months back that I was afraid of PE but he said that was the last thing I
needed to worry about. Can't figure him out. I am on 100 mgs daily
Sprycel. Seem to be doing good except I have developed painful jaw and rig
From: icandoall...@aol.com
To: educatorsu...@aol.com
Sent: 9/8/2014 11:25:12 A.M. Eastern Daylight Time
Subj: Re: proton pump inhibitors found this on Gleevec
Hi Susan and you are so welcome. That Gleevec for my five years was a
trip no one want t
"French"
I hope that you and your son enjoy that fish you will be having for lunch.
With all of those trimmings it does sound like a feast.
18's,
Marty
On Sun, Aug 31, 2014 at 11:08 AM, ICANDOALLTTC via CMLHope
<_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegrou
us every day.
Skip D
37 years this Dec
On Thursday, September 4, 2014 9:31:55 AM, ICANDOALLTTC via CMLHope
<_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) > wrote:
Thanks Marty, being positive is one of our healing factors, but sometimes
when w
In a message dated 9/7/2014 8:35:11 A.M. Eastern Daylight Time,
icandoall...@aol.com writes:
Effect of a proton pump inhibitor on the pharmacokinetics of imatinib.
_Egorin MJ_
(http://www.ncbi.nlm.nih.gov/pubmed?term=Egorin%20MJ[Author]&cauthor=true&cauthor_uid=19740393)
1, _Shah DD_
o
t his so I have no room t gripe skipd
Sent from Yahoo Mail on And
From: ICANDOALLTTC via CMLHope ;
To: ;
Subject: [CMLHope] skip blood trasfusion jaw pain? pinatinib warning
Sent: Fri, Sep 5, 2014 12:15:56 PM
Hi Skip and great to hear from
inful to chew.
Thanks a lot.
Blessings,
Jeanie<3
On Fri, Sep 5, 2014 at 8:49 AM, ICANDOALLTTC via CMLHope
<_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) > wrote:
Hi Marty and Good Morning,
Yes I am on 500 msg of amoxacylin for 7 days; still in a lot of pain and
pai
ons are very common and easily
treated with an antibiotic, usually Amoxacyln which I'm sure you already
know about because of your bouts with strep throat.
18's,
Marty
On Mon, Sep 1, 2014 at 10:38 AM, ICANDOALLTTC via CMLHope
<_cmlhope@googlegroups.com_
you
have to help it, try to get rid of stress, eat healthy, any problems talk
it over with friends and family, Marty has sound advice, And remember this
old fellow keep praying for all of us every day.
Skip D
37 years this Dec
On Thursday, September 4, 2014 9:31:55 AM, ICANDOA
Thanks Marty, being positive is one of our healing factors, but sometimes
when we feel so bad and know we have to take our chemo every day, our mind
gets bogged down with our illness. Our ability to focus sometimes gets a
little blurry when we are in pain, but somehow we will get lifted up a
should look to avoid the sun.
I hope that you will feel better real soon.
18's,
Marty
On Sun, Aug 31, 2014 at 11:06 AM, ICANDOALLTTC via CMLHope
<_cmlhope@googlegroups.com_ (mailto:_cml...@googlegroups.cml_ (javascript:)
) > wrote:
Hello to all my cml warriors,
I
e that you will feel better real soon.
18's,
Marty
On Sun, Aug 31, 2014 at 11:06 AM, ICANDOALLTTC via CMLHope
<_cmlhope@googlegroups.com_ (mailto:_cmlhope@googlegroups.com_
(mailto:cmlhope@googlegroups.com) ) > wrote:
Hello to all my cml warriors,
I have been sick; my jaw is sor
lled CRS. (Can't Remember S**T) Please pardon the
"French"
I hope that you and your son enjoy that fish you will be having for lunch.
With all of those trimmings it does sound like a feast.
18's,
Marty
On Sun, Aug 31, 2014 at 11:08 AM, ICANDOALLTTC via CMLHope
look to avoid the sun.
I hope that you will feel better real soon.
18's,
Marty
On Sun, Aug 31, 2014 at 11:06 AM, ICANDOALLTTC via CMLHope
<_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) > wrote:
Hello to all my cml warriors,
I have been sick; my jaw is sore and
Forgot, my son caught a big red fish and he is cooking it for my lunch
today! Can't wait. He makes grits and tomato gravy with a delicious tartar
sauce. He is also making hush puppies, so it will be a feast.
Blessings,
Jeanie<3
In a message dated 8/31/2014 11:06:11 A.M. Eastern Daylight
Hello to all my cml warriors,
I have been sick; my jaw is sore and it feels like my ear is infected. I
have been home treating it with hot compresses and etc. Has anyone else
had this happen? It is very painful.
Yes, I always get really hot if I don't keep my air going. I always spent
tim
t nothing terribly dangerous.
Since I had total body radiation I must be very careful of the sun, so
I just try to avoid it as much as I can.
I just wanted to stop by and say hello to you.
18's,
Marty
On Thu, Aug 14, 2014 at 5:40 PM, ICANDOALLTTC via CMLHope
wrote:
> Hi Marty and yes
n the past because it really doesn't help anyone
and I'm sure that she wouldn't want us to be sad.
Jeanie, better things are coming for you and me.
18's,
Marty
On Wed, Aug 13, 2014 at 10:06 AM, ICANDOALLTTC via CMLHope
wrote:
> Hi Marty and thanks, it's funny that I
yours
is over 13. Hemoblobin is what brings oxygen to all of the body and
when it is low like mine is you jusy don't have any energy.
Al and all things considered I think that your doing fine.
18's,
Marty
On Tue, Aug 12, 2014 at 7:44 AM, ICANDOALLTTC via CMLHope
wrote:
> Hi Marty a
man
-Original Message-
From: margood18 via CMLHope
To: cmlhope
Sent: Mon, Aug 11, 2014 11:14 am
Subject: Re: [CMLHope] jeanie blood draw tomorrow
Good luck, Jeanie. Can't wait for you to post hopefully excellent results!
Marcie
-Original Message-
From: ICANDOALLTTC via
7;s,
Marty
On Sun, Aug 10, 2014 at 6:13 PM, ICANDOALLTTC via CMLHope
wrote:
> Hi Susan and all my CML warriors,
> I am excited about going to get my blood test tomorrow!
> I haven't been for 6 months and that is the longest I have ever been
going
> to see my onc. My PCD di
So Sorry you are going through this, but check and see if you can get it
free. If your insurance won't pay I think there is a free program.
I don't have any gleevec, been off it for years now.
Good luck,
Jeanie<3
In a message dated 8/8/2014 5:27:44 P.M. Eastern Daylight Time,
cmlhope@googl
Hi Richard, it's funny that you say that. My mom use to say dog days are
here. She would blame sores and etc on it.
Is Missouri as beautiful as I think it is?
That is one start I haven't visited yet.
Blessings,
Jeanie<3
In a message dated 8/7/2014 11:32:46 P.M. Eastern Daylight Time,
rich
Yes I was on it for a few months of agony.
Some people are doing great on it though.
Good luck,
Jeanie<3
In a message dated 8/7/2014 12:35:22 P.M. Eastern Daylight Time,
lilak...@gmail.com writes:
I was switched to Tasinga after Gleevec messed with my kidneys. Has anyone
had experience wit
ge dated 8/7/2014 11:51:13 A.M. Eastern Daylight Time,
cmlhope@googlegroups.com writes:
Jeanie,
It is so good to know you also got fast results!!! We have so much to be
thankful for. Have a great day!
Susan F. Zimmerman
-Original Message-
From: ICANDOALLTTC via CMLHope
Hi Marty, Thanks for that info; that lets me out; I have been on Gleevec,
Tasigna and now am on Sprycel. I have also had blast.
I have tried on my own to lower the dose but my counts always start rising.
I am going to talk to my onc on my next visit.
Thanks again and hope you are great!
Jeanie<
Sorry meant Marci hehe senior moments.
In a message dated 8/7/2014 11:36:23 A.M. Eastern Daylight Time,
cmlhope@googlegroups.com writes:
Hi Marty and all,
I'm so sorry about your accident; seems the roads are really crowded out
there.
My internet has been down; so just no able to get on.
Hi Susan and so glad you are doing so well on the new med. I got my
remission after only a few months on Sprycel. I am so happy that these new
meds
were developed as they have saved my life three time as of this date.
Good luck,
Jeanie<3
In a message dated 8/7/2014 10:01:30 A.M. Eastern
Hi Skip and thanks for the update; I know how that platelet count can get
messed up and out of hand.
I had my platelets go up three times and had to have blood cleansing. It
is similar to getting platelets but they are taking them out instead.
I hope everything will be ok.
Blessings,
Jeanie<3
Hi Marty and all,
I'm so sorry about your accident; seems the roads are really crowded out
there.
My internet has been down; so just no able to get on. It seems lightening
hit my phone pole.
We have been having a lot of thunder storms but I love them; my mom always
cautioned us about getting
Hi Richard and all, I know you are on pins and needles waiting for your
blood report; I always am and then so relieved when it comes back good. I
pray you have good results. Glad you are settled in your new place and hope
you enjoy it.
I am still alive and kicking hehe. I have some side ef
18s to all
> JimRodeghier
>
>
>
>
> On Monday, July 14, 2014 7:03 AM, ICANDOALLTTC via CMLHope
> wrote:
>
>
> So truly spoken Marty; when we share our loads the weight gets lighter
each
> time we share.
> This group and other similar groups have helped me to
Hi Greenie, internet has been down for a few days; just got it back up.
I hope you are better now. I am good; 76 this year and still up and
running daily hehe. Not running just walking. I like to walk early in the
morning while it's cool.
I have white coat blood pressure and always have. M
I had my first BMA in my oncs office without any meds; just the nurse
holding my hand. It was awful to say the least. I had just met this onc and
I
think he jumped the gun a little but he seemed to think right away that I
had leukemia, even before any test were done, except the cbc.
I had
Hi Maria,
I take my dose once daily in the morning with breakfast. I am considering
asking my onc if I can go off of it soon to see how my body will react.
My platelets and wbc go up when I try to reduce it, but I am going to try
once more.
I had the same symptoms as you when I was first dx i
Hi Maria, I have been on Gleevec, Tasigna and now Sprycel. The Sprycel
has been the best for me with little side effects and in remission.
Someone here is on Bosulif I believe.
Blessings,
Jeanie<3
In a message dated 7/20/2014 3:25:57 A.M. Eastern Daylight Time,
mariacash...@gmail.com writ
one
>> marrow
>> results and hit undetected, same as the prior one in March. A first for
me
>> -
>> two undetecteds in a row. If I have to suffer bone pain to have the
cancer
>> cells gone, I'll stop complaining and take it!
>>
>> Hope all is w
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