Re: [CMLHope] Digest for cmlhope@googlegroups.com - 2 Messages in 2 Topics

.  In my case I have had CML for over 35 years, whenever I >> see a new case on here, I feel for them but let them know it is treatable. >> Be safe all >> SkipD >> >> >> ____________ >> From: Martin Gartenberg >> To: cmlhope@googlegroups.c

Re: [CMLHope] Digest for cmlhope@googlegroups.com - 2 Messages in 2 Topics

*Sent:* Saturday, February 25, 2012 4:26:33 PM > > *Subject:* Re: [CMLHope] Digest for cmlhope@googlegroups.com - 2 Messages > in 2 Topics > > Hi Victoria, > > Sometimes some among us just decides to take a break. Sometimes others > become depressed at what they are reading about

Re: [CMLHope] Digest for cmlhope@googlegroups.com - 2 Messages in 2 Topics

oglegroups.com Sent: Saturday, February 25, 2012 4:26:33 PM Subject: Re: [CMLHope] Digest for cmlhope@googlegroups.com - 2 Messages in 2 Topics Hi Victoria,   Sometimes some among us just decides to take a break. Sometimes others become depressed at what they are reading about others. There could b

Re: [CMLHope] Digest for cmlhope@googlegroups.com - 2 Messages in 2 Topics

Hi Victoria, Sometimes some among us just decides to take a break. Sometimes others become depressed at what they are reading about others. There could be a host of reasons that people are not posting as they once did. If your talking about the "pioneers" then that is probably what I am. I had CM

RE: [CMLHope] Digest for cmlhope@googlegroups.com - 2 Messages in 2 Topics

7:58 AM To: cmlhope@googlegroups.com Subject: Re: [CMLHope] Digest for cmlhope@googlegroups.com - 2 Messages in 2 Topics It IS strange that no one, or very few, CMLers are posting. Have we become fatigued with focusing on our chronic condition and its side-effects? How many of us have decided

Re: [CMLHope] Digest for cmlhope@googlegroups.com - 2 Messages in 2 Topics

Actually why many stopped posting was because the posters names are showing up on the internet and many do not want their employer, clients etc to know they have CML. Just Google cmlhope and you get the link to ever post on this thread On Feb 25, 2012 9:58 AM, "Victoria Reiter" wrote: > It IS st

Re: [CMLHope] Digest for cmlhope@googlegroups.com - 2 Messages in 2 Topics

It IS strange that no one, or very few, CMLers are posting. Have we become fatigued with focusing on our chronic condition and its side-effects? How many of us have decided just to get on with our lives and to live as fully as we can, trusting that Gleevec or the other inhibitors will keep us goi

Re: [CMLHope] Digest for cmlhope@googlegroups.com - 2 Messages in 2 Topics

al Message- From: Cakrek To: cmlhope Sent: Fri, Sep 30, 2011 7:45 am Subject: Re: [CMLHope] Digest for cmlhope@googlegroups.com - 2 Messages in 2 Topics I was taken off Gleevec in March due to acute kidney failure. Started Sprycel one week later. I am doing much better on Sprycel than Glee

Re: [CMLHope] Digest for cmlhope@googlegroups.com - 2 Messages in 2 Topics

Hi group, Can't compare Sprycel with Gleevec, because I have only taken Sprycel, but I have found that taking it at night helps. Here is a bunch of info on my experiences with leukemia, the drug, doctors, etc. http://www.leukemiasurvivor.co/2011/07/sprycel-dasatinib-at-night-seems-to.html Hope yo

Re: [CMLHope] Digest for cmlhope@googlegroups.com - 2 Messages in 2 Topics

U of M Dr Talpaz one of the discovering doctors for all cml drugs. Your doctor probably confers with Dr Talpaz. On Sep 30, 2011 7:45 AM, wrote: > I was taken off Gleevec in March due to acute kidney failure. Started > Sprycel one week later. I am doing much better on Sprycel than Gleevec. i had >

Re: [CMLHope] Digest for cmlhope@googlegroups.com - 2 Messages in 2 Topics

I was taken off Gleevec in March due to acute kidney failure. Started Sprycel one week later. I am doing much better on Sprycel than Gleevec. i had very serious side effects for 10 years, The cramps are gone, I have stopped throwing up, my hemoglobin has climbed from 9 to 11, my white count

Re: [CMLHope] Digest for cmlhope@googlegroups.com - 2 Messages in 2 Topics

] Digest for cmlhope@googlegroups.com - 2 Messages in 2 Topics Today's Topic Summary Group: http://groups.google.com/group/cmlhope/topics a.. Merry Christmas [1 Update] b.. HAPPY WINTER SOLSTICE - http://www.youtube.com/watch?v=jwStDK2_qpw&feature=related [1 Update]

Re: [CMLHope] Digest for cmlhope@googlegroups.com - 2 Messages in 2 Topics

Wishing everyone a happy holiday season, a Happy New Year and good health and continuation to all. Also, an appreciation of the Winter Solstice Total Lunar Eclipse...here in NYC the moon was red for quite a while before the eclipse...fascinating to watch. Victoria On Tue, Dec 21, 2010 at 5:15 AM

Re: [CMLHope] Digest for cmlhope@googlegroups.com - 2 Messages in 2 Topics

Novartis has agreed to allow people on the STS-571 Trial have an ABL-PCR test only three times a year rather than the former four. On Sat, Nov 6, 2010 at 6:22 AM, > wrote: > Today's Topic Summary > > Group: http://groups.google.com/group/cmlhope/topics > >- Still on Gleevec > Vacation