; eat super healthy, lose some weight, say my prayers, and try and find ways
> to help myself feel better.staying positivejust staying positive
> and hopefully will see Dr. Druker in the near future.
>
>
> Big hug and love to all of you reading out there..whether you post or
>
ig hug and love to all of you reading out there..whether you post or notI
hope you feel the community's love and
support.
18's Beth
.
-Original Message-
From: 'Icandoallttc' via CMLHope
To: cmlhope
Sent: Mon, Feb 15, 2016 3:14 pm
Subject: Re: [CM
h you would not believe, though it were told you."
> Hab. 1:5
>
>
> -Original Message-
> From: Marty Gartenberg
> To: cmlhope
> Sent: Fri, Feb 12, 2016 9:29 pm
> Subject: Re: [CMLHope] Info update
>
> Susan, Susan what am I to do with you? you are s
Hi John and of course each and every one of you.
John, I went to the hospital yesterday morning for my usual blood work and
also saw my infectious disease doctor.
Since my CMV virus has been dropping off he decided to drop my anti virus
medicine to half the amount and then hopefully these terrib
e told you." Hab.
1:5
-Original Message-
From: Marty Gartenberg
To: cmlhope
Sent: Fri, Feb 12, 2016 9:29 pm
Subject: Re: [CMLHope] Info update
Susan, Susan what am I to do with you? you are so sweet and for this. I have no
doubt that everything will turn out well for you and your
Hi Jeanie: my ponatinib was increased in the hospital to get the wbc count
down. My oncologist did not think I had gone into Blast phase and he was right.
He did not do a pcr test, but the counts came back down to my normal fairly
quickly. Thanks for asking. JohN B
Sent from my iPad
> On Feb 1
gt;
> -Original Message-
> From: Marty Gartenberg
> To: cmlhope
> Sent: Fri, Feb 12, 2016 8:29 pm
> Subject: Re: [CMLHope] Info update
>
> Susan, Susan what am I to do with you? you are so sweet and for this. I
> have no doubt that everything will turn out well for yo
an important role.
Thanks for being inspirations to us...
happy V day to all...stay warm..where ever you are...
warm hug18's Beth
-Original Message-
From: Marty Gartenberg
To: cmlhope
Sent: Fri, Feb 12, 2016 8:29 pm
Subject: Re: [CMLHope] Info update
Susan, Susan what
the
> occasion! (Bubble bath, massage, favorite meal, etc. just for you). The
> rest of ya try to take good care of your significant other! (Of course
> don't fall for the media's need to spend lots of money...lol)
>
> Heartfelt love and 18's,
>
> Susan F. Zi
I hope every thing will be good John. Did they treat your CML while you were
in the hospital? Did they increase your ponatinib to get the counts down?
Do they do PCR test on your blood?
I got a bill from Moffitt and it was over $2000. I found out it is the PCR test
that's so expensive. They ne
Sent: Fri, Feb 12, 2016 4:04 pm
Subject: Re: [CMLHope] Info update
Ok, let's see what happens at your next blood test.
I just had one this morning and sorry to say my WBC was only 1.87 so that puts
me having a problem with immunity but I know that it is coming from the CMV
virus that
Ok, let's see what happens at your next blood test.
I just had one this morning and sorry to say my WBC was only 1.87 so that
puts me having a problem with immunity but I know that it is coming from
the CMV virus that I am having so I have to be very careful until the
reduced medication starts to w
Hi My wbc last Tuesday were 4.2, platelets 43 and hemo 103. I will next have a
cbc a week this Tuesday. John
Sent from my iPad
> On Feb 12, 2016, at 6:59 AM, Marty Gartenberg wrote:
>
> Hi John,
>
> What are your WBC now? I know a man who lives in Canada a very long time ago
> actually more
Hi John,
What are your WBC now? I know a man who lives in Canada a very long time
ago actually more then 35 years ago and he never took any TKI's but he did
take something and it did "burn out his Leukemia" but unfortunately he has
to have blood transfusions I think every two weeks. He is the long
wife is happy to
have you home again...
18's and my best,
Beth
-Original Message-
From: 'Icandoallttc' via CMLHope
To: cmlhope
Sent: Thu, Feb 11, 2016 2:23 pm
Subject: Re: [CMLHope] Info update
Hi John and I felt like something was wrong as we hadn't heard fro
Hi Marty.
Just want to explain why WBC and platelets can rise quickly with cml.
this has happened to me 3 times and it is because the tki you are taking quit
working and you lose your remission. It is caused by mutations. I am on my
4th tki now and running out of options if this one quits w
Hi John and I felt like something was wrong as we hadn't heard from you. I'm
glad you are back home and cml is good.
Have you had a pneumonia shot. I got mine many years ago and a booster when I
was in the hospital a few years ago.
I am still on 1 15 meg pill daily.
You are the first person I
I am taking ponatinib like Jeanie in Tampa. I need to take only one pill a week
to keep the counts low. the counts do fluctuate from time to time. There does
not seem to an answer for the white blood cells to have increased so suddenly.
My oncologist did not think it was a change to blast phase
Hi John,
First let me say hello to your wife, and believe me I personally know what
she has been going through.
Now what I can't understand why your white blood count went over 100,000.
And what pill have you been taking? Usually you need to be taking more then
1 pill and that should be every day
Hi Jeanie and to all: Well, where do I start. Before last Christmas, I was not
feeling very well. My oncologist said if I felt worse go to emergency, which I
did on Dec 26. I had pneumonia and as I result my heart was having trouble. In
addition, my white blood count went over 100,000. I was in
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