From: Joan lilak...@gmail.com
To: CMLHope CMLHope@googlegroups.com
Sent: Thursday, July 30, 2009 10:27:17 AM
Subject: [CMLHope] Re: LOW ENERGY
I've been on Gleevec about 6 yrs. It really messed me up at first when
I was spreading it out over the day. For quite a while, I took
Hi Sandy, What have you done for the muscle spasms? The only thing I've found
that helps when I get them is Tonic Water with Quinine in it! Jim Rodeghier
--- On Sat, 7/25/09, Sandra Wells nannyg...@bellsouth.net wrote:
From: Sandra Wells nannyg...@bellsouth.net
Subject: [CMLHope] LOW ENERGY
Thank you, J.D., for making me laugh today. This is the best
medicine
for us all..
Suzieq
--~--~-~--~~~---~--~~
[CMLHope]
A support group of http://cmlhope.com
-
You received this message because you are
Hi Sandy, Good to hear from you. Have you had a chest xray? It sounds
like you have some water build up. AS for being tired, join the tired club.
Work on your diet and try to walk some each day. The B vitamins help with
energy,
so include lots of foods in this group. Good protein is
.
Sandy
From: icandoall...@aol.com icandoall...@aol.com
To: CMLHope@googlegroups.com
Sent: Wednesday, July 29, 2009 5:33:54 PM
Subject: [CMLHope] Re: LOW ENERGY
Hi Sandy, Good to hear from you. Have you had a chest xray? It sounds like
you have some water
] Re: LOW ENERGY
Sandy
The gleevec side effects were cyclic with me and never did leave me
completely. I had most of them and finally, after 5 years on gleevec,
I switched to Tasigna., Guess what? The side effects came back, most
of them, but just not so intensly. I am of a belief that our
Sandy
The gleevec side effects were cyclic with me and never did leave me
completely. I had most of them and finally, after 5 years on gleevec,
I switched to Tasigna., Guess what? The side effects came back, most
of them, but just not so intensly. I am of a belief that our bodies
process the
Sandra, Been there done that. My side effects were so BAD Dr Susan
O'Brien @ MDAnderson took me off the gleevec. I'm on the trial drug
SKI-606. I went into remission in 9 days and it has much gentler on
the system. That wasn't the reason I was writing to you, it was
because you said you were
Sandy,
I've been fighting fatigue as well. I seem to have chronic low level
anemia that is probably related to the Gleevec. I do my best to eat
plenty of iron rich food and drink a lot of water. That seems to help.
I also seem to have better days when I laugh at something: funny
movie, email or
Sandra,
Good afternoon from Brazil.
My son is now 2 years on gleevec and still have 0.24% PCR. His side effects
have been treated with exercises, natural diet and 2 supplements ( 1
capsule of garlic 6 hs before gleevec and 2 capsules of gleevec a day - do
not take late afternoon).
His diet IS
Retification: its 2 capsules of green tea
On Sun, Jul 26, 2009 at 4:48 PM, Ricardo Gadelha
ricardodgade...@gmail.comwrote:
Sandra,
Good afternoon from Brazil.
My son is now 2 years on gleevec and still have 0.24% PCR. His side effects
have been treated with exercises, natural diet and 2
Thank you, Joan for replying. How long have you been on Gleevec?
Sandy
From: Joan lilak...@gmail.com
To: CMLHope CMLHope@googlegroups.com
Sent: Sunday, July 26, 2009 10:29:36 AM
Subject: [CMLHope] Re: LOW ENERGY
Sandy,
I've been fighting fatigue as well. I
Hi SandyI never did get over the side effects that I had on Gleevec. Most
Onc. don't believe the possible side effectsor so I've found. I had
diarrhea really bad on the Gleevec and found that different foods triggered
that, so with staying away from the foods and being on meds for it,
Sandy:
You might mention the shortness of breath to you doctor and be checked
for fluid collecting around certain vital organs.many of us on
Gleevec have ran into a problem with fluid retention.also other
heart problems as well might be causing the shortness of breath.
Definitely
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