[CMLHope] Re: What should I do now?

2006-09-17 Thread mburwen
gbengston wrote: > Anjana, OHSU is where I really want to go. My mother on the other hand > thinks that if a bone marrow transplant is inevitable, then we should > go to Hutch. She thinks that since I have a local oncologist and a doc > at Emory(Atlanta), we would be involving too many people if

[CMLHope] Re: What should I do now?

2006-09-16 Thread gbengston
Anjana, OHSU is where I really want to go. My mother on the other hand thinks that if a bone marrow transplant is inevitable, then we should go to Hutch. She thinks that since I have a local oncologist and a doc at Emory(Atlanta), we would be involving too many people if I go to OHSU and then on t

[CMLHope] Re: What should I do now?

2006-09-16 Thread gbengston
Anjana, OHSU is where I really want to go. My mother on the other hand thinks that if a bone marrow transplant is inevitable, then we should go to Hutch. She thinks that since I have a local oncologist and a doc at Emory(Atlanta), we would be involving too many people if I go to OHSU and then on t

[CMLHope] Re: What should I do now?

2006-09-16 Thread anjana
Hi Germaine, The Hutch is a transplant center, you should certainly consult there if you are seriously considering a transplant. I would recommend OHSU or MD Anderson Cancer Center for an unbiased medical opinion. How about Oregon Health Sciences University at Portland, Oregon and Dr. Brian D

[CMLHope] Re: What should I do now?

2006-09-15 Thread Terry Dailey
Sandy,   I fired my first onco doc, but found a great group in Louisville. I have an appointment on the 22nd of this month for a doc here in Cincinnati because I am tired of the two hour one way drive to Louisville. If this doc works out I plan on switching to him. My main concern is the way they c

[CMLHope] Re: What should I do now?

2006-09-15 Thread Sandy Johnson
Terry & Germaine, I know what you mean about nurses and Doctors needing people skills.When my husband we Dx last year,His white count was 290,000.The Dr. on call at the ER just came in and said well it looks like leukemia,and I think you probably only have about 3 months to live!!! Point blank,we w

[CMLHope] Re: What should I do now?

2006-09-15 Thread Terry Dailey
Oh man,   That nurse reminds me of the one that told me about my White Cell count before I was first dx'ed with CML. I was at work and she called me with my blood work results. At first the way she was acting I thought I had an STD..hehe(Oh boy my ex would have had some explaining to do if that had

[CMLHope] Re: What should I do now?

2006-09-14 Thread gbengston
Thank you everyone for your opinions, I feel much better knowing it isn't as bad as I was told. The way the nurse told me on the phone it sounded like my results were horrible. She made it sound like they don't know what do to next. I am going to write down everyones questions and take them with m

[CMLHope] Re: What should I do now?

2006-09-13 Thread mburwen
As the others have mentioned, doesn't seem like your test results are that bad. I suspect that you don't need a BMT, but if it turned out that you do, make sure that you go to one of the few BMT centers that specializes in seniors (you said you were on Medicare). I'm treated at City of Hope whic

[CMLHope] Re: What should I do now?

2006-09-13 Thread Suzieq
Germaine: Hi, if you are at Emory in Atlanta, that's where my favorite hem/onc went and his name is Dr. Hannah Khoury. He's a great doctor and very knowledgeable about CML. He left here (St. Louis, Mo,) in Aug. of 2004 to set up a unit at Emory like we have here at Siteman Cancer Center in St.

[CMLHope] Re: What should I do now?

2006-09-13 Thread Terry Dailey
I have to totally agree with what everyone else has said. Go to a major clinic before getting that BMT. Hang in there and keep us updated.   Terry  On 9/13/06, anjana <[EMAIL PROTECTED]> wrote: Dear Germaine,As Trey has pointed out, what is the evidence of the secondchromosomal abnormality?  Is it

[CMLHope] Re: What should I do now?

2006-09-12 Thread anjana
Dear Germaine, As Trey has pointed out, what is the evidence of the second chromosomal abnormality? Is it that the 2 cells out of 20 cells that showed abnormality is not showing the Ph chromosome abnormality but another chromosomal abnormality? That would explain the difference between FISH a

[CMLHope] Re: What should I do now?

2006-09-12 Thread Trey
So far you have some good news (your FISH is negative, and cytogenics are down, so those say you are improving). You also have some questionable news (someone says they suspect another abnormality, but is it really based on your test results or just speculation?). I would wait to see what the 25

[CMLHope] Re: What should I do now?

2006-09-12 Thread [EMAIL PROTECTED]
I would recommend a Major Medical Center. I go to MD Anderson Cancer Center in Houston, I would highly recommend it. I have met people that have transferred treatment there from all over the Country and alot of foreign Countries. Good Luck, I will be praying for you. Gwen dxd 03/1994 --~--~--

[CMLHope] Re: What should I do now?

2006-09-12 Thread [EMAIL PROTECTED]
I would recommend a major Medical Center. I go to MD Anderson Cancer Center in Houston and would highly recommend it. I have met alot of people there from all over the country that have switched going there. Good Luck. Praying for you Gwen --~--~-~--~~~---~--~~

[CMLHope] Re: What should I do now?

2006-09-12 Thread Rob
It would be a good idea to go to a major CML center before even thinking of a transplant.RobOn 9/12/06, gbengston < [EMAIL PROTECTED]> wrote:Okay here is my story:   In October 2003 I was diagnosed with CML PH+.  In November I was put on Gleevec, 400 mg. In May of 2004 I changed doctors and he put