[QUAD-L] drug availability

Does anyone ever use a cream called Xenaderm? It is, or was made for skin issues, but was pulled off the market. Glenn

Re: [QUAD-L] 50 years

I was 15 1/2 at the time of my accident. I was 6'2' and weighed 190 pounds, mostly muscle. I was one of those farm boys. Later, In a message dated 7/8/2016 12:54:39 P.M. Central Daylight Time, rhvsh...@me.com writes: Hi Glen, WOW!!! Congratulations! Totally awesome story! How old

Re: [QUAD-L] 50 years

Good afternoon, I am from Lancaster County, Amish country, Pennsylvania. My level was C-5-6. The Elizabethtown cripple Children's Hospital was a state run hospital, basically just a training and warehouse. I did not receive much therapy at the hospital, therapy for spinal cord injuries in

[QUAD-L] 50 years

On Sunday, July 10, I will have reached a milestone. I have not known many people with severe spinal cord injuries reaching this milestone. On July 10 it will be 50 years post spinal cord injury. In the past, those on the world of quadriplegics were not expected to reach this milestone. I

[QUAD-L] lift

Anybody know of a junked IMS or similar van that has been junked, but the 2 section folding ramp can be salvaged? Glenn

Re: [QUAD-L] Question

Hello Larry, Burning mouth syndrome is also caused by using Ditropan. I find that if I take my Ditropan three times a day, 10 mg at a time my mouth will do the same. I have spaced out the time that I take Ditropan to every four hours but only take 5 mg tablets. Something that works for me

[QUAD-L] isn't the government interesting

Yes, I'm sure many of us have noticed a jump in medicine prices. One mad that I use was a co-pay of $11 per month, now $80 per month. Another med was four dollars per month and now $78 per month. Obama care sure is fun isn't it? Oh yeah, how many people know the land that is controlled by t

[QUAD-L] I just love that Obama care

Wow! I'm a fan of Obama care. To all those people that thought Obama care was going to fix the world and make everything affordable and better for our world: Amishit! Did anybody get any medications in 2016? I used a cream for pressure sores, Xenaderm, and a powder medication Prevalite. I

[QUAD-L] Does anyone wish

Doesn't anyone wish a:

[QUAD-L] Reacher stick

Hi All, Does anyone know of a reacher / pickup tool that the pickup end is closed and when you squeeze the grip/handle the jaws open instead of close? GA

[QUAD-L] reacher stick

Hello, Most of the reacher/grabber sticks that you can buy inquiry a person to hold the handle closed to pick something up. Does anyone know of a stick that when you push the handlethe jaws open and when you let go the grippers will close. Thanks, Glenn .

Re: [QUAD-L] Recommendations for a trackball please

Review: http://youtu.be/WWLvquarhUQ In a message dated 12/4/2015 1:43:17 P.M. Central Standard Time, davekrehb...@earthlink.net writes: I can move my arms but not my fingers, and I am using Dragon NaturallySpeaking with Windows 8. In some cases, it can be tedious or difficult or im

Re: [QUAD-L] More stuff

The cause is probably Ditropan. I take Ditropan that I get at Kmart rather than my regular pharmacy. The ones from KMart are light blue/green and the ones from my pharmacy is robin egg blue. The difference is the type of filler they use in the pill. I use: learned about them from a cli

Re: [QUAD-L] More stuff

Been there, done that. Xilmetl tablet is made to place between the teeth and gum. It has an adhesive layer to hold in place and lasts for hours. GA In a message dated 10/8/2015 8:41:29 P.M. Central Daylight Time, lwillis82...@gmail.com writes: For over four months now I have been deal

[QUAD-L] wheelchair cushion

I would like to hear from anyone about what kind of wheelchair cushion you may use, Roho users please don’t respond as I have used the roho and it does not work for me. Question two, does anybody use memory foam or T foam? If you do use either, does anybody ever cut a hole in the foam to

[QUAD-L] Memory foam

Do any quads have a cushion from memory or T Foam?

[QUAD-L] No more dry mouth

After decades of dry mouth using ditropan, a throat cancer survivor told me about a little pill. Xylimetls took care of my dry mouth. No more chewing all that chewing gum. Glenn

[QUAD-L] pressure sore seating info

Good morning, I’ve seen almost everyone on the quad site talk about pressure sores they’ re dealing with. Well, it’s my turn. I have an area that I’ve been dealing with for several months now. It is superficial, but nevertheless is there. There is no depth, but this skin keeps opening

[QUAD-L] Belly Binder

Good afternoon, I am a male, 49 years post sci. I never wore a belly binder, but have the gut. Any pro/con on starting now? Respiratory issues are not a problem. GA

[QUAD-L] Broken ankle

I had a spiral fracture 12 years ago and the first thing the DR asked, "do you want to just amputate"? It so happens the cast technician just graduated and remarked that it should not be casted in the traditional way, but use a new "Rob Jones" cast. It worked great, no pressure sores.

[QUAD-L] Oldest quad

Does anyone know what the oldest post SCI quad age is/was? GA

[QUAD-L] Latex gloves

Not everything a quad uses is covered by Medicaire/aide. I have found many things cheaper on the internet. One of them are gloves and found a place called _yourglovesource.com_ (mailto:mich...@yourglovesource.com) . Prices seem good as well as the quality. Anybody have a source for used wh

[QUAD-L] pressure mapping

Other than pressure mapping has anyone ever used wedges, holes cut in foam pad or a wood seat pan? Interested in hearing your experiences. GA

[QUAD-L] Anybody out there

Hi All, I have made 2 posts about seat mapping and they haven't appeared. Did anyone see them? Just wondered if AOL or Gmail is blocking them. mail me at gah17...@aol.com GA

[QUAD-L] Pressure mapping

Other than pressure mapping has anyone ever used wedges, holes cut in foam pad or a wood seat pan? Interested in hearing your experiences. GA

[QUAD-L] unsubscribe

[QUAD-L] WC cushion

Hello, I wonder if anyone has done any contouring on their seat pan Or wheelchair cushion by cutting a hole under an area where you have a pressure issue . Thanks, GA

Re: [QUAD-L] Hot tongue! Help! Works for me

I take Ditropan for bladder spasms. When my "Burning mouth syndrome" gets real bad, I use some Biotene mouthwash, but have found that the oil in peanut butter coats the mouth and gives a little temporary relief. GA In a message dated 4/27/2015 6:49:35 P.M. Central Daylight Time, lwil

[QUAD-L] Harrington Rods

Do they do them anymore?

[QUAD-L] Uro ostomy

I'm probaby in need of a urostomy in the near future and looking for all the pro/cons out there. Give me your story. GA

[QUAD-L] AOL problem

Has anyone had trouble with AOL? I haven't received a post in weeks. Everybody die? I hope not. Glenn

[QUAD-L] Long term

I hope this email gets through. It seems AOL members have problems getting the posts. Has any long term quads have their bladder removed due to years of a foley cathedar? What alternatives? GA

[QUAD-L] Bed

What is the problem? I'm a retired electronic technician and I see few problems that can't be worked around. Glenn Henry

[QUAD-L] turtleneck

Does anyone wear turtlenecks for warmth? I have been wearing them for years, but had someone knit one from yarn and what a difference. It is like wearing a scarf. Glenn

[QUAD-L] Merry Christmas

Another year, another gift of life. My service dog and I will now be leaving, stopping at McDonalds, going to the river park to enjoy my Christmas Eve lunch and thank God for another year, no matter how crappy it was. Will I be here next year? Bye and Merry Christmas, Glenn

[QUAD-L] High BP

Hi All, Colder weather Anybody have an issue with high bp 200+/100+? They can't find the problem and this has been months. At times it is normal for a day or two, but. What meds are you on to lower them? Glenn

Re: [QUAD-L] cable for door

I have one at the office. I'll email it to you tomorrow. Don't use a rubber coated cable, needs to be vinyl. The rubber coated from the hardware store doesn't work. Take advise from someone who went through it 5 times before I figured it out. Using a steel only cable is not a good idea as r

[QUAD-L] supplies

I know medicare/aid covers most things, but does anyone on the site need to pay for their bed bags and leg bags? I received cases of unopened bed bags and legbags and 24 20fr 5cc silicone caths, all unopened, sterile and not expired date. Anybody need any? First come/first served, otherwis

[QUAD-L] Curious about temp

Hi All, I am curious about what is your normal body temp. Mine was around 97-98, but it has now settled at 96-97. It is now summer, I start out at 97ish, but if I'm outdoors somewhat, air temp is mid 80's, don't spend a lot of time in the sun, temp goes up to around 100. Am I normal or n

[QUAD-L] 48 years

Hello everyone, July 10, 1966 was one of those hot days in Pennsylvania. I believe the record high temperature for 1966, was July 3 of 107°. That week we had many severe storms and to cool off I had plans to accompany my Sunday school teacher in the Susquehanna River. Upon asking permiss

Re: [QUAD-L] 16th

But he also gave people a lot of false hope. I know one, unfortunately he died a year ago. Glenn Henry G.A.Henry Radio 100 Mill Street Washington Boro, PA 17582 In a message dated 6/28/2014 3:15:29 P.M. Eastern Daylight Time, g...@eskimo.com writes: I agree with the "Get busy living

[QUAD-L] 16th

Think of all the things that you can accomplish in the next 16 years. Don't sit around listening to the Christopher Reeves of the world "I'm going to find a cure". Get busy with living! Go get em' Glenn Henry

[QUAD-L] I forgot to add

I have had a spinal block years ago, so I actually have 2 injury points. Do you get headaches or other symptoms with AD? I feel great, just my BP is up. 1 Hour after I eat/meds it goes down for a while. Also, did anyone ever take their temp when it is warm outside. The other morning mine

[QUAD-L] Blood pressure

Hello all, I am a C 5/6, almost 48 years post SCI and I have an issue that I just can't figure out. I am having a problem with high blood pressure. My normal blood pressure is 120ish over 80ish. Over the past three months that we have been checking most times the blood pressure would

[QUAD-L] blood pressure

Hello all, I am a C 5/6, almost 48 years post SCI and I have an issue that I just can't figure out. I am having a problem with high blood pressure. My normal blood pressure is 120ish over 80ish. Over the past three months that we have been checking most times the blood pressure would be

[QUAD-L] AD med

Hello fellow quads, I'm just going to throw this one out there and we'll ponder over any replies. I am a C-5/6 quad, mostly healthy, but throughout my 48 years of Post SCI have occasions where my blood pressure will be skyhigh in two minutes later in the basement. An example that I can

[QUAD-L] AD med

Hello fellow quads, I'm just going to throw this one out there and we'll ponder over any replies. I am a C-5/6 quad, mostly healthy, but throughout my 48 years of Post SCI have occasions where my blood pressure will be skyhigh in two minutes later in the basement. An example that I can u

[QUAD-L] Ricon S1231

Anybody have any publications to service a Ricon S1231 lift? Glenn Henry

Re: [QUAD-L] 12" of snow here in New Jersey GOT YOU BEAT

Tuesday .5 inch ice Thursday 14" snow Friday 5" Saturday 4" Enough already In a message dated 2/14/2014 3:24:05 P.M. Eastern Standard Time, bobbiehumphre...@gmail.com writes: Yesterday we got 12" of snow that was on top of 8" already threre. Saturday were going to get 3-5" MORE Bobbi

[QUAD-L] Door Lock

The best door lock I ever had, still use, is by Morning Industries. You can enter multiple codes into it and a remote. I purchased it from Smarthomes.com. They have a bunch of neat stuff for home automation, etc. Glenn Henry

Re: [QUAD-L] Pressure soars

1:Think! Have I changed anything lately that would have caused pressure, moved legrests, new shoes with higher heels, different pad, etc. 2: Bagbalm twice a day every day. 3: Stay off of it if you feel it appropiate. Glenn Henry In a message dated 2/2/2014 12:20:57 P.M. Eastern Standard T

[QUAD-L] Wound care conference

OK, here is one for the books. I just spoke on a panel to about 200 nurses concerning wound care. Of course a lot of the legal medical stuff flew over the cuckoos nest. I live in Lancaster County Pa, where it is 9 degrees right now and there is a large Amish population. One VNA said she h

[QUAD-L] Wound care

With the discussion on the site, I thought I would send this again. Quite lengthy but I feel it is important. I have a friend who is charge nurse in a wound clinic and deals with the latest technology in wound healing. I feel that it would be wise to print this information, research it

[QUAD-L] Is everyone staying in the warm

The site has been rather quiet, hope everybody still there. I wondered if anyone on the site has any experience with Wordpress? I'm putting together a small site and have run into some issues I can't seem to handle. Glenn Henry

[QUAD-L] Merry Christmas

We made it one more Christmas. Glenn Henry G.A.Henry Radio 100 Mill Street Washington Boro, PA 17582

[QUAD-L] shoulder

Larry, How are you doing with the shoulder? Yes, I went through the same and the first time I really had a problem driving was after making a left turn, then not being able to turn the wheel as my shoulder locked. I spent a lot of my life in a manual wheelchair (C5-6) and ruined my shou

[QUAD-L] Posts?

Anybody posting or are you too busy? Haven't had anythingin days. GA

[QUAD-L] I like Mulberries

Wheels, Just thought I would let you know that your story will lead off my speaking at our Tuesday PM Men's Bible Study. As this story started on the site, I thought how are those parents, when things settle down and there sitting in the quietness somewhere and it hits them what they all

[QUAD-L] This world suck!

Hello all, Yes, the world sucks, not just for the handicapped people, but for many able-bodied people. The family involved in making that decision, to allow the quad to be taken off the ventilator will come to regret those moments. Many on this list have been put under anesthesia, how we

[QUAD-L] overhead lift

Anybody know of an older "Sure Hands" or Handi Move" lifts for sale? I need the travel wheel that propels the lift along the rail. Glenn Henry G.A.Henry Radio 100 Mill Street Washington Boro, PA 17582

[QUAD-L] Wordpress

It is a cold and windy day, a good day to be inside. I recently read an e-mail on the quad site about the people working in web site design. I would like to develop a simple Wordpress site but I am having problems understanding some of the plug-ins and exactly how Wordpress works. Is ther

[QUAD-L] Like him or hate him, he is a role model

Friday night @ 10:00 p.m. on Sean Hannity Show on Fox will be a quad that didn't let his injury stop him. Glenn Henry G.A.Henry Radio 100 Mill Street Washington Boro, PA 17582

[QUAD-L] I Hate cold weather

It is cold in Pennsylvania! Glenn Henry G.A.Henry Radio 100 Mill Street Washington Boro, PA 17582

[QUAD-L] Soda bottle

I have a piece of string with a loop on one end and a lasso on the other. Works great for getting sodas from the fridge. Glenn Henry G.A.Henry Radio 100 Mill Street Washington Boro, PA 17582

[QUAD-L] i AGREE

Obama is looking out for #1. Don't blame this one on the Republicans, all as you need to do is look at 100 Pennsylvania and the type of people he hangs around with. Remember, "we need to pass this bill so we can see what is in it", or rather what isn't in it. Glenn Henry

Re: [QUAD-L] Unidentified subject!

Hello broken leg, I was in approximately the same predicament that you are in. I broke my leg several years ago in three places, just below the knee, just above the ankle, and the third was the small bone. The first thing the doctor asked me was "do you want me just to amputate." YEAH RI

[QUAD-L] Sore mouth

I ask about anyone getting sore mouth from ditropan. I happened onto something by chance. I need to eat a snack with one med at night. Sometime that would be peanut butter toast. The peanut butter would also sooth my sore mouth. I am now taking a small amount of PB, maybe the size of 2 tyle

[QUAD-L] sore mouth

Does anyone get a sore mouth from Ditropan? Glenn Henry

[QUAD-L] Elizabethtown Crippled Childrens Hospital

Senior moment: Website address: http://www.elizabethtowncrippledchildrenshospital.com/ Glenn Henry G.A.Henry Radio 100 Mill Street Washington Boro, PA 17582

[QUAD-L] The Elizabethtown Crippled Children Hospital

This is how it was in years past. Glenn Henry G.A.Henry Radio 100 Mill Street Washington Boro, PA 17582

[QUAD-L] Welcome to Obamacare

Five years ago you were not ask those questions. Anyone go to the doctor lately and the office ask a bunch of new questions, including "do you drive" or "are there firearms in your home" or the one that really pisses me is "do you feel comfortable when alone with your spouse"? Oh yeah, don

[QUAD-L] What you do in life depends on you

Anyone in NASCAR hear of Hendrick Motors? http://www.tigernet.com/update/general/Clemson-grad-born-arms-designer-Hendr ick-Motorsports-11671 Glenn Henry G.A.Henry Radio 100 Mill Street Washington Boro, PA 17582

[QUAD-L] Anniversary

Today is my 47 anniversary (whoopie) of my accident.\ Did I miss out on things in life, yes! Were doors opened for me that would not have opened if my accident had not occurred, definitely! I have had a good life and hope to post 48. But there are days life sucks Glenn Henry G.A.Henry

Re: [QUAD-L] Sure Hands

I agree, it is great. As for the batteries, they are customer replaceable, purchase at Batteries+ for about $45 each, 2 required. My issue is the rubber wheel is drying out and breaking. A refurbished wheel and motor, wheel not sold separately is $1000. Rip off!!! I can get

[QUAD-L] ceiling lift

Anybody have a "SureHands" or "Handi Move" ceiling mounted lift? Can you get parts, motor, gears, etc other than from rip off dealers? Glenn Henry G.A.Henry Radio 100 Mill Street Washington Boro, PA 17582

[QUAD-L] quad list

are we up and working?

[QUAD-L] Time to get out the green can

Hi All, These replies to the posts about sores are overlooking one thing. BAG BALM!! I used to be plagued by superficial sores and skin tears. After one sore tracked to 3" and took over a year to heal, many months in bed, someone advised Bag Balm. Sores become the exception, not the rule

Re: [QUAD-L] Wheelchair van power door motors

There are companies that refurbish motors for $40-75. Glenn Henry G.A.Henry Radio 100 Mill Street Washington Boro, PA 17582 In a message dated 3/20/2013 10:38:03 P.M. Eastern Daylight Time, r.pra...@sbcglobal.net writes: When you pull the existing motor out of the door and cross ref

[QUAD-L] Foley

To those using an indwelling Foley, what size balloon do you use? GA

[QUAD-L] Foley blocking

Hi All, I have a friend with an indwelling foley that blocks with long stringy mucus. No infection. Any ideas? GA

[QUAD-L] Foley alternative

My question is for those that have used a Foley catheter for many years. I am 46 years post SCI and have used a catheter since day one. The catheter has caused erosion on the bladder and the urologist warns me that there may come a time when the bladder can no longer support a catheter. W

Re: [QUAD-L] Wound Care

I am blessed to have a friend who is charge nurse in a wound clinic and deals with the latest technology in wound healing. On a previous sore, she recommended using a new dressing with Safetac technology. ( _http://www.molnlycke.com/us/Wound-Care-Products/US/Safetac-Technology/_ (http

Re: [QUAD-L] No Thanks

There is never the wrong time to do the right thing and There is never the right time to do the wrong thing God said "Thank you" Glenn Henry G.A.Henry Radio 100 Mill Street Washington Boro, PA 17582 In a message dated 2/9/2013 11:22:06 P.M. Eastern Standard Time, bobbie...@aol.com wri

[QUAD-L] Old age

Yes, we are going in uncharted territory. In July will be 46 years post SCI I will be 62 years old, but feel like I am younger. There are days when I feel older, but I am lucky enough not to have the pain issue. When I was discharged from the hospital my father was told to take me home, b

[QUAD-L] Ditropan

I have a question for those taking Ditropan. What color is your pill? I have been taking Ditropan (color of pill blue gray) for years with no problem. My pharmacy changed to another supplier, the pill is now robin egg blue, and my mouth is getting sore. Any body have this issue? Glenn Hen

[QUAD-L] sport

Any quads take up shooting as a sport? _http://www.youtube.com/watch?v=vsVCHE7ayPE_ (http://www.youtube.com/watch?v=vsVCHE7ayPE) Glenn Henry G.A.Henry Radio 100 Mill Street Washington Boro, PA 17582

Re: [QUAD-L] Resume of Jesus Christ

Oh my goodness! Excuse me! I don't read well and I failed to notice that all the posts that have ever been posted concern quad issues, as if my belief in God helping me through every day life, as well as other quads on the list. I'm one that feels God is a "quad issue" that I need him to hel

Re: [QUAD-L] Resume of Jesus Christ

And who made you supreme ruler? Glenn Henry G.A.Henry Radio 100 Mill Street Washington Boro, PA 17582 In a message dated 1/17/2013 12:49:17 P.M. Eastern Standard Time, rollingl...@yahoo.com writes: Please keep the quad-list free from religious opinions. This is not the right forum

[QUAD-L] Damn it!

Excuse the language. In 2010, 2011 and 2012 each year with in two weeks of May 1, I went to the hospital with either a mucous plug, severe bronchitis, pneumonia whenever they could put on paper is what they called it. I can't remember but in 2011 in 2012 it started with a scratchy throat a

[QUAD-L] all quiet on the Western front

I notice there has not been a lot of postings over the holidays. I hope everyone is just relaxing. Just a few hours away from a new year, my prayer is that each and every persons that post on this site has a safe and enjoyable evening and may 2013 be one of those years of no hospital visit

[QUAD-L] zzzzzzzzzzz......

Anybody awake? Merry Christmas, Glenn Henry G.A.Henry Radio 100 Mill Street Washington Boro, PA 17582

[QUAD-L] Do your own research

Before you open your mouth and insert foot, do your research. The UN Treaty would have taken power of attorney from some disabled and put them in the hands of health directive panels to decide if you are a productive segment of the society. Second, check out "Agenda 21" it scares the crap

[QUAD-L] Mushy tires

I use solid tires on my Storm. They are like sponges, if I go out after a rain and come inside I leave tracks and sometimes stains carpet and vinyl. Any body have similar problem. Glenn Henry G.A.Henry Radio 100 Mill Street Washington Boro, PA 17582

[QUAD-L] Quick disconnect

Does anyone know of a certain quick disconnect available for quads. I want to find something to hook a dog leash onto and unhook easily. Glenn Henry G.A.Henry Radio 100 Mill Street Washington Boro, PA 17582

[QUAD-L] Emergency power

I kept my Group 24 battery (Heavy duty deep cycle) removed from my Invacare Storm, wired in parrel, hooked to a 1500 watt inverter, added a cheap charger, mounted in a large Craftsmen toolbox on wheels, Instant AC. Runs my hospital bed, air mattress and 100 watt light over 8 hours. If it w

Re: [QUAD-L] UTI Hell

Hello, If your Dr. is not experienced with a lot of UTI's, the first thing they want to put you on is antibiotics. If your symptoms are minimal, let your body fight it naturally. I have had pse... many times but my body usually takes care of it. Just because your urine tests positive doe

[QUAD-L] Lateral

Over many years I struggled with very bad posture. I leaned very far to the right and at times found it to be very uncomfortable. The biggest issue I had was while driving and making a left turn. This would cause me to lean even farther. I took a plastic lateral from an old wheelchair th

[QUAD-L] No spasms

46 years post SCI and no spasms. I had a procedure in 1968 called an alcohol block. Prior to the procedure spasms were so bad I was forced to lay in a fetal position. After, my legs relaxed and no more spasms, but if a cure were found today to regenerate the spine there would be not chance

[QUAD-L] 46 years post SCI

63 years old, feel 110 today. Glenn Henry

[QUAD-L] Got thar right

Life is what you make it with God's help of course. Tonight is our weekly "Prayer Warrior" meeting and we will pray for the quads going through depression this week. I'm just coming off 3 day depression that was a dozzie. July 10, 1966, my timeline. In my opinion, God gave me a gift. At

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