I know we've discussed A.D. and the value of carrying a medical card with us
that explains A.D. to medical personnel.
You can request these free cards, plus several others, through The Christopher
and Dana Reeve
Foundation:http://www.spinalcordinjury-paralysis.org/blogs/16/2584?msource=email&tr=
T
> To: Quadius , Don Price
> Cc: Larry Willis , "quad-list@eskimo.com"
>
> Subject: Re: [QUAD-L] Autonomic Dysreflexia and pain
>
> I just thought of a problem that I have from time to time. Check for wrinkles
> under you. After several hours they can feel
)
To: Don Price
Cc: Larry Willis ,quad-list@eskimo.com
Subject: Re: [QUAD-L] Autonomic Dysreflexia and pain
If you're having lactose intolerance you can try multiple things to ameliorate
the situation. Lactase, avoiding dairy, using substitutes. Me I have more of a
dairy allergy most o
gt; become bloated and painful, and the whole thing starts over again. Bummer.
>
> Sent from my iPad
>
> Begin forwarded message:
>
> *Resent-From:* quad-list@eskimo.com
>
> *From:* jume9...@comcast.net
>
> *Date:* November 24, 2014 at 5:25:01 PM EST
> *To:* alcibia
gt;> Resent-From: quad-list@eskimo.com
>> From: Danny Hearn
>> Date: December 4, 2014 at 10:49:22 AM EST
>> To: RONALD L PRACHT , "quad-list@eskimo.com"
>>
>> Subject: Re: [QUAD-L] Autonomic Dysreflexia
>> Reply-To: Danny Hearn
>>
>> Your so
: Thursday, December 4, 2014 9:24 AM
Subject: Fwd: [QUAD-L] Autonomic Dysreflexia and pain
Empty bowels always makes me feel better. Sometimes I wish I could get by
without eating anything at all. But, alas, hunger pangs interfere. I eat,
become bloated and painful, and the whole thing star
the whole thing starts over again. Bummer.
>
> Sent from my iPad
>
> Begin forwarded message:
>
>> Resent-From: quad-list@eskimo.com
>> From: jume9...@comcast.net
>> Date: November 24, 2014 at 5:25:01 PM EST
>> To: alcibiates2 , quad-list
>> Subject: Re:
And for that very reason Greg, Quads should have a copy of the AD
Guideline, hanging around their necks when visiting an ER or Hospital.
Best Wishes
In a message dated 12/4/2014 11:35:45 A.M. Central Standard Time,
g...@eskimo.com writes:
I've been to a few docs that did not know about
I've been to a few docs that did not know about or know very much about A.D.
These docs were in the E.R. and Urgent Care offices. I recall one E.R. doc
saying, "Oh yeah, I remember hearing something about that." With all they have
to learn, with so many types of diseases and illnesses out there.
s include: eggs, nuts, shellfish, soy and wheat
products. Carbonated beverages can cause gas too.
Good luck. I hope you guys can figure it out!
Don.
From: Larry Willis
To: "quad-list@eskimo.com"
Sent: Thursday, December 4, 2014 9:24 AM
Subject: Fwd: [QUAD-L] Autonomic Dysre
I had a lot of problem with what we call an "air bubble" when I was eating,
especially if I was eating beef before I ate some carbs. We found that if I
took 2 Tums it went away quickly. We experimented with the Tums and found
that it would help if I went to bed feeling bloated. It doesn't happen ve
ist@eskimo.com
> From: jume9...@comcast.net
> Date: November 24, 2014 at 5:25:01 PM EST
> To: alcibiates2 , quad-list
> Subject: Re: [QUAD-L] Autonomic Dysreflexia and pain
>
> You are correct and I do that. Also, i have noticed that when you have a
> thorough bowel movement it
never heard of dysreflexia? I believe some education is in order.
Sent from my iPad
Begin forwarded message:
Resent-From: quad-list@eskimo.com
>From: Danny Hearn
>Date: December 4, 2014 at 10:49:22 AM EST
>To: RONALD L PRACHT , "quad-list@eskimo.com"
>
>Subject: Re: [QUAD
se. There's no cure for
> > it. It causes nerves to be pinched as well as making it impossible
> > to position comfortably. Spending long times sitting in the chair
> > is really painful.I'm to the point now where I get out of bed for a
> > couple hours each da
ng disc disease. There's no cure for
>> it. It causes nerves to be pinched as well as making it impossible
>> to position comfortably. Spending long times sitting in the chair
>> is really
painful.I'm to the point now where I get out of bed for a
>> couple hours
; to position comfortably. Spending long times sitting in the chair
>> is really
painful.I'm to the point now where I get out of bed for a
>> couple hours each day.
>> Best wishes.
>> john s
>>
>>
>> Sent from my Verizon Wireless 4G LTE smartphone
>&g
reless 4G LTE smartphone
>
>
> Original message ----
> From: Danny Hearn
> Date:11/24/2014 5:44 AM (GMT-05:00)
> To: alcibiates2 ,quad-list@eskimo.com
> Subject: Re: [QUAD-L] Autonomic Dysreflexia
>
> John, I read that many quads develope disc problems i
quot;
Sent: Monday, November 24, 2014 1:21:23 PM
Subject: Re: [QUAD-L] Autonomic Dysreflexia and pain
I think that the first thing everyone needs to know about most pain drugs is
that you must continually break the forming addiction. Staying on one drug will
cause it to lose its effectivene
7;t get me wrong, I'm totally sympathetic I've been on the trip myself.
john s
Sent from my Verizon Wireless 4G LTE smartphone
Original message
From: jume9...@comcast.net
Date:11/24/2014 3:40 PM (GMT-05:00)
To: quad-list
Subject: Re: [QUAD-L] Autonomic Dysreflex
. What is
the next step up in pain management.? They won't operate.
Meredith
- Original Message -
From: "alcibiates2"
To: "Danny Hearn" , "quad-list"
Sent: Monday, November 24, 2014 5:57:02 AM
Subject: Re: [QUAD-L] Autonomic Dysreflexia
I was told
:11/24/2014 5:44 AM (GMT-05:00)
To: alcibiates2 ,quad-list@eskimo.com
Subject: Re: [QUAD-L] Autonomic Dysreflexia
John, I read that many quads develope disc problems in their backs, did they do
anything for yours or do you just get by as best you can with that?? thanks,
Dan**
On Sunday,
day.
Best wishes.
john s
Sent from my Verizon Wireless 4G LTE smartphone
Original message
From: Danny Hearn
Date:11/24/2014 5:44 AM (GMT-05:00)
To: alcibiates2 ,quad-list@eskimo.com
Subject: Re: [QUAD-L] Autonomic Dysreflexia
John, I read that many quads develope dis
Wireless 4G LTE smartphone
Original message
From: Danny Hearn
Date:11/23/2014 4:42 AM (GMT-05:00)
To: quad-list@eskimo.com
Subject: [QUAD-L] Autonomic Dysreflexia
Man, I hate having dysreflexia and unable to find the cause, I have been having
it on and off for about 3 da
3/2014 4:42 AM (GMT-05:00)
To: quad-list@eskimo.com
Subject: [QUAD-L] Autonomic Dysreflexia
Man, I hate having dysreflexia and unable to find the cause, I have been having
it on and off for about 3 days and have had almost no sleep for the last 2
days. Bladder and bowels all seem fine-no pr
n ambivalent in Cincinnati.
Best Wishes,
John s
Sent from my Verizon Wireless 4G LTE smartphone
Original message
From: Danny Hearn
Date:11/23/2014 4:42 AM (GMT-05:00)
To: quad-list@eskimo.com
Subject: [QUAD-L] Autonomic Dysreflexia
Man, I hate having dysreflexia and una
The most common causes is bladder followed by bowells. Check and try find out
when it gets worse or triggers. Depending on how you do your bladder system
check that over with a fine tooth comb. A foley can get clogged very easy.
Check your butt for cuts or something inside to. Look at nails on y
Man, I hate having dysreflexia and unable to find the cause, I have been having
it on and off for about 3 days and have had almost no sleep for the last 2
days. Bladder and bowels all seem fine-no pressure sores or etc. that we can
find. When I try to lay down at night after a while I get real h
This is almost exactly what happened to me for about three or four months.
The only thing I can figure out is that my bowels were hurting more than I
thought they were. When the discomfort in my bowels went away, my blood
pressure returned to normal. I've been diagnosed with diverticulitis and I'm
ng me there's something up that I
need to take care of.
Aaron Mann
C4-5, 1988
From: wheelch...@aol.com [mailto:wheelch...@aol.com]
Sent: Tuesday, May 25, 2010 9:32 AM
To: steve.olda...@comcast.net; gah17...@aol.com; quad-list@eskimo.com
Subject: Re: [QUAD-L] autonomic dysreflexia
I
hope you all find relief ASAP.
Steve - C4, 22 years
From: gah17...@aol.com [mailto:gah17...@aol.com]
Sent: Tuesday, May 25, 2010 7:42 AM
To: quad-list@eskimo.com
Subject: [QUAD-L] autonomic dysreflexia
I appear to have a classic case of AD, except my blood pressure can be
high e
also
common triggers. If antibiotics seem to reduce the dysreflexia, infections
are most likely the cause. I hope you all find relief ASAP.
Steve - C4, 22 years
From: gah17...@aol.com [mailto:gah17...@aol.com]
Sent: Tuesday, May 25, 2010 7:42 AM
To: quad-list@eskimo.com
Subject: [QUAD-L
I appear to have a classic case of AD, except my blood pressure can be high
ex:195/114, and
20 minutes later 95/65. Over the past 30 years I have experienced this
numerous times
numerous doctors and tests.
When BP is high I am clammy and sweaty, washed out, weak when it is low.
Staying on
John, I am really impressed. People helping other people with credible
information!
Best Wishes
In a message dated 1/20/2009 9:04:14 P.M. Central Standard Time,
alcibiat...@yahoo.com writes:
AD is autonomic dysreflexia. Most quads experience this type of a nerve
disorder from time to ti
Learn, Share, Interact!
Autonomic Dysreflexia: What You Need to Know
A free online webinar from the Reeve Foundation Paralysis Resource Center
featuring Dr. Steve Stiens, M.D.
Autonomic Dysreflexia is a serious side effect for some people with paralysis.
It's a potentially fatal comp
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