[TMIC] Medical Query RE: Prednisone.

2005-12-05 Thread Grace
Because I recently developed Thrush (It's doing great now.) my neuro would like me to drop my prednisone down to 15 mgs per day. I don't want to, in fact I am terrified. I've done a lot of reading and research re: reducing prednisone, and many who have relapsing Devic's, do in fact relapse

[TMIC] Newly Diagnosed/Mild case

2005-12-05 Thread Karen Doyle
I am newly diagnosed with TM; had the typical girdling symptom at onset. Received Solumedrol/prednisone course. Two months out, I have constant myelopathy (burning, painful skin tenderness) in both thighs and intermittent symptoms aggravated by sitting: I get substantial pain across my

Re: [TMIC] Newly Diagnosed/Mild case

2005-12-05 Thread FHargr3092
Your symptoms sound familiar.especially the fatigueit's major and you need to listen to your body when it says it's tired, stop and rest!! or other symptoms seem to magnify!! Exerciserehab if possible.your doctor can presribe the rehabit is most helpful.especially early on

Re: [TMIC] Newly Diagnosed/Mild case

2005-12-05 Thread luthyen
Welcome aboard, Karen! We wish you didn't have to join the TM club, but you'll find it's a very supportive group. Have you looked over www.myelitis.org? It's got a wealth of info there, and you'll find that your symptoms are typical post-acute TM. You'll also find that once you talk to your

Re: [TMIC] QUESTION FOR THE LADIES

2005-12-05 Thread mmsnovotny
Never happened to me.  I'm so small I have hardly anything to get smooshed into the machine.  I'd call the doc. Margie On Sun, 4 Dec 2005 15:38:50 EST, Elbanks111 wrote Hello ladies, I'm a bit heavy breasted and this morning I noticed a small rash (no bumps, more like a bruise),

Re: [TMIC] Newly Diagnosed/Mild case

2005-12-05 Thread [EMAIL PROTECTED]
Karen, Welcome your symptums are very common. Physiotherapy will help you. Learn what needs to be done and DO IT Every Day. I'm 5 years out and still benefit from stretching and strengthening, EVRY DAY. The central pain may get worse. Are you on meds for it? Most are on a tricyclic

RE: [TMIC] QUESTION FOR THE LADIES

2005-12-05 Thread Deb Casey
Hi Ella. yes I did have something similar and they gave me powder, a prescription powder. If it doesn't itch and no bumps, you could try gold bond powder, or one of the other medicated powders, I bet cornstarch would work.This I learned, too - you have to smooth it on, don't leave any extra. I

RE: [TMIC] Newly Diagnosed/Mild case

2005-12-05 Thread Rick B
Hi Karen, Your symptoms sound very typical. I too have a mild case. I often found that the pain preceded a certain degree of recovery, so I didn't mind it. It's not that way for everyone, however. I'd like to repeat the advice you've gotten from other people already. I found physical therapy to