I am newly diagnosed with TM; had the typical “girdling” symptom at onset.  Received Solumedrol/prednisone course.  Two months “out”, I have constant myelopathy (burning, painful skin tenderness) in both thighs and intermittent symptoms aggravated by sitting:  I get substantial pain across my lower lumbar area and down my legs and my legs get extremely “heavy”.  My gait is somewhat compromised when these symptoms present.   I am also more fatigued than pre-TM… Are these common TM complaints?

 

I am thankful that these are my only residual symptoms but I am hoping for more improvement.  But I am wondering if there’s anything I can do to HELP them improve…like supplements (omega-3 fish oil, Neurosol) or exercise???

 

I would appreciate any thoughts…

 

Karen

 

 

 

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