From: Natalie Boyles
[mailto:[EMAIL PROTECTED]
Sent: Monday, May 29, 2006 8:06 PM
To: Jennifer Mercer;
tmic-list@eskimo.com
Subject: Re: [TMIC] question
Natalie,
Thank you so much for this information!
This white matter seems to be why my definitive diagnosis is so
Some talked about stunked by bees, needle picks etc. My experience is that
when I keep my legs warm, just like grandpa with a blanket over my legs, The
spasm schocks and needle picks are much lesser then when I don't do this.
During the day, outside the house is nice , but we move too less
FATIGUE IS A CONSTANT PROBLEM. I AM ABLE TO DO ALMOST ANYTHING I COULD DO WITH THE EXCEPTION OF SPORTS AND RUNNING. HOWEVER EVERYTHING I DO REQUIRES SO MUCH MORE ENERGY THAT I FATIGUE VERY QUICKLY. I GO TO THE GYM AT LEAST 3X A WEEK AND WORK OUT FIR 90 MINUTES DOING BOTH CARDIO AND WEIGHT
The University of Pittsburgh and also Northwestern here in Chicago, have both told me that non specific white matter lesions in TM or Devic's are more common than previously thought. These lesions do not follow the typical pattern of MS, however. I currently have four of them in my brain, BUT, I
Right now you can go to this website and click
on a charity and Pontiac will donate to that cause. I selected the Chris Reeve
foundation.
http://www.pontiac.com/apprentice
It took a while to connect and I think they were
swamped. But now its up and running. I understand they will donate
Title: AOL Email
Having had fibromyalgia and CFIDS for so
many years before TM, I am used to the overwhelming fatigue. For me,
it is nothing new that came with the disease.
Over the years, morethan one doctor has told me that
the
Hello Judy,
You have voiced exactly what my own neuros have told me over this last year. Recently at one of the Devic's sites, someone mentioned Provigil as a possibledrug forfighting fatigue. The thing is, with every drug there are side effects. and unless you are willing to bear down and grit