[TMIC] queston

2008-03-31 Thread Robert Pall
Need a little help! After more than 10 years I started having new symptoms in my left (the good one) leg. My left leg has always had pins needles...but this weekend I had the burning (freezing) sensation and although it has not gotten worse..it has not gone back to what I call normal. I

Re: [TMIC] queston

2008-03-31 Thread [EMAIL PROTECTED]
Rob, I was afflicted with TM in 2000. Recently I began having new symptoms and increased pain during the Medication Valleys. I went for an MRI which showed a cinching in at the level of my lesion (C5). The demyelination was followed by scarring, and the scarring contracted causing the

Re: [TMIC] queston

2008-03-31 Thread JHarper33
In a message dated 3/31/2008 9:13:03 AM Eastern Daylight Time, [EMAIL PROTECTED] writes: I know all of us do not have one day that is exactly the same as the previous oneā€¦but have any of you experienced new feelings (good or bad) that was not a result of a relapse? Yes, Rob, I have

[TMIC] Thank you

2008-03-31 Thread Robert Pall
I just received an e-mail from Dr. Kerr. He said he would be extremely surprised if after 10 years I am having a relapse! He did suggest and will prescribe an MRI of the thoracic spine ( to ease my mind). This will be the first MRI in 10 years so it can't hurt to have it done...my biggest

Re: [TMIC] queston

2008-03-31 Thread jrushton
Rob, I know I've only had this 3 years and have different symptoms here and there quite often but the rest doesn't seem to change. I always have the burning/freezing plus the pins and needles, worse on the left but have had it from the start. I just keep on with my water therapy and soon a

Re: [TMIC] queston

2008-03-31 Thread jrushton
Your e-mails always make me laugh, Frank!! These are some things to ask Dr. Kerr in Seattle. Your 'cinching' situation is interesting. I wonder 'why now' and what are your new symptoms? Jeanne ---Original Message--- From: [EMAIL PROTECTED] Date: 3/31/2008 8:59:09 AM To: Robert

Re: [TMIC] Thank you

2008-03-31 Thread jrushton
Hi again, Rob... I was just thinking of all of the different stories we have all shared. One of them came to mind in that it talked about how we can't 'walk' the same (those of us who are so blessed to be able to do that) and when we do our unbalanced gait will cause spinal issues. I'll be

Re: [TMIC] queston

2008-03-31 Thread Jenna
Rob, Get it checked out. I know you are scared. All of us that have had relapses were scared too. But the sooner you see the Dr. the better. Let us know how you are doing, ok! And just so you know I have had times where my symptoms increased and it was a relapses and times when it wasn't.

Re: [TMIC] JUDE!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

2008-03-31 Thread ROSEOFRENO
I just got off the phone with Jude.can't add much to what Pam has already told us. they have her on Vancomycin which is the antibiotic for MRSA along with seven other antibiotics. They will do a six week course and then take a break and then another six week course of the

Re: [TMIC] JUDE'S HOME ADDRESS....

2008-03-31 Thread ROSEOFRENO
Dave and Judy Hoops 6067 East Francis Road Mt. Morris, MI 48458 **Create a Home Theater Like the Pros. Watch the video on AOL Home. (http://home.aol.com/diy/home-improvement-eric-stromer?video=15ncid=aolhom000301)

[TMIC] This Is a Test

2008-03-31 Thread LadyNotes
I have been kicked off the list, and I judging from the archives, it has been a great while. I hope this message makes it through. Naomi C4-incomplete, quadriplegic since July 2005 due to Transverse Myelitis **Create a Home Theater Like the Pros. Watch the video on AOL

Re: [TMIC] This Is a Test

2008-03-31 Thread Grace M.
You're coming through great Naomi! On Mon, Mar 31, 2008 at 11:12 PM, [EMAIL PROTECTED] wrote: I have been kicked off the list, and I judging from the archives, it has been a great while. I hope this message makes it through. *Naomi* C4-incomplete, quadriplegic since July 2005 due to

Re: [TMIC] This Is a Test

2008-03-31 Thread JHarper33
That has happened to me and others a few times -- just a technical glitch, I think. You're coming through fine now. Barbara H. _http://barbarah.wordpress.com/_ (http://barbarah.wordpress.com/) In a message dated 3/31/2008 10:12:38 PM Eastern Daylight Time, [EMAIL PROTECTED] writes: I

Re: [TMIC] This Is a Test (for all)

2008-03-31 Thread Lawrence King
welcome back Naomi! I have just survived my one year TM anniversary. I am also C4-C5 but my damage is only central neuropathy syndrome. Everything still works but I feel as though I am being electrocuted from the chest down 24/7 what a strange disease this is!!! Mindy the artist On Mar

Re: [TMIC] This Is a Test (for all)

2008-03-31 Thread LadyNotes
Mindy, Happy one year anniversary! I've never heard of Central Neuropathy Syndrome. Electrocution is something I've always tried to steer clear of. I worked for my local electric company, installing electrical equipment for 25 years. I did not like getting those little zap then and I

[TMIC] April Birthdays

2008-03-31 Thread JHarper33
The list for April is short!! Hope you al have very special days to celebrate your lives! As always, send any additions or corrections to [EMAIL PROTECTED] (mailto:tmic-list@eskimo.com) . 4-1-25 Ken ([EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) ) 4-14 Kris ([EMAIL PROTECTED]

[TMIC] Re: tmic-digest Digest V2008 #142

2008-03-31 Thread Delores Storey
We live in the Fontana, Riverside Area, Kaiser members. Anyone have any experience with a Nuero that knows TM?? Any suggestions as how to locate one? All suggestions welcome. Dee for Art diagnosed about 2003. Not walking, depends on scooter. Can stand with support. Takes very slow baby steps.

Re: [TMIC] This Is a Test (for all)

2008-03-31 Thread Lawrence King
Naomi, I wouldn't call it a happy anniversary but I've decided it's still good to be alive. There is some question as to whether I can call my sensations Central Pain Syndrome or not because I don't have the three forms of pain defined, which include things like intolerance to hot and cold

[TMIC] Premature?

2008-03-31 Thread sal r
Does anybody recall being premature when they were born? I was 6 weeks premature. - No Cost - Get a month of Blockbuster Total Access now. Sweet deal for Yahoo! users and friends.