Hi Cheryl ~ I've been thinking about you and so glad you posted. Great news on
the cancer! Speaking for myself here, I have to agree with you. The cancer is
under control and the TM pain just goes on and on. This may not be true for
all, but from the posts it is certainly true for many of us
- Original Message -
From: Gary Thomas
To: Transverse Myelitis list
Sent: Wednesday, May 09, 2012 10:29 AM
Subject: Automimmune disorders
This was in today's South Bend (Indiana) Tribune. It deals with "hard to
diagnose" autoimmune disorders.
Gary (Niles, MI)
http://www.southbendt
Thanks, Gary. Most people have not even heard of autoimmune disorders. - Roger
in Kennewick, WA
- Original Message -
From: "Gary Thomas"
To: tmic-list@eskimo.com
Sent: Wednesday, May 9, 2012 7:36:08 AM
Subject: [TMIC] Fw: Automimmune disorders
- Original Message -
From:
My family knows a lot about genetically passed auto-immune issues. My
mother, sister and I have all manifested several auto-immune diseases. my
mother has had rheumatoid arthritis for many years and has bouts of both
temporal arteritis (inflammation and damage to blood vessels supplying the
head ar
Interesting so many of you have sleep problems. I have had almost no trouble
falling asleep or staying asleep since coming home from the hospital and one
month in a rehab facility six years ago. Two months before I was stricken
with TM, my husband and I purchased a Sleep Number bed and I found I wa
Hands or legs? Not sure if I am writing to Betty or Elizabeth?- anyway
your are able to walk, not perfectly, but she can get around. Yet she has
hand coordination problems that take away from her the things she loved to
do. My legs don't work at all so I can't go anywhere with out my wheel
chair
I have had TM for 8 years. I have slowly lost about 1/2 of my hand function &
it is not fun. The numbness in my hands seems to be increasing every year & I
developed essential tremors in my right hand 2 years into the disease (I am
right handed). My hobbies had always been sewing, scrapbooki
AND AS LONG AS IT DOES NOT ENDANGER OR HURT OTHERS, WE NEED TO DO WHAT WE CAN
TO ACHIEVE HAPPINESS.
Janice
From: bgunny7...@aol.com
Sent: Wednesday, May 09, 2012 10:36 AM
To: Tmic-list@eskimo.com
Subject: [TMIC] (no subject)
Betty,
I agree with you 100%.That is why I have been pushing the use of pain
management doctors.They know what they are doing and understand pain.
They have
helped me quite a bit.
Janice
From: Elizabeth Clark
Sent: Wednesday, May 09, 2012 3:41 PM
To: 'TM List'
Subject: RE: [TMIC] c
Yup, I would agree you and your family have had enough of autoimmune diseases.
Your pain will be rewarded.
Janice
From: Elizabeth Clark
Sent: Wednesday, May 09, 2012 2:58 PM
To: 'Roger & Terese Pratt' ; 'Gary Thomas'
Cc: tmic-list@eskimo.com
Subject: RE: [TMIC] Fw: Automimmune disorders
M
Cheryl,
Thanks as always for sharing.
I can't play the game of choosing poisons, it hurts too much.
I am grateful to be able to create, I grieve daily on my inability to create in
the way I once did. I need to stand to lift 30 pound ladles of hot glass, to
cast large sheets of paper. I need
Hi Jim,
I'm Betty & Elizabeth - it's not that I have arthritis-like pain in my
hands. after TM struck me (at C7), in addition to leaving me with a weak
left leg and "drop foot", no temperature sensation from the chest down and
"banding" of the torso, it also affected the tendons in my arms.
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