Fellow sufferers;
Have any of you heard of Provigil? Used for narcolepsy, it has found use by
MS patients to counter the extreme fatigue common with MS; and our situation
is often similar in some respects.
I get this fatigue, sometimes so bad that I stumble from lunch, slurring my
speech, and
Hi - I am new to the group. Diagnosed with TM in 2010 and struggle with extreme
fatigue. I have used Provigil and Nuvigil for the last year. The medication
gives me a better quality of life. I still have fatigue, but it does help me
make it through the day. The only struggle I have had is with
From: Dalton Garis malugss...@gmail.com
To: bobberino elbobber...@earthlink.net; Cindy McLeroy
cindymcle...@socal.rr.com; Susan Kleinz skle...@cox.net; celr...@aol.com
Cc: tmic-l...@eskimo.net
Sent: Thursday, July 19, 2012 10:32 AM
Subject: [TMIC] Re:
i seen it on tv but haven't heard of any of our sort using it
From: john snodgrass jcs...@yahoo.com
To: tmic-l...@eskimo.net tmic-l...@eskimo.net
Sent: Thursday, July 19, 2012 10:48 AM
Subject: Re: [TMIC] Re: Provigil for TM?
thats that one that takes a while to get into your system isnt it?
From: Harlow, Diane diane.har...@maritz.com
To: Dalton Garis malugss...@gmail.com; bobberino elbobber...@earthlink.net;
Cindy McLeroy cindymcle...@socal.rr.com; Susan Kleinz skle...@cox.net;
Provigil never worked for me.
i reckon medicine is personality driven.some take little,some take none,others
take a boat load
function dictates.
From: Regina Rummel regina...@sbcglobal.net
To: tmic-list@eskimo.com
Sent: Thursday, July 19, 2012 10:52 AM
Subject: [TMIC] Provigil
Here are some informative articles about fatigue and TM, and the use of
Provigil.
http://www.myelitis.org/newsletters/j2/journal-2-10.htm
http://www.myelitis.org/newsletters/v5n1/newsletter5-1-02.htm
The above articles from the TMA Journals address fatigue issues for patients
with TM.
Diane,
Glad you are a part of us now. Looking forward to responses from you.
Maybe we can help each other!
Janice, TM 5 years
From: Harlow, Diane
Sent: Thursday, July 19, 2012 9:37 AM
To: Dalton Garis ; bobberino ; Cindy McLeroy ; Susan Kleinz ; celr...@aol.com
Cc: tmic-l...@eskimo.net
I have used provigil in the past for sleepiness, I have sleep apnea
as well as TM, it worked okay for a while and then I couldn't tell. I
use it occasionally if I need to drive more than 30 minutes. It is a
CNS stimulant and I can't believe the press it is getting for non
specified use.
My neurologist prescribed for me after about a month and half after TM onset.
It did so help with the fatique and my head was so much more alert and clear.
I felt like I could take on the day! It wasn't something i had to take for a
while to feel the effect and did not leave me jittery as
I have used provigil for 11 years, works great for TM.
Lori
-Original Message-
From: rasbu...@roadrunner.com
Sent: Thursday, July 19, 2012 12:10 PM
To: john snodgrass ; transverse myelitis
Subject: Re: [TMIC] RE: Provigil for TM?
My neurologist prescribed for me after about a month
I was dx with TM 2004 used Provigil for extreme fatigue. Took the med about
6 months it helped, but stopped because of bad side effects. I could not
sleep more than 2-3 hours a night because it kept me awake it really made me
foggy in thinking. Nothing has really helped since. Just try
Thank you very much for these articles.
I have found a place online that sells 200mg pro vigil for around
$1.56/pill. Any interest? Because I have no insurance and am paying around
$6.00/day for my medications already (let's see how Keppra works to control
my seizures!).
Best,
DG
Dalton H.
Hey Dalton,
When I first went back to work under all the medications it was horrible.
Was falling asleep driving, had to pay 150% to any and all tasks and after
about two sentences talking with someone I would fade out. Thought I would
not be able to work.
My support group mentioned
Just saw a TV story on it the day before yesterday
http://abcnews.go.com/GMA/video/provigil-brian-drug-awake-focused-24-hours-16810963
I'm interested--- this heat has keep me exhausted!
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