MARK, I THOUGHT I WROTE YOU. USE AMBUSOL HCT IT HAS A STERIOD IN IT. IT
REALLY WORKS. ITS A CREAM IN A TUBE.
TIAD PAM
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I GOT A E-MAIL FROM SOMEONE CALLED ANTI-FAN. I HAVE NEVER SEEN A POST FROM
THAT PERSON BEFORE.
SHE OR HE SAID I HAD NO CLUE ABOUT INSURANCE. WELL I TOLD HER WHAT I KNEW
AND I AM ON COMMITTES ABOUT INSURANCE. THAT I WORKED IN THE MEDICAL FIELD FOR
ALMOST 20 YEARS .I KNOW ALL ABOUT INSURANCE
I SPOKE WITH HER AROUND 3 HER TIME. SHE WAS REAL GROGGY. HER SURGERY WAS AT
8 LAST NIGHT. THE NAME OF THE HOSPITAL IS GENESES. I COULD NOT UNDERSATAND THE
ADDRESS OR PHONE NUMBER.
I HOPE DAVE CALLS ME. JUDE WILL PROBABLY NOT BE ABLE TO TALK. THEY OPERATED
ON HER ESOPHAGES. IF I KNOW
THIS IS TO KEN FROM JUDE. SHE ASKED ME TO TELL YOU THANK YOU FOR A BOOK. I
THINK SHE THINKS I KNOW YOU BUT I DO NOT.
ALSO JUDE IS BEEN REALLY ILL. SHE IS GOING IN THE HOSPITAL ON TUESDAY FOR
ESOPHOGUS SURGERY. SHE CANNOT SWALLOW ONLY LIQUIDS. SHE WOULD NOT TELL ME THE
NAME OF THE
I KNOW I HAVE TM . I HAD MORE THAN ONE LUMBAR PUNCTURE AND MY PROTIEN LEVEL
WAS HIGH EACH TIME. OTHER TESTS ALSO PROVED I HAD TM.
KEVIN REFLEXES OR A PART OF TM. I STILL SOMETIMES GET CLONUS IN MY LEFT
CALF.ITS FUNNY IF I AM OUT AND IT STARTS JUMPING THE CHILDREN IF AROUND OR
AMAZED. I HAVE
Patti, I was told standing helps but you really need the weights. I have
osteoporosis and my bones or much stronger.The weights or really tough on me.
So
I use the water therapy that helps a lot and its good for your balance., My
endocronologist does a bone density test on me once a year
ANGEL, I AM SO SORRY FOR EVERYTHING YOU HAVE GONE THRU.IT SEEMS YOU REALLY
HAVE A LOT ON YOUR PLATE. NOW THE HEART PROBLEM THAT IS TO MUCH FOR ANYONE TO
DEAL WITH.
YOUR SON HAS AUTISM WHAT ELSE CAN POSSIBLY HAPPEN TO YOU.
I WISH YOU THE STRENGTH AND COURAGE TO GET THRU THIS.THEY SAY WE CANNOT
HOPE YOUR OK HEATHER. I THINK THE BALL MIGHT WORK FOR SOME PEOPLE. I LOVE
THEM AND THE GRIPPERS I HAVE TO HAVE.FEEL BETTER.
TIAD PAM
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NATALIE THERE IS NO EXCUSE FOR YOU TO GET BED SORES. I HAVE NEVER HAD ONE
BUT I KNOW FROM BEING A NURSE WE CHANGED OUR PATIENTS DURING THE DAY AND THE
NIGHT.
YOU SHOULD OF CALLED A NURSE TO REPOSITION YOU. THATS THERE JOB.
IT IRRITATES ME HOW SOME NURSES JUST DO WHAT THEY WANT OR LET THE AIDS
LARRY, I WAS A NURSE AND WE NEVER TOLD A PATIENT TO DRINK LOTS OF
CAFFIENE,JUST PLENTY WATER. THE IMPORTANT THING IS LAYING FLAT FOR HOURS. I
WILL HAVE
TO ASK MY DOCTORS AND OTHER NURSES ABOUT THAT, IT MIGHT BE KNEW. BUT I HAD ONE
3 MONTHS AGO AND I WAS TOLD TO DRINK ALOT OF WATER AND I
LARRY, YOU SHOULD OF HAD FOLLOW UP APPOINTMENTS WITH A NEURO OR A
NEUROLOGIST.
IF NOTHING HAS CHANGED IN 2 YEARS I SEE NO REASON FOR A SPINAL TAP.
YOUR DOCTOR IS JUST COVERING ALL HIS BASES. I HAD ONE 3 MONTHS AGO , I HAVE
HAD MANY. I FELT NOTHING. THEY INJECT THE AREA WHERE THEY WILL GO IN SO
I HAVE HAD A FEW. WHEN I HAVE A FLARE UP OR MY LEGS STOP MOVING FOR A DAY OR
TWO THEY WILL DO ONE. THEY DO THE MRIS AND ALL THE TESTS THEY NEED TO DO.
THE TAP DOES NOT HURT AT ALL. YOU JUST HAVE TO LAY STILL FOR HOURS AFTER OR
YOU COULD GET A HORRIBLE HEADACHE.MY TESTS ALL CAME BACK LIKE THEY
SANDY, I AM ON A GREAT PLAN HERE IN NEW ORLEANS AND OTHER PARTS OF LA. I GET
A 3 MONTH SUPPLY OF ALL MY MEDS FOR THE PRICE OF JUST ONE AT MY PHARMACY. I
DO NOT LIKE GETTING IT IN THE MAIL. VALIUM AND SOMA FOR MY SPASMS MY DOCTOR
JUST HAD TO CALL MY INSURANCE COMPANY AND I GET ALL MY MEDS FOR
LARRY, IF HE NEEDS TO GO IN THEY SHOULD TELL HIM. MY PHARMACY WILL GIVE ME
MEDS IF I RUN OUT UNTIL I GO TO THE DOCTOR..
I AM LUCKY I HAVE GREAT DOCTORS AND NEVER HAVE PROBLEMS GETTING MY MEDS.
IT COULD BE WE ARE FRIENDS FOR YEARS.
KEVIN DOES NEED HIS MEDS. THE DOCTOR MIGHT NOT EVEN KNOW. IF HE
DEAR KEVIN, BELIEVE ME I WAS A NURSE AND THAT IS WRONG. MY HUSBAND TAKES
THEM AND WE MAKE VERY SURE WE HAVE THEM ON HAND.
MY FATHER IS HERE FOR A MONTH I MADE SURE HE HAD HIS BLOOD PRESSURE MEDS. MY
DOCTOR SAID IF HIS MEDS DID NOT ARRIVE HE WOULD GIVE ME A SCRIPT FOR MY DAD.
I DO NOT WANT TO
NATALIE AND KEVIN, THE HUGO IS WONDERFUL. I DO SO MUCH MORE WITH IT. I AM
ONLY 5/2 FEET TALL AND I COOK DO LAUNDRY SO MANY THINGS WITH IT.
ITS A LITTLE HEAVY FOR ME TO PICK UP. SO WE BOUGHT ANOTHER ONE AT SAMS FOR
110.00 DOLLARS JUST TO KEEP IN MY VECHICLE.
I CAN GO OUT ALONE AND NOT BE
HILDRED I AM SO GLAD YOUR HOME AND YOU ENJOYED YOUR HOAGIE. I AM ALSO GLAD
YOU WON JUDES CONTEST, CONGRATS TO YOU. I THOUGHT YOU SHOULD OF WON. WOW ALL
THOSE POTTY CHAIRS THATS AMAZING. I HOPE YOUR TESTS COME OUT GOOD AND YOU CAN
MOVE UP THE LIST FOR THE BY PASS SURGERY YOU MENTIONED.
SO
DEAR ELLA, THANKS FOR LETTING US KNOW ABOUT HILDRED. SHE IS ON COUMADIN LIKE
ME AND I AM HAVING PROBLEMS GETTING MY PT AND INR WHERE THE DOCTOR WANTS IT.
I DID GREAT THEN NOW I HAVE TO HAVE THE TEST DONE ONCE A WEEK THEY KEEP
ADJUSTING IT. I HOPE ALL WILL GO WELL WITH HER.MY PRAYERS AND
BARBARA, I HAVE NEVER HEARD OF BLOGGING BEFORE. THAT SOUNDS VERY INTERESTING
TO ME.IF YOU GET A CHANCE COULD YOU GET IN TOUCH WITH ME. I WOULD REALLY
LIKE TO KNOW ALL ABOUT IT AND GIVE IT A TRY, THE FREE ONE. I AM NOT SO GOOD
WITH
COMPUTERS BUT WHEN TOLD OR SHOWED I DO WELL.
MY MOM HAD DANCING SCHOOLS. I HAVE BEEN ON THE STAGE SINCE 3. I GOT MY DANCE
MASTERS LICENSE AT 16. WE TRAVELED TO CHICAGO 2 TIMES A YEAR FOR
COMPETITIONS.
I HAVE A SMALL GYM IN MY HOME A BAR FOR STRETCHING AND BALLET. NOW I CAN NOT
DANCE VERY GOOD MY BALANCE I AM WORKING ON. THE BARS IN THE
JUDY, THEY DO MAMS IN A WHEELCHAIR. MINE WAS JUST DONE ON THE 21ST. ALL WAS
OK IT WAS THE FIBROCYSTIC DISEASE. I HAVE A MAM AND ECHO EVERY YEAR SINCE MY
FIRST LUMP WAS TAKEN OUT IN THE HOSPITAL AT AGE 20.
I HAVE MANY CYSTS SOME I CAN FEEL THE OTHERS OR JUST TO DEEP TO FEEL. I
STRONGLY
THANKS NATALIE. WE OR SAD OUR 18 YEAR OLD 4 LB MALTESE IS ILL GOING BLIND
AND HAD A SEIZURE. HE IS NOT IN ANY PAIN AND GETS AROUND PRETTY GOOD. HE KNOWS
HIS SURROUNDINGS AND THE VET TOLD US IF HE HAD ANOTHER SEIZURE WE SHOULD PUT
HIM TO SLEEP. MY SON TOLD ME TO TAKE HIM TO ANOTHER VET. HE
HEY JUDE, I AM SO HAPPY FOR YOU. I KNOW NOW YOU WILL BE ABLE TO DO MORE.YES
PRAYERS DO HELP. I HOPE YOUR LIFE WILL BE A LITTLE EASIER NOW. WE ALL HAVE
ALONG WAY TO GO. YOUR STRONG AND I KNOW THIS IS GOING TO HELP YOU IN SO MANY
WAYS.
I HOPE YOU WILL GET THE HANG OF IT. I AM SURE IT WILL LIFT
LARRY, I USE THE BIKE EVERYDAY. 15 MINUTES IN THE MORNING AND 15 AT NIGHT. I
CAN WALK WITH A WALKER SOMETIMES A CANE.IT DOES GET YOUR BLOOD FLOWING AND
WILL HELP STOP CLOTS. I ALSO DO MANY OTHER EXERCISES EVERYDAY. THATS VERY
IMPORTANT.
OVER THE LAST 14 YEARS I HAVE BOUGHT SO MANY EXERCISE
DEAR CANDY, I AGREE WITH YOU ON THE BOOK. HE DID A GREAT JOB AND I KNOW
EVERYONE IS PROUD OF HIM.
YOUR CORRECT HE DID NOT IN MY OPINION TOUCH ON TM AND HOW IT EFFECTS US ALL
DIFFERENTLY. I THINK WITH HIS BOOK AND IF SOMEONE ELSE WROTE ON ALL THE
ASPECTS OF TM IT COULD POSSIBLY HELP US ALL
DEAR JUDE, I LIVE IN PAIN EVERYDAY OF MY LIFE. I FIND RELAXATION TAPES, A
DIP IN THE POOL, WHICH I KNOW YOU CANNOT DO VERY HELPFUL.
I ALSO USE A TENS UNIT THAT HELPS ALOT. WE ALL HAVE DIFFERENT TOLERANCE TO
PAIN. I HAVE A VERY HIGH TOLERANCE AND DO NOT TAKE PAIN MEDS, I WANT TO
FUNCTION.WE
DEAR LINDA, I AM SORRY TO HEAR ABOUT THE ARM CANCER. I HAVE TO HAVE MY MAM
AND ULTRASOUND ON WED. I HAVE FIBROSISTIC BREAST DISEASE. 2 OF MY COUSINS DIED
VERY YOUNG THE CYSTS TURNED MALIGNANT. IF THEY WOULD OF KEPT UP WITH THEIR
MAMS AND ECHOS THEY COULD OF BEEN SAVED.
MY DOCTOR LAST WEEK
SALLY I JUST GOT OUT OF THE HOSPITAL A FEW WEEKS AGO. MY LEGS STOPPED
MOVING. I WAS IN REHAB FOR 3 WEEKS. I WAS PUT ON STERIODS FOR ONE DAY BY IV.
THEY
USE TO KEEP ME ON IT FOR DAYS. THEY SAID TO MUCH STERIODS CAN MAKE YOUR LEGS
WEAK. I WAS SCARED I WOULD NOT WALK. IN A FEW DAYS I COULD
KEVIN I CANNOT BELIEVE YOU CANNOT GET PAIN MEDS. I HAVE HAD TM FOR 14 YEARS
NOW. I JUST GOT OUT OF THE HOSPITAL, I WAS THERE 3 WEEKS. I WAS PARALYZED
FROM MY WAIST DOWN. THIS HAS HAPPENED TO ME MANY TIMES BUT I ALWAYS COME BACK
AND I AM ABLE TO WALK WITH A CANE OR WALKER. I HAVE PAIN MEDS
DEAR SALLY, I HOPE AND PRAY THAT NOTHING HAPPENS FROM YOUR HUSBAND FROM
TAKING THE PNEUMONIA SHOT.SO MANY DOCTORS TELL US THINGS ITS A VERY HARD
DECISION
TO MAKE. YOUR FROM THE UK AND DR.KERR SAID WE SHOULD GET THE SHOTS. MY
DOCTORS DID ALSO. I WAS VERY HESITANT FOR YEARS. I GOT THE SHOTS
LYNN, SINCE I HAVE BEEN GETTING THE SHOTS NO NURSE DOCTOR EVER GAVE ME A
PAPER THAT SAID IT COULD CAUSE TM. I ASKED SO MANY DOCTORS ALL SAID WHEN WE
AGREE TO TAKE THE SHOTS THEY READ WHAT CAN HAPPEN AND TELL YOU IF YOU SHOULD
TAKE
IT OR NOT. I HAVE READ THEM ALL AND THEY WHERE EXPLAINED
GUNNY,I AM SO SORRY FOR YOUR LOSS. MY PRAYERS OR WITH YOU. PLEASE GET THAT
SCANNER SO WE CAN SEE THAT PIC OF YOUR MOM.
PAM
SANDY, YOU GOT ALOT OF GOOD ADVICE ABOUT YOUR DILEMA. I HOPE YOU WILL
FORGIVE YOUR HUSBAND.IF HE TOLD YOU THEN LETS HOPE AND PRAY AND DO SOMETHING
SALLY, WHAT MADE THEM GIVE YOU AND YOUR HUSBAND THE IMPRESSION THAT THE FLU
SHOT DID GIVE HIM TM. I KNOW SOME PEOPLE WOULD NOT TAKE IT BECAUSE THEY WHERE
AFFRAID ME BEING ONE REFUSED THE SHOT. I DID ALOT OF RESEARCH ON IT AND I
TAKE THE FLU SHOT NOW. I HAVE FOR ABOUT 6 YEARS AND HAVE HAD TM
GUNNY, I AM SO SORRY ABOUT YOUR MOM. MY MOM WAS ON DIALYSIS BUT HAD THE ONE
SHUNT FOR 13 YEARS. THEY MANY TIMES WENT IN CLEANED IT OUT AND JUST EXTENDED
IT. HER DISEASE IS HEREDITARY. I HAVE 2 BROTHERS WHO HAVE IT, A NIECE. MY
BROTHER IS NOT DOING WELL AND ON A TRANSPLANT LIST. NONE OF MY
DEAR JUDY, I WENT TO A PAIN CLINIC. I WAS NOT ON MANY DRUGS. THE OTHER
PEOPLE THERE WHERE AND HAD TO BE WEANED OFF. I HATE DRUGS AND I HAVE NEVER
SMOKED
AND I WOULD NOT START NOW. I WANT MY HEAD CLEAR SO I CAN FUNCTION.
THE CLINIC TAUGHT YOU HOW TO MAKE LIFE EASIER ON YOU AND YOUR FAMILY.THEY
JUDY I HAD THOSE SPASMS REAL BAD WHEN TM FIRST HIT ME. I GET THEM NOW BUT
VERY SELDOM. THE BANDING WAS HORRIBLE. I COULD FEEL THEM COMING ON LIKE EVERY
10
MINUTES. IT WOULD START AT T9 GO ALL THE WAY DOWN TO MY FEET AND MAKE MY
FEET CURL UNDER. I STAYED IN BED MOST OF THE TIME. THIS WENT ON
LORI I AM GLAD I KNOW WHAT CAUSED IT BECAUSE IF I DID NOT I WOULD THROW
CLOTS AND I NOW CAN PREVENT THAT FROM HAPPENING. AS FOR MY IMUNE SYSTEM A
BLADDER
INFECTION COULD TRIGGER TM TO ACT UP. I WROTE YOU SO YOU WILL KNOW MORE
ABOUT ME.
PAM
TO LORRI JENNA AND KATHRYN,,
I AM GLAD THAT WHAT YOU DO HELPS. I HATE THE MEDS AND THE SIDE
EFFECTS.
OUR BODIES OR ALL DIFFERENT AND WE ALL REACT DIFFERENTLY.
MY SITUATION IS MORE COMPLICATED. I KNOW I HAVE A AUTO IMMUNE DISEASE A FORM
OF LUPUS THAT MAKES MY BLOOD CLOT. A
NATALIE, I HAVE 3 SMALL DOGS. ONE A MALTESE WHO IS 16 YEARS OLD AND IS
HAVING JOINT PROBLEMS AND IS LOOSING HIS SITE.THE VET PUT HIM ON THAT DRUG. HE
IS
WALKING BETTER.
MY OTHER 2 DOGS OR TINY YORKIES 4 LBS. ONE HAS A BAD ALLERGY BUT HE IS 8
YEARS OLD THE OTHER IS 4. THE EIGHT YEAR OLD IS
JENNA, LIKE I SAID DO WHAT WORKS FOR YOU. I AM SORRY YOU HAVE GOTTEN FLACK
BY WHAT YOU SHARED WITH US. I WANT TO KNOW ANYTHING THAT CAN HELP. I AM STILL
WAITING FOR THEM TO DECIDE ABOUT THE LYRICA.THIS IS WHAT THE LIST IS FOR SO WE
CAN LEARN NEW THINGS AND UNDERSTAND ABOUT TM AND HOW IT
JENA JUDE, WELL WORKING IN A HOSPITAL I SAW MANY THINGS. I HOPE THEY PASS
THE BILL FOR STEM RESEARCH. I THINK IT SHOULD BE THE PARENTS RIGHT TO DO WHAT
THEY WANT WITH THEIR BABIES ONE. WHEN THERE IS A MISCARRIAGE YES THEY JUST
TRASH IT, SOMETIMES THEY STUDY IT THEN TRASH IT.THE BABIES ENBROY
NALTREXON AND VIVITRAL! I WAS SUPERVISOR OF THE PHYS
UNIT FOR A VERY LARGE HOSPITAL FOR YEARS. WE USED NALTEXON FOR SUBSTANCE
ABUSE.WE DID NOT USE IT FOR ANY OTHER REASON. IT WAS A GOOD DRUG IF THE
PATIENTS DID
WHT THEY WHERE TOLD.
ANY ADDICTION IS HARD TO BEAT. I HAVE
I THINK THE LIST IS JUST SLOW FOR THE HOLIDAYS. ALOT OF PEOPLE OUT OF TOWN
AND ALOT JUST CELEBRATING AND HAVING GET TOGETHERS.MANY UNDER THE WEATHER.
ALOT OF COLDS AND VIRUSES GOING AROUND.
I KNOW ALOT OF PEOPLE WHO ARE SICK. ITS IN ALL STATES. SO STAY WELL PLEASE.
I HOPE EVERYONE HAD A
DEAR JILL, I REMENBER THOSE DAYS WELL. I WAS SUPERVISOR OF PHYS OUT PATIENT
FOR YEARS. THAT WAS ALONG TIME AGO. I GRADUATED HIGH SCHOOL IN 69 THEN WENT TO
COLLEGE TO BE A NURSE. TO THIS DAY ALL I REMEMBER WAS CRAMING FOR TESTS AND
FINALS. I DID STOP AND TOOK TIME OFF I WAS MARRIED AND HAD A
NATALIE,THAT IS GREAT NEWS AND I HOPE YOU HAVE CONTINUED SUCCES WITH LDN. I
NEVER BROUGHT IT UP BECAUSE MOST DOCTORS WILL NOT GIVE YOU A SCRIPT BECAUSE
ITS NOT BEEN RESEARCHED ENOUGH.
I HAVE A FRIEND IN FLORIDA WHO HAS MS AND DR. IAN ZAGON DID GET A GRANT FOR
HIM TO DO RESEARCH FOR MS
GeorgetteHarris @aol.com, Hi and welcome to our family. What your feeling in
your legs is normal for a tm patient. Did you ask your doctor what he would
prescribe for you. We or all different and some medicines help others and not
me.
I get the burning ,tingling and the banding at times. I
TO DEBBIE, YES I AM AWARE OF JIMS CONDITION. HE IS A REMARKABLE MAN. I AM
GLAD HE WENT AND HAD SUCH A GREAT TIME,
TO JIM ,SINCE YOU DID THIS IT WOULD BE GREAT TO GO TO THE NEXT SYMPOSIUM.
THE PLACE SOUNDS WONDERFUL. I DO REMEMBER WHAT HAPPENED WITH YOUR VENTILATOR. I
WOULD OF BEEN
LYNN, THAT WAS SUCH A HEART WARMING LETTER IT BROUGHT TEARS TO MY EYES.YOU
SHOULD BE SO GLAD YOU WHERE THERE FOR HER.
IF SHE MISSES HER BIBLE, YOU OR SOMEONE SHE IS CLOSE TO CAN GO ON LINE TO
QVC, THEY HAVE THE OLD AND NEW TESTIMATE WITH THE CDS. SHE CAN THEN AT LEAST
LISTEN TO IT AND TRY
LEILA , MY NAME IS PA.M ,I CAN ONLY TELL YOU WHAT HAS HAPPENED TO ME AND
WHAT MEDS I TAKE AND MY STORY. THE LIST KNOWS IT AND I WILL DO MY BEST TO HELP
YOU IN ANY WAY I CAN. I WILL GET BACK TO YOU TOMORROW NIGHT SINCE I AM HAVING
GUESTS FOR THANKSGIVING.
BEST WISHES PAM
BEV , WAS THE TAP TO SEE IF YOU HAD MS ? I HAVE HAD A FEW BUT MY PROBLEM WAS
THEY COULD NOT GET ENOUGH SPINAL FLUID OUT.
THEY HAD TO KEEP TILTING THE TABLE. THE ONLY PAIN IS WHEN THEY HIT A ROOT
NERVE. I DID GREAT FOR THE FIRST 2 NO MS. THE THIRD THEY WANTED ANOTHER ONE
PLUS
A MYLEGRAM.
AMI, LORI IS CORRECT GO TO NJ THATS WHERE REEVES DID HIS REHAB. I THINK ITS
NOT TO FAR FROM WHERE YOU LIVE MAYBE 2 OR 3 HOURS.
IF THAT IS TO FAR GET IN TOUCH WITH JOHN HOPKINS, THEY CAN TELL YOU A REHAB
IN YOUR AREA THAT IS GOOD. I KNOW PEOPLE WHO DID THAT.
HE DEFINATELY NEEDS REHAB AND TO GET
TRUDY, I CANNOT BELIEVE THEY DID THAT TO YOU. YOU SHOULD OF LAYED ON YOUR
BACK NOT YOUR SIDE. I HAVE HAD A FEW OF THEM AND I WAS MOVED TO A HOLDIND ROOM
WHERE I WAS WATCHED CAREFULLY. THOSE TABLES OR HARD AND NOT FOR YOU TO BE LEFT
ON. I AM IN SHOCK THAT THEY DID THAT, NO CALL BUTTON , NEVER
Title: AOL Email
NEIL, WELL FOR NOT SAYING ANYTHING ABOUT THE ELECTION , BUSH OR
LIMBAUGH WELL YOU DO SEE TO BE CONFUSED. YOU DID IT IN AWAY THAT REALLY
MADE YOU LOOK FOOLISH.
IF ALL TMERS GOT OUR MEDS AND FREE HELP WHAT DO YOU THINK MS AND ALL
OT!!!
I FOR GOT ONE THING NEIL. HAVING SOCILIZED MEDICAL IS NOT THAT GREAT.
I KNOW ALOT OF PEOPLE IN CANADA AND THEY OR HERE NOW WELL SOME. YOU HAVE TO WAIT
SO LONG I AM TOLD AND IF YOU NEED SURGERY TTHERE COULD BE A LONG WAITING LIST. I
HAVE NURSES AND PTS HERE WHO
HI LARRY, I AM PAM. I HAVE HAD TM NOW 14 YEARS. I WAS DX IMMEDIATELY. BUT I
HAD GOOD DOCTORS . THEY KEPT UP ON THINGS AND DID RESEARCH AND WAS IN CONTACT
WITH THE DOCTORS AT JOHN HOPKINS.
PERSONALLY I DO NOT THINK NAMING DOCTORS IS A GOOD IDEA. YOU CAN DO IT ON
THE LIST IF YOU LIKE I WOULD
THANK YOU LINDA, I AM DOING A LITTLE BETTER. I AM ON ANTIBIOTICS AND I ALSO
TAKE IMURAN EVERY DAY. I GET THE FLU SHOT EVERY YEAR AND HAD THE PNEUMONIA ONE
LAST YEAR, IT LASTS 5 TO 10 YEARS I BELIEVE.
MY FAMILY ALSO TRY NOT TO COME AROUND ME WHEN THEY HAVE A COLD.
I GO TO THE DOCTOR ON MONDAY
HAPPY BIRTHDAY TO ALL NOVEMBER BABIES. I WISH YOU ALL A VERY SPECIAL DAY.
WHERE HAS THIS YEAR GONE?
PAM
KATHYRYN, I REMEMBERED ITS ZANAFLEX.
PAM
seems like neuros or different or the patients meds some docs take extra
protection.
pam
i am wondering the same thing Natalie about the neurontin and lyrica. my
docs will wean me off the neurontin theysay its safer to take a small dose
oflyricaand the neurontin and wean off of the neurontin not just
stop it. they say some patients do better that way with the side effects like
LYRICA IS A DRUG THEY WANT TO PUT ME ON. I WAS PUT ON CYMBALTA FOR
NEOPATHIC PAIN WITH NEURONTIN. THEY WHERE GOING TO WEAN ME OFF THE NEURONTIN
THEN JUST BE ON CYMBALTA. I HAD A BAD REACTION TO CYMBALTA SO I AM ON THE
NEURONTIN. I AM ALLERGIC TO MANY DRUGS OR THEY INTERFERE WITH MY COUMADIN.
R
SANDY I AM SORRY TO HEAR THAT TERRY IS HAVING SO MANY PROBLEMS. I KNOW IT
MUST BE SO PAINFUL.WELL YOU GO ON YOUR SHORT VACATION AND HAVE A BALL. I KNOW
YOUR A BUSY LADY. I SAW PICS OF ONE OF THE BABIES BUT NOT THE NEW ONE.WHEN YOU
HAVE A CHANCE I WILL SEND YOU MY NEW GRANDSON IF DAN EVER
A SPINAL ANGIOGRAM IS WHEN THEY INJECT DYE IN YOUR VEINS AND ARTERIES OF
YOUR SPINE TO CHECK FOR BLOCKAGES. THEY GO THRU YOUR FLORAC OR FLORANK.
ITS LIKE A REGULAR ANGIOGRAM OF YOUR AORTA OR YOUR HEART.
YOU CAN PUT ON YOUR SITE SPINAL ANGIOGRAM AND IT WILL GIVE YOU ALL THE
INFO.THAT IS ALL
HEY JUDE, I WOULD NOT GIVE IT A SECOND THOUGHT. I ALSO TRIED TO HELP
SOMEONE GET OFF THE LIST. I AM NOT REAL GOOD WITH COMPUTERS EITHER. I COULD BE
BUT I JUST KNOW WHAT I NEED. I AM NOT STUPID BY NO MEANS JUST A LITTLE WACKY AT
TIMES LOL YOU NO ME TOMMORROW IS ANOTHER DAY, LIKE SCARLET O
Congrats Krissy, I was scared the first time but it gets easier I. love not
having someone to bring me places. It will be so much better for you a lot more
independence.
PAM
WOW JUDE, I AM A CHRISTIAN AND AM GOING TO CHECK INTO THAT SITE. THANKS FOR
SHARING IT WITH THE PEOPLE ON THE LIST WHO ARE INTERESTED,
PAM
BOB, I just went to the eye doctor myself. I had my regular eye exam, My
eyes where bothering me and I new my vision had changed. well i had a infection
and a cataract on my right eye. my eye doctor knew I was on steroids off and on
for years. He told me it was caused from the steriods. So
Bernie, I Had low pressure like no spinal fluid with my taps.They had
to keep tilting the table with the needle in my spine to get the fluid out. It
was negative but they have no idea why I have less spinal fluid as
normal.I had more than one tap and I was told not to worry about it.
So I
Alton, My husband is only 55 and he does not understand everything the docs
say so why bring him. I go with him if its something important, not for his
yearly checkup , or if he needs to see him for something else. Believe me if its
important i would be there as he would for me but I have to
Frank, bring my hubby to doc with me lol.He hates them and would drive me
crazy, he would do nothing but just sit there.
I knew you must of been kidding about what you said.
Your correct if a man has chest pain they take him more serious than a
women. Women can have different symptoms if
GREAT NWS ERROL. I KNOW THAT WAS A HORRIBLE EXPERIENCE.. MY
GRANSON WAS DO THE DAY KATRINA HIT. HE WAS BORN SIX WEEKS ON JUNE 24,
THANK THE LORD. HE WAS IN NEONATAL FOR ABOUT 3 WEEKS HOOKED UP TO ALL THOSE
MACHINES. HE MUST OF HAD STRONG WILL POWER AND ALOT OF SUPPORT THEY KNOW THAT AT
THAT
BERNIE [EMAIL PROTECTED]-
PAM
I AM SO SORRY YOUR HAVING SO MANY PROBLEMS ,
TAKE CARE PAM
Kevin, MY HUSBAND HAD THE SURGERY FOR CORPAL TUNNEL. HE DID FINE WITH
IT.
HE IS A PLUMBING CONTRACTOR HE DID NOT HAVE TM THOUGH. AND COULD NOT USE
HIS RIGHT HAND WAS NUMB TINGLED AND HURT ALL THE TIME..
ARE YOU POSITIVE ITS CT OR IS IT TM? WHAT LEVEL IS YOUR LESION T 8 T
9 ? IT COULD BE THE
To Jill and Linda, I have had these head pains for years prior to tm. They
did all the tests it was vascular headaches.I was so
relieved.They also thought mine was from a nerve but its not.They
gave me medicine to take for it and it went away.That was years ago then
they stopped for many
BERNIE , I AM SO SORRY TO HEAR ABOUT YOUR PAIN. THERE MUST BE
SOMETHING THEY CAN DO. DID YOU EVER THINK ABOUT A PAIN MANAGEMENT CLINIC. I WENT
IT WORKED FOR ME SO MUCH.
THEY HAVE A REAL GOOD ONE HERE. FIRST THEY GET YOU OFF OF ALL
PAIN MEDS IF POSSIBLE THEN THEY MIX A DOSAGE OF MEDS THAT
GOG BLESS US ALL ii i pray for us all
and a cure. have a good weekend all.
pam
ToKrissy,Inever heard that phrase before. Not a
problem.I have been told to do caps some people have problems reading the small
print. I wish you would of told me sooner.
No one has complained before I have no problem and i am sorry if i hurt
your eyes.
Sincerely
Pam
SHE WROTE ME AND SAID SHE WANTED TO GET OFF THE LIST. SHE GAVE HER ADDY
FROM WORK, NOW SCARED SHE MIGHT GET IN TROUBLE.
HER FAX NUMBER IS 602-454-8449. I HAVE A FAX MACHINE BUT WE DO NOT ALWAYS
KEEP IT SET UP ONLY WHEN WE NEED TO SO I CANNOT HELP HER.
IF SOMEONE DOES COULD THEY FAX HER AND
BERNIE AND PATI, I AM LIKE YOU GUYS. I GIVE MYSELF GOALS. I WAS A NURSE HAD
TO GIVE THAT UP ALSO WE OWN 3 DANCING SCHOOLS WELL I CANNOT DANCE GOOD AT ALL
BALANCE BAD. I PLAYED TENNIS SINCE 7 WELL CAN YOU SEE ME ON THE COURT WITH A
CANE OR WALKER LOL.
I GO TO THE STUDIOS AND I DO CHOREOGRAPH,
BARBARA, I HAVE HAD 7 CLOTS IN MY LUNGS NOT GOOD WAS IN HOSPITAL OVER A
MONTH. THEN I HAD ONE IN MY LEG WAS VERY SMALL NOT BAD AT ALL.
THE ONE THAT REALLY CAUSED DAMAGE WAS THE ONE THAT WENT TO MY SPINE AT
T9-T10. THAT IS HOW I GOT TM. THEY FOUND OUT I HAD A FORM OF LUPUS THAT ATTACKS
MY
HILDRED, MINE WAS STABLE FOR YEARS. NOW IT SEEMS WE KEEP CHANGING THE
DOSAGE. I WAS TOLD IT JUST HAPPENS SOMETIMES AND NOT TO WORRY ABOUT IT. SOME
MEDS LIKE A ANTIBIOTIC CAN MAKE YOUR COUNT GO UP LIKE OTHER DRUGS. WHENEVER I AM
ON A ANTIBIOTIC THEY TEST MY BLOOD EVERY WEEK TILL OFF ITS
WENDY, MINE ALSO JUST GIVES ME HORRIBLE PAIN IN MY RIBS. IF HE HAS NO
FRACTURES OR BREAKS IN THE RIBS IT COULD BE THE BANDING.
THE DOCTORS SHOULD KNOW ABOUT BANDING ITS SO COMMON WITH TM.
DOES COLE SAY HE HAS LIKE A ROPE GOING AROUND HIS RIBS SQUEEZING HIM SO
TIGHT.? I GET THAT AND SOMETIMES
THANKS FOR THE B/D WISHES. I WON 1400 JACKPOT LAST NIGHT AT CASINO.I AM NOT
A GAMBLER BUT MY HUBBY WANTED TO GO SEE IT . WE HAVE NOT BEEN THERE IN OVER A
YEAR. MY FAMILY ALL LIVED ON THE GULF COAST.
WELL WHAT A WAY TO START MY B/D ITS THE 9 TH AND WE HAVE SPECIAL PLANS MY
HUBBY MADE I DO NOT
BERNIE, I HAD MASSIVE DOSES OF STERIODS IN HOSPITAL WHEN LEGS STOPPED
MOVING AND PAIN HORRIBLE.
THE STERIODS GOT MY LEGS MOVING EVERY TIME IT HAPPENED.. IN 14 YEARS IT HAS
HAPPENED ABOUT 6 TIMES.
I AM ON 15 MGS OF PREDNISONE NOW. I HAD MANY YEARS WITH NO PROBLEMS. I WAS
IN THE HOSPITAL IN
SHARON, I HAVE BANDING EVERYDAY. I USE A TENS UNIT THAT HELPS SOMETIMES ,
OR I LAY DOWN AND AND LISTEN TO A RELAXATION TAPE THEY MADE FOR ME IN THE
HOSPITAL..I HAVE LOTS OF TAPES.
THERE ARE DRUGS THEY CAN GIVE YOU ALSO WHICH HELP. YOU SHOULD ASK
YOUR DOCTOR. I HATE PAIN PILLS BUT DO HAVE
VICTORIA, I HAVE THAT PAIN ALSO AND THE BANDING. WHAT EXACTLY IS MILK
THISTLE? IS IT MILK LIKE A SHAKE OR A PILL. I CANNOT DRINK MILK NEVER COULD I
GET SO SICK WOULD IT INTERFERE WITH COUMADIN? I CANNOT TAKE A MULTI VITAMIN TO
MUCH VITAMIN K.
PAM
SANDY,
WAY TO GO. THERE IS WHEELING AND DEALING NOW ALL THE TIME. IF YOU HAVE THOSE
CONNECTIONS I THINK YOU WILL COME OUT THE WINNER.
ITS GREAT YOU CAN DRAW OR PAINT. I CAN DO A LITTLE OF THAT BUT I AM MORE A
PHYSICAL PERSON. I LIKE TENNIS WHICH I CANNOT DO ANYMORE. I LOVE TO DANCE WHICH
KRISSY AND NEDA!!!
EXACTLY WHAT DO YOU MEAN WHEN YOU SAY VIBRATIONS? IS IT LIKE YOUR BODY
SHAKES ? COULD IT BE SPASTICITY LIKE A JERKING MOVEMENT.
I TAKE 900 MGS OF NEURONTIN ALSO. I TAKE IT 300MGS
3TIMES A DAY THAT HELPS ME THAN ALL AT ONE TIME, BUT WE
HI NATALIE,
ITS BEEN AWHILE SINCE I CAME BACK TO THE LIST. IF YOU HAVE
BRAIN LESIONS FROM WHAT I WAS TOLD AND READ U MAY OR MAY NOT HAVE TM. SOUNDS
MORE LIKE MS BUT I AM GOING BY WHAT I READ AND WHAT MY DOCTORS TELL ME.
ITS VERY CONFUSING AND FRUSTRATING. DID YOU HAVE ANOTHER SPINAL TAP TO
KRISSY,
I WOULD NOT DISMISS HIM YET.
ITS HARD TO CHANGE DOCTORS WHO YOU HAD FROM YOUR ONSET ESPECIALLY
NEUROLOGISTS. OR NEUROS..WHERE I LIVE YOU CAN ASK FOR A EXTENDED APPOINTMENT
INSTEAD THE STANDARD ONE THEY GIVE YOU. WHEN I HAVE MORE THINGS I WANT TO
DISCUSS I ASK FOR THE EXTENDED
BARBARA, I CANNOT BELIEVE HOW MUCH YOU PAY FOR YOUR PHONE BILLS. HERE I
HAVE WHATS CALLED COMPLETE CHOICE FROM BELL SOUTH . IT HAS EVERYTHING EXCEPT THE
DSL FAST DIAL UP, IN THE PLAN. I PAY LESS THAN 70 DOLLARS A MONTH FOR ALL THE
THINGS YOU MENTIONED.
I AM NOW WAITING FOR THE DSL FASTER
I NEVER HEARD OF THROWING AWAY MRIS . MY HOSPITAL STILL HAS ALL OF MINE
FROM 14 YEARS TO COMPARE THEM TO.
IT MAKES NO SENSE TO THROW THEM AWAY WHEN THEY CAN BE OF SUCH A HELP. I AM
GLAD MY HOSPITAL DOES NOT HAVE THAT POLICY.
I THINK I WOULD ASK FOR MINE TO KEEP, THEY ARE YOURS AND YOU PAID
FRANK,
SOUNDS GOOD BUT IF YOU CAN HAVE NO ALCOHOL YOUR IN THE SAME
BOAT. IF I DRANK WITH MY MEDS IT WOULD KILL ME.
I KNOW YOU MEAN A SMALL AMOUNT BUT IT COULD HURTSOME PEOPLE.
I DO YOGA AND I TAKE GABETIN ALSO.
MEDITATION IS GOOD, I ALSO USE RELAXATION TAPES AND THE TINGLING REALLY
DOES NOT
SHARON, i was dx with tm 14 years ago. i have never had a lesion on my
brain. it was on my spine 2 of them and other back problems. i saw a ms
specialist all the tests where negative no ms. i was told that one day it could
turn into ms well it has not. the lesions or the same size no change.
GREAT NEWS ERROL AND YOUR DAUGHTER ABOUT DANE. WE WILL CONTINUE TO KEEP HIM
AND YOUR FAMILY IN OUR PRAYERS.
PAM
JILL I HAVE 2 ON MY SPINE. ONE IS AT T9 OTHER T 10. I HAVE HAD THEM FOR 14
YEARS WHEN DX WITH TM. I WAS TOLD THEY CANNOT CAUSE ANY REAL HARM. I DO HAVE
PROBLEMS WITH STRANGLING IN THAT AREA. I ALSO HAVE A FORM OF LUPUS THAT CLOTS
YOUR BLOOD. I AM ON COUMADINE A CLOT WENT TO MY SPINE. YOU CAN
ABOUT DANE
I JUST REJOINED THE GROUP. I WAS A MEMBER FOR A GOOD WHILE. I REMEMBER
ERROL. HOW SAD FOR THAT POOR BABY. ITS ALWAYS WORSE FOR SOMEONE ELSE. BUT WHY A
INNOCENT CHILD.
I WOULD LIKE TO KNOW WHAT IS GOING ON WITH DANE. MY PRAYERS OR WITH YOUR
FAMILY
MY FAMILY HAS BEEN IN TOWN SINCE LAST THURSDAY. I HAD MANY E-MAILS TO
ANSWER, BUT I HAD NOT SEEN MY SON AND MY GRANDKIDS SINCE KATRINA. MY WHOLE
FAMILY ARE ALL IN OTHER STATES BUT A BROTHER. I HAVE 7 BROTHERS AND SISTERS A
LARGE FAMILY . WE ALL LIVED WITHIN 30 MINUTES OF EACH OTHER EXCEPT
I HAD INJECTIONS FROM TOP OF MY SPINE TO VERY BOTTOM ON EACH SIDE, NOT
STERIODS. IT WAS PAIN MANAGEMENT IN HOSPITAL. IT WORKED FANTASTIC.
I CAN GO AND HAVE IT DONE WHEN I NEED IT. I HAVE A HIGH TOLERANCE FOR PAIN
HAVE NOT HAD IT DONE IN 3 YEARS.WHATEVER THEY GAVE ME WORKED WONDERS, THEY SAID
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