the uruagist put a catherer directly into my bladder just below the belly
button..i have to have the catherer changed once a month ..wear a leg bag
during the day and a overnite bag at nite...for me it was the best sulution...
- Original Message -
From: James Berg
To: Dalton
got tm 4/1/2004
male 73 at that time
am 80 now use a cane
live in penna.
- Original Message -
From: Janice Nichols
To: lynne myers ; tmic
Sent: Wednesday, February 27, 2013 7:39 PM
Subject: Re: [TMIC]
And I don’t want to either. As I said before, I was after the age and
igot both the day i entered the hosp. 4/1/2004 was paralized from the waist
down for a week after that started theropy spent a month in the hosp. 2006 was
paralized again spent a month in health south as a in patient got up and
using a cane thats where i am now
Hey group!
I don't usually ask about opinions dealing with myself, but more often about
concerns of other folks, but this time it's about me. Has anyone in our group
ever used chiropractic treatment after TM? I have had TM for 10 years and are
able to walk either unaided or with a cane or
Jude,
ARE YOU KIDDING ME!!! .?? . . . YOU HAVE BEEN ONE OF THE LONG STANDING MEMBERS
OF OUR TM INTERNET COMMUNITY! WE'VE BEEN WONDERING HOW YOU ARE!! IT'S GREAT
TO SEE YOU ON HERE AGAIN!! WE MISSED YOU!
Sue
- Original Message -
From: Jude Hoops
To: tmic-list@eskimo.com
Hello all
I've had a contact from another PA Tm'er who has asked me to look into a
medication called LARNETON. (www.larneton.com http://www.larneton.com/
). I'm not certain where he first heard about it, but he has asked me
to inquire to our list if anyone else has heard of it. I have
Hello all.again.
I've done a little more research on Larneton that I asked about in my
other e-mail. Seems this Gordon's Herbal Research Center thing is a
hoax. Apparently they also have other sites where they promise that the
same formula that cures everything from Guillian-Barre to
I don't know what the original post was as well, but. . . .
I have had 2 major abdominal surgeries in the last four years, and have
had TM for 9 years. I don't think my recovery would have been any
different if I didn't have TM. I did require a lot of pain meds because
of the severity of the
name robert diehl age now 77 live in doylestown,pa
i was 72 and got transverse meylitis and guillem bryee symdrum...that was april
1 2004
spent the whole month of april in the hospital
I was 49 when I got it July 28, 2000
Sue
Pennsylvania
-Original Message-
From: Janice Nichols [mailto:jan...@centurytel.net]
Sent: Friday, December 11, 2009 12:35 AM
To: tmic-list@eskimo.com
Subject: [TMIC] Age
Hey!
I have a request. I was talking to my neuro and he was curious
Sue Mattis - Harborcreek, PA (near Erie)
Co-chair of the PA support group with Pam Hoge
We are always open to getting together with folks from other states as
well. In fact
the first time I ever met with anyone with TM was back in 2001 in
Youngstown, Ohio
with some of the OHIO group. The
UNBELIEVEABLE!!! THIS IS TOTALLY AWESOME TO HEAR!!!
-Original Message-
From: Jim Lubin [mailto:jlu...@eskimo.com]
Sent: Monday, August 24, 2009 4:26 PM
To: tmic-list@eskimo.com
Subject: [TMIC] able to move slightly
The past two weeks I started feeling a tingling in my right lower
Hello all!
I have to say that Debbie Capen pretty much covered what was truly an
awesome experience for those of us who were blessed to be at Victory
Junction with the TM families. We were able to watch these kids take
part in camping activities that they might never be able to their entire
Speaking as one WITH TM, and not as a caregiver, I find it much easier
to understand where this man might have been coming from. It is very
possible that the evening might have literally taken every ounce of his
inner strength to get through and was truly done. Nothing more to
give. If
Hello group,
Can anyone tell me if Neil and Wendy Ross (Cole's parents) have a new
e-mail address? I've been trying to e-mail them about the Victory
Junction Gang Camp, and I haven't gotten any response to my e-mails.
Maybe my info is outdated.
Thanks all.
Sue
Amanda,
Each person has to decide for themselves if it is the right thing for
them. I have no idea what your limitations are because of TM, but I am
one of the walking-wounded as they say, and even though my limitations
are minor compared to most TM patients, I can tell you without a doubt
that
HELLO ALL
To make myself more clear, I should have said, if the whole thing is
legitimate (Part of the Johns Hopkins Project), then I'd be booking my
flight to Panama.
Sue
-Original Message-
From: Bob and Sue Mattis [mailto:bobsue6...@adelphia.net]
Sent: Tuesday, March 24, 2009
i have a hand held shower wand that shuts off ..my son got it at wal-mart
for me
i think it was under $30. in cost i like it very much ...when you shut it
off it drubbles out a little so when you turn it back on the water is warn
- Original Message -
From: gerry surette
It is great to hear from both of you. Has anyone had any word from
Errol in Australia???
Sue
-Original Message-
From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED]
Sent: Sunday, October 26, 2008 8:12 PM
To: [EMAIL PROTECTED]; tmic-list@eskimo.com
Subject: Re: [TMIC] Re: humble pie
Hey Jude!...(someone should make a song from those words!...ha ha)
WHAT WAS MISSED WAS YOU!
So glad you're home.and back with us!
Sue
-Original Message-
From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED]
Sent: Thursday, September 25, 2008 8:01 AM
To:
verses...have a good day everone one
GLAD TO HERE JUDE IS HOME AGAIN
- Original Message -
From: L T CHERPESKI
To: bob ; tmic
Sent: Tuesday, September 09, 2008 8:14 PM
Subject: Re: [TMIC] jude
Bob - 12 days in the hospital! How are you doing - are you ok Please
give us
please post the correct address for jude..i have read three different ones so
far
thank you all bob from pa.
Hello all
Does anyone have the exact name and address of the facility that Jude is
in?
Thanks!
Sue
-Original Message-
From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED]
Sent: Thursday, August 14, 2008 4:43 PM
To: tmic-list@eskimo.com
Subject: [TMIC] Fwd:
- Original Message -
From: bob
To: tmic
Sent: Thursday, July 17, 2008 7:24 AM
Subject: jude
has anyone heard how jude is doing..i sent her a get well card a while back..
then saw that she was back in the hospital...are there any updates about
her
was 10 minutes. What led up to the onset might
have been days in coming.
Sue
-Original Message-
From: Alton Ryder [mailto:[EMAIL PROTECTED]
Sent: Thursday, June 05, 2008 6:14 PM
To: Bob and Sue Mattis
Cc: TM List
Subject: Re: [TMIC] age at incident
Took 10 minutes to become paralyzed
July 28, 2000 is the DAY THAT WILL LIVE IN INFAMY. I was 49. Took 10
minutes to become paralyzed from the waist down (T12), and now one of
the walking wounded.
Sue M.
Now 57
-Original Message-
From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED]
Sent: Thursday, June 05, 2008 9:50 AM
To:
-Original Message-
From: Bob and Sue Mattis [mailto:[EMAIL PROTECTED]
Sent: Friday, January 04, 2008 3:39 PM
To: '[EMAIL PROTECTED]'; 'tmic-list-at-eskimo.com'
Subject: RE: [TMIC] Ringing in ears
Hi Patti!
I too have ringing in my ears. I have had TM since 7-28-00, and I can't
Sal,
The thing that worked best for me was water therapy. It improved
balance, stability and stamina. Not everyone has that type of therapy
available in their area, but if you do, it would be well worth looking
into. Keep in mind, that every person's TM is unique to them and not
everyone responds
Deana,
My TM did not affect my hands, however, I would say that eventhough your
local emergency room might not have a clue in regards to a TM issue, I
believe that is your best response if doctors are otherwise not
available. It's possible it's a problem not related to his TM, and
swelling, heat
Someone looking for Phran3que? He's with me. We've been sitting on my
back porch breathing in the aroma of the concord grapes ripening on the
vine...right here in Northwestern Pennsylvania.
Sue
-Original Message-
From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED]
Sent: Monday,
I've always fantasized that Phranque looked like James Garner. Guess
that gives away my age.
Sue
-Original Message-
From: Grace M. [mailto:[EMAIL PROTECTED]
Sent: Tuesday, September 04, 2007 7:12 PM
To: [EMAIL PROTECTED]
Cc: tmic-list@eskimo.com
Subject: Re: RE: [TMIC] OT hello?
Group,
Thanks for the responses to my request.I got what I needed.
Sue Mattis
Hello all!
I need to get a hold of Cole Ross's Grandma Carol. If anyone knows how
to contact her either via e-mail or phone, I would appreciate you
letting me know. It's very important, so I would appreciate hearing
back as soon as possible.
Thanks!
Sue Mattis
Co-Chairman
PA Support Group
Nothing is ever normal when pHran3que is not here...!
-Original Message-
From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED]
Sent: Tuesday, July 24, 2007 1:47 PM
To: Tracey L. Black; Grace M.; [EMAIL PROTECTED]
Cc: tmic-list@eskimo.com
Subject: Re: RE: [TMIC] no mail??
Thanks for
Hello All!
As part of the Pennsylvania Support Group, I received the following
E-mail and got permission from Carol to forward it to the group to see
if any of you have had any experience with IVIG (Intravenous Immune
Globulin). Have any of you heard of it, or have been given this
treatment?
Tim..
I don't think it's odd that three of you that work at the same place
all have these issues. There was someone on this list a year or two ago
from Ohio that had been working at a hospital that was getting renovated
and there were 3 or 4 people who were either diagnosed with TM or MS
during
This might be a good one for Frank to respond to, but I'll try to
explain how things worked out for me. I was initially paralyzed from
the waist down with a lesion at L-5. Over a period of months, with
extensive PT, I recovered to the point of walking with a cane. I did NOT
receive any kind of
Sally,
I've had TM since July of 2000 and I, like your husband, walk with a
cane. In the fall of 2000 flu shots were being given and I called my
Neurologist to find out whether I should get one or not. He strongly
recommended I get one and said anyone with a compromised immune system
should. He
Trudy..
Why on earth would you even consider leaving this group? This is THE
PLACE TO BE...don't you think? I can't possibly imagine any other
group could be as great as ours! Regardless whether it's TM or MS...to
me we're all in this together.
Sue Mattis
-Original Message-
From:
Hi,
Is anyone else besides me appalled with the remarks Rush
Limbaugh as made about Michael J. Fox?
Sue
no longer feel it because of the paralysis. L-5 was
where my lesion was.
Sue
-Original Message-
From: Bob and Sue Mattis
[mailto:[EMAIL PROTECTED]
Sent: Sunday, October 08, 2006 10:40 PM
To: 'Alton Ryder'; 'TM list'
Subject: RE: [TMIC] today's feat
I agree Alton. My onset was within less
You wake up in the morning and
look in the mirror and discover youve grown gills.
You have an uncontrollable urge
to water the lawn and go out after dark with a flashlight to catch nightcrawlers.
You spend way too much time in
the pet area at Walmart talking to the goldfish
Hello group,
Ive had another contact from another Pennsylvania TMer who asked me if I knew what medications could
be giving for the banding and tightness.
I have not personally dealt with that issue, so I told her I would put
out a note on the list and ask if I could get response from
Hello group,
A couple months ago I had a gentleman contact me from near Philadelphia who has had
TM since Oct./Nov, and you might remember he asked me
to post a question about shellfish. Anyhow, he called me yesterday and asked
if I would put up a post on the list inquiring if there are
Hello!
I got a phone call on Tuesday night from a newbie
to TM who found my name on the TMA website under PA Support Group. He developed
TM in November and has recovered to the point of using a walker. One of the questions he asked me, which
I in turn am asking all you experts out there
45 matches
Mail list logo
