I experienced flulike symptoms, five days before I went into the hospital.
Naomi
C-4 quad since July 2, 2005
** See what's free at http://www.aol.com.
Candis,
I asked that question a while ago. I have had Crohn's disease for a few
years now. When I went to my gastroenterologist after I was diagnosed with
TM,
she appeared to be quite concerned, which led me to believe that the Crohn's
had something to do with my TM. She assured me
Kevin,
Give them hell! And as for the ex-president of the board, God don't like
ugly!
Naomi
C-4 quad since July 2, 2005
** See what's free at http://www.aol.com.
I agree. The small print is killing me.
** See what's free at http://www.aol.com.
Natalie,
I was diagnosed with TM about a week after I had flulike symptoms. I was
out of state, attending a wedding reception, when I felt a very sharp pain in
my neck and left arm. I immediately told my husband I need to go to the
hospital. By the time we made it to the elevator, my
Patti,
My doctors told me that someone with TM will only have a re-occurrence if
they had underlying illness such as, MS, Sarcoidosis or some other autoimmune
disease. I can't imagine going back through what I went through(total
paralysis from neck down). It was hard enough to survive
Deb,
So sorry to hear of your pain, but I am glad to hear that you are able to
get a comfortable night sleep. Have you lost any body function after you
gained it back?
What type of work do you do? I agree that continuing to work and trying to
stay busy, helps with the pain. I am
Candy,
I just asked about the neurologists, because I was curious. I haven't had
any issues that haven't been handled by my Primary Care physician or my
Physical Medicine and Rehab doctor. I haven't had any health issues that were
of
concern, except constant UTI's. If I have a problem
Jude,
Good for you! It's about time someone gets something they need. I am so
happy that you are getting the help that you need. I am still working on it,
and hopefully there will be an end to my fight, and I'll get what I need also.
PS. Whereever did to find that cute hug at the end
Does everyone here on this site have a neurologist? I have only seen the
neurologist once since I let the hospital, which was in November 2005. My
healthcare is managed by my Physical Medicine and Rehabilitation
doctor(Physiatrist). Any problems that I have had since my diagnosis in July
Gunny,
I have been on Lyrica for nearly a year now. Without it I wouldn't be able
to function. I tried Neurotin, and the whole gang of other pain medicines.
Lyrica was the only thing that worked for me. I don't understand why your
doctor would not prescribe it for you. The pain that
Ann,
Thank you for the suggestions on building a book stands. It sounds simple
enough, now I just have to get someone to follow the directions. I really
miss reading and listening to books on tape, just doesn't do it for me.
Thanks
again.
Naomi
C-4 quad since July 2, 2005
Ellen,
Thank you for sending me an e-mail. It's too bad you have to be a member of
this group, but lucky for us that you are. I can't even imagine being in a
coma for six weeks, only to await paralysis. TM affects us all in different
ways. I'm so glad to hear that you did not have to
Can do cautiously Alton,
I believe the vascular insufficiency would be an issue in TM, if TM has
caused paralysis of the legs, or paralysis of one whole side of the body. My
TM
has caused me to be paralyzed on the right side of my body and I am required
to wear compression hose to
Jude,
I use the Dragon Naturally Speaking voice recognition program. It's a voice
dictation program. I use it to type my e-mails or anything else that needs
to be in print. I was taught how to use it in Rehabilitation Engineering at
University of Michigan Hospital, while I was a
Jude,
I was on 6 A rehab at U of M from July to November 2005. My occupational
therapist name was Patti, and my physical therapist name was Sarah. My doctor
was Dr. Chito. I met some pretty nice people while recuperating. I think
that if I had been someplace else and did not have the
Teri,
Welcome to the TM group. Sorry you have to be a member of this group, but
we welcome you.
My name is Naomi. I am 50 years old and was diagnosed with TM in July 2005.
I was totally paralyzed until I received five sessions of plasmapheresis,
after which I was able to use my left
I have been taking Cymbalta for approximately a year. I can't really tell
you what the side effects are, because I take so many medications at once . I
know the anti-depression part does work. I'm not sure about how much the
pain part works, because I take a variety of other pain
Gilly,
No, I do not have anyone who's handy that can make me a book stand. I'm
just going to try to find one to buy.
As far as jury making is concerned, I have the know how and the material. I
just don't have the hands to do it. So I'm going to teach her how to do it
for me. Thanks
Gilly,
I really envy you for being able to make jewelry. And yes, I'd know how
soothing it can be for the mind. I'm trying to tell my granddaughter how to
make jewelry. She is 11 years old, and love to design her own jewelry.
Yes, I can read books on line, it's just not the same as
Jude,
If you are using AOL, your address book should be saved from your AOL
account, not on the computer. Sorry, I don't know Mary's e-mail address.
Naomi
C-4 quad since July 2, 2005
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Find out more about
Patti,
Sorry, we had to meet this way, but I am glad to have a Michigander on the
messageboard. My memory is not what it used to be, so I'm not sure if I told
you about myself.
I was stricken with TM in July 2005. My lesion is at C4 which left me a
Quad, unable to use my hands or legs.
Jude,
I hope by now you have received your new wheelchair. I have been in a power
wheelchair since the onset of my TM. Because I am a C4 Quad, I have just
enough hand movements to operate my power chair.
I don't do much doing the day. Once I get in my wheelchair, I'm usually on
the
Jude,
Feel free to e-mail me anytime you feel. You can put me in your AOL Buddy
list and instant message me also. I am on the computer most of the time, and
I'll be happy to talk to you at any time.
Naomi
C-4 quad since July 2, 2005
BRBRBR**BR AOL
Kim,
I am glad to hear from someone from the Detroit area. I grew up in Detroit,
my entire life, but now live in Ypsilanti (Ann Arbor). I'm sorry you have
to be a member of this group. I was diagnosed with Transverse Myelitis in
July of 2005. You can e-mail me at [EMAIL PROTECTED]
Regina,
As bad as things seem, they could be worse. Thank the good Lord that you
are still alive!
My TM, left me a C4 quadriplegic. I am unable to care for myself at all. I
have to have someone with me 24 hours a day, seven days a week. My attack
was sudden. I was totally paralyzed
Hey Jude,
So glad to see you're back on the list. You've been missed! I don't e-mail
you at your e-mail address, but I was used to reading your comments and
advice on the message board. Glad you're back.
Naomi
BRBRBR**BR AOL now offers free
email to
Gary,
I am very sorry to hear about your uncle. He was pretty young, and although
he was going through quite a bit himself, he still found it in his heart to
ask about how you were doing. He must've been a very caring person.
Still snowy in Michigan,
Naomi
C-4 quad since July 2,
Patti,
I take 400 mg of Lyrica twice a day. My insurance will only pay for a 25
day supply.
Naomi
C-4 quad since July 2, 2005
Alton,
Why is your pump beeping for a refill? You don't get it refilled every six
months? I hope you don't run out of medication. That can be very dangerous.
Naomi
C-4 quad since July 2, 2005
Frank,
I am very aware of all the things that you've mentioned. I did my homework
thoroughly before deciding to get the pump. I got my pump to decrease my
spasticity, not pain. I am a C-4 quadriplegic who was originally paralyzed
from
the neck down. I am currently paralyzed on the
Gary,
Neurotin and Lyrica are both used for nerve pain. I took Neurotin for a
short period of time. It made me to lethargic, so I switched to Lyrica, which
I
am currently taking.
I took oral Baclofen, but they could not give me a dose high enough to
really help me, so I had the
I really don't remember. I have the pump now.
Naomi
C-4 quad since July 2, 2005
Sharon,
I empathize with you. I live in the Detroit area, and it has been extremely
cold here as well. I agree, TM and cold weather does not go together.
Naomi
C-4 quad since July 2, 2005
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