Message-
From: Gerry Surette [mailto:[EMAIL PROTECTED]
Sent: Saturday, May 10, 2008 8:05 AM
To: [EMAIL PROTECTED]
Cc: tmic-list@eskimo.com
Subject: RE: [TMIC] Dr's visit, just a follow up
Regina; I take baclofin for spasticity I can not walk without it. re
fatigue; it is a side effect of your
take...it can be a
very difficult balance.
Rob in New Jersey
From: Regina Rummel [mailto:[EMAIL PROTECTED]
Sent: Saturday, May 10, 2008 12:59 AM
To: tmic-list@eskimo.com
Subject: [TMIC] Dr's visit, just a follow up
I saw the neurologist yesterday. She
I stick a piece of a sugar-free cough drop into my cheek as I go to
sleep. Causes just enough saliva to keep the mouth from becoming
leather.
Alton Ryder
On May 12, 2008, at 7:4144 AM, Butcher, Bernard G (NY80) wrote:
... I also take Tizanidine (same as Zaniflex) and dry mouth is a
big
Disaboom is a website community
www.disaboom.com
--
today God bless you regina and keep trying gerry
From: Regina Rummel [EMAIL PROTECTED]
To: tmic-list@eskimo.com
Subject: [TMIC] Dr's visit, just a follow up
Date: Fri, 9 May 2008 21:59:29 -0700 (PDT)
I saw the neurologist yesterday. She suggested we increase the Neurontin
to 900mg 3 times
Regina,I have been exactly where you are now what a bummer. I too am
going to the top neuro in the area, but he no longer has time for me. In
fact I came in for an appointment and it wasn't with him anymore my year was
up and the diagnosis was TM/MS so now I am with his Nurse Practioner...
pushing myself.
Linda E.
- Original Message
From: Trudy Ogilvie [EMAIL PROTECTED]
To: Regina Rummel [EMAIL PROTECTED]
Cc: tmic-list@eskimo.com
Sent: Saturday, May 10, 2008 1:05:34 PM
Subject: Re: [TMIC] Dr's visit, just a follow up
Regina,
I have been exactly where you are now what
What's wrong with me? Fatigue is a 10 most of the time. Chronic
fatigue is truly a handicap. I I honestly feel that it's because
we both know that there is nothing that can be done for me. That
we're both waisting our time.
.
There is something that can be done! I'm sure
So, my dear Akua,
I must ask of you, what is the meaning of your email? I am getting
mixed messages. Are you filled with hope or dispare?
Hope, Jude. Hope is my middle name.
As I wrote there is something that can be done.
What was mixed about my message?
Though I know that my solutions
I saw a news clip a few weeks ago regarding memory loss and bladder control
meds. It refers to older patients, however, my worse loss of memory time
with TM was also during the time I was taking Detrol LA. It might have been a
coincidence, but the FDA is making the makers add memory loss to
From: Akua [EMAIL PROTECTED]
To: [EMAIL PROTECTED]; tmic-list@eskimo.com
Sent: Saturday, May 10, 2008 5:43:19 PM
Subject: Re: [TMIC] Dr's visit, just a follow up
So, my dear Akua,
I must ask of you, what is the meaning of your email? I am getting mixed
messages. Are you filled with hope
Thanks for the affirmation,Jenna!
And thank you for mentioning Ambien CR!
My best friend has sleep difficulties and
I will mention this as something she can
explore.
Congrats on being down to just one RX!
that's the ticket!
Best to you,
Akua
Hi Akua,
I have to agree with you. I read what
]
To: Linda Egli [EMAIL PROTECTED]
Sent: Saturday, May 10, 2008 5:19:06 PM
Subject: Re: [TMIC] Dr's visit, just a follow up
hi linda,
you stated you took 4AP. did you notice anything difference in your body?
good or bad?
Linda Egli [EMAIL PROTECTED] wrote:
Regina.
Have you tried
I saw the neurologist yesterday. She suggested we increase the Neurontin to
900mg 3 times a day for a week, then increase to 1200mg three times a week. I
asked about Lyrica in spite of my concerns since some of you didn't do well
with it. She said Lyrica was similar to Neurontin, may work
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