You may want to investigate the treatments that Dr Dietrich Klinghardt
uses for chronic Lyme patients. He is
also a chronic lyme patient himself. He is brilliant and at the
forefront of treating the whole person as well as being forward thinking
in his methods. He gets mostly the toughest cases and is highly thought
of in the Lyme Disease world. He is in the Seattle area, but works with
LLMD all over the country and trains doctors in his methods.
There is a disorder called Pyrroluria that he finds in some 80% of those
with LD which is treated with Vitamins and Minerals. I recently started
a list on this disorder so rather than take up space here I will give
you the list address. You can check out Dr K's folder in the links
section or just search on Dr K to find out more about his approach to
treating Lyme. There may be a connection between Pyrroluria and the
immune system challenges of many degnerative diseases. Please see the
list description for more information.
http://health.groups.yahoo.com/group/Pyrroluria
Scott Forsgren is a Lyme patient of Dr K and has written extensively on
his experience. You may want to write to Scott personally, I think he
might have a lot to share with you. Here is a recent article he wrote on
Pyrroluria:
Kryptopyrroluria (aka Hemopyrrollactamuria): A Major Piece of the Puzzle
in Overcoming Chronic Lyme Disea Public Health Alert, May 2010, Vol 5
Issue 5
http://www.publichealthalert.org/pdf/2010_05.pdf
Dr Klinghardt's Power Point ~ Lyme In Autism 2009 Conference. Excellent
and fairly quick read.
This is the Power Point that he used in his presentation (video link below)
http://web.mac.com/thriiive/Summit5/Protocol_files/KPU%2009.ppt
This is an excellent video although I had trouble with it yesterday so
it may not play all the way through
for you. Dr K talks about Lyme, Pyrroluria and Autism. Treatment and
detox are major topics.
Dietritch Klinghardt, M.D.’s Presentation on HPU, Lyme Disease and Autism
LIA Foundation’s 2009 Annual Conference
http://planetthrive.com/2010/04/hpukpu-protocol-for-lyme-and-autism/
Hope you find some useful information in these links,
Janet
David AuBuchon wrote:
Hi All,
I'm new to this list. I've been following every CS group on yahoo, but
they all seem pretty dead! This one looks like the goldmine I've been
looking for!
I'm here to learn about all sorts of innumerable details of CS. I am
not "in the biz", but have not ruled out the possibility that some day
I might be. Hence I want to learn, learn, learn.
I have Lyme, bartonella, babesia, mycoplasma, candida, and I don't
know what else. A regular swamp. I believe Lyme is minimal now and
candida is essentially a non issue now. Bartonella I think is the main
enemy by far right now. I have been sick since age 16, and just kind
of lived with it until age 22. I couldn't live with it anymore. It was
do or die. In what I now think was truly a race for my life, I finally
got diagnosed with Lyme at age 23. Somehow I finished grad school. I
am now 25, and too sick to work. I have a B.S. and M.S. in industrial
engineering from a top university.
I've done all sorts of crazy therapies. The ones that have helped the
most for my particular case:
1. Coconut oil absolutely ransacked candida where as nystatin and
diflucan had no apparent effect at all.
2. Doug coil rife machine herxed and improved on Lyme frequencies and
eventually stopped being effective. Presumably because the other
infections are the bad guys left.
3. Homemade ionic silver. Sometimes as much as 32 oz a day. Somewhat
regularly for a few months. Then it stopped being effective orally. If
I don't take it for 4 or 5 days, I feel some bugs "edging up". I take
CS, then it knocks that feeling out for 4 or 5 days. I think I might
slowly head backwards if I did not keep doing this with the CS.
In general, I tend not to respond to treatments. I am the guy who
wishes he could get something to make him herx, but just can't.
The latest development in my treatment:
IV silver nitrate
I have had two treatments so far. First one have me a herx that was
almost literally identical to flu. Fever, chills, weakness, etc. I
have never in my life had a herx that felt like the immune system was
actually doing its job! The second treatment was lower dose cuz I was
scared after the first treatment. No flu symptoms but more "usual"
herx symptoms (fatigue, depression, brain fog). Round three is this
friday!
~David
p.s. to reply to messages, do I just click "reply" to it when I get
messages in my gmail inbox? I subscribed to the digest.
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