Gunny,I completely understand with you that this is the way most doctors are. But I refuse to let another doctor do this to me. The way I would like to see this data-base operate is for us, the Tm patient, should have a way to use the data-base just the same way that the doctor does. This way when we have an appointment with a doctor, we could take with us the information that we need contained in the data-base that deals with our problem so we can physically give this information to the doctor and then show the doctor what is involved in accessing the data-base on Transverse Myelitis, ADEM, MS, and all of the diseases contained in the scope of sais data-base. Then you can give this information to the Dr. and ask him calmly, " This is what I am living with everyday, do you have the intention and desire to work with me to help me. And are you willing to do the research into my disease. Can I count on you, Doctor, to access this web-site so that you may be better informed on a! ll the available information we have gathered concerning our vast array of symptoms that come along with this disease or do I need to find another doctor who is willing to do the research that will be called on you to do." This is exactly the way I would handle this problem. I think that his would get the results that you are looking for. You are going to be required to stand up for yourselves in these matters or get ready to be treated in the fashion that you are already being treated with. Thats the way I see it. Rick in Tennessee. God bless us all
-- GOD BLESS US ALL> -------------- Original message ---------------------- From: [EMAIL PROTECTED] > > Rick: > > Yeah, probably a wate of time. As I mentioned before, all the Doctors I > sent invitations to did not respond. That tells me, they have no interest. I > think they would prefer to keep thier patients who have TM or MS under thier > control. You know, these so called Doctors value thier time and expect to > get > paid for it. Asking them to take a survey or act upon one or more of thier > patients on that patients behalf is time consuming.90% of Physicians out > there > are in the business of medicine for the money. I don't think many of them > care about a cure which may or may not put them out of business. Or, for > that > mater, looking at a new treatment that may help an individual patient. > > It's a dirty damn shame, but 12 years into this has taught me this > lesson. Personally, my Doc at Cleveland Clinic probably would participate as > he > and Doug are asshole buddies now, and, he has a genuine interest in this as > he > does research with Doug. As for most General Practitioners, unles they are > specifically interested in this field, they wont participate. That's what my > experience has taught me. I may be wrong, but I don't think I am. > > > > **************Start the year off right. Easy ways to stay in shape. > http://body.aol.com/fitness/winter-exercise?NCID=aolcmp00300000002489
