Jim, Debbie couldn't have said it any better.  It was such a priviledge to meet 
you in Seattle those few years back.  And to share (even over the internet) 
your excitement to going to North Carolina last year was great.  Thanks for all 
you have done for us and all you will continue to do.

If you were donw here in So Cal today you would not have needed to try and stay 
warn.  In my neck of the woods - there are a couple of trees - it was triple 
digits, as I'm sure it was at Debbies.

I can't believe it's 19 years of TM for you.  Isn't it amazing when you think 
about it how it get's harder to remember life without TM?  So Happy Anniversary!


  Love,
  Cindy
  ----- Original Message ----- 
  From: Deborah Nord Capen 
  To: tmic-list@eskimo.com ; Jim Lubin 
  Sent: Saturday, May 17, 2008 5:21 PM
  Subject: Re: [TMIC] 19 year TM Anniversary


  Hello,
  For all of you who have recently joined the list, you need to know what a 
huge asset that Jim Lubin is to the TM community.  Without Jim, none of us 
would have met each other, as he started this list.

  If you have a few days to spare, please check out this website 
  http://www.makoa.org/jim   This site lists Jim's accomplishments and 
publications where he has been featured.  He is an inspiration to us all, that 
you can take whatever life throws at you.  Jim is the ultimate example of 
somebody being thrown a huge lemon tree and making lemonade for the entire 
world.

  Jim is the only officer of the TMA that works at this job full time.  He 
spends his days at the computer, looking up links to share with us for 
improving our lives.  He is constantly updating the TMA website 
(www.myelitis.org) with the latest articles that Dr. Kerr and his entire staff 
are publishing.  He has even made the website easy for anybody in the world to 
read, as it is translated into many languages.  If you are curious about the 
flags across the top of the main page, click on one of them.  The page will be 
translated into the language of that country.

  Jim is probably one of the best website builders in the world, and I think he 
would blow Bill Gates out of the water:-)

  And to know that he does all of this just using his sip-and-puff straws to 
maneuver around the screens is truly unbelievable until you have seen him in 
action.

  Thank you Jim for your years of service to all of us with TM, and we hope 
that you will be serving us for many, many more years!

  Love,

  Debbie



    ----- Original Message ----- 
    From: Jim Lubin 
    To: tmic-list@eskimo.com 
    Sent: Saturday, May 17, 2008 2:15 PM
    Subject: [TMIC] 19 year TM Anniversary


    On May 17, 1989, I became paralyzed from the neck down and dependent on a 
ventilator to breathe due to Transverse Myelitis. I was 21.

    I woke up with a pain in my shoulder. Went to work and about 30 mins later 
the pain got very intense. I suddenly could not stand then stopped breathing. I 
later found out that my heart stopped and it took awhile for them to stabilize 
me to even transport me to the hospital a few blocks away. The doctors had no 
idea what had happened to me. initial thought were possibly a stroke, lyme 
disease, or Guillain-Barre Syndrome. I was in and out during that time, could 
not talk, only remember bits. After about 2 weeks I had a MRI and was given the 
diagnoses of Acute Transverse Myelitis.

    I was in ICU until July 31 then transfered to rehab. In rehab I was treated 
as a person with a spinal cord injury. I had physical therapy which consisted 
of giving me range of motion and practice driving my sip and puff operated 
wheelchair. In speech therapy and occupational therapy I learned morse code to 
access the computer. I practiced typing and played tetris and chess. In 
October, I was able to leave the hospital for the first time and went to see 
the Batman movie. I started going to movies about once a week. The nurses 
always tried to get the other patients to go out when I went because I was the 
only vent dependent high level quadriplegic and enjoyed going out. Others were 
paraplegics, having problems dealing with their condition. I was in rehab until 
January 31st.

    I've been paralyzed most of my life. Wow how time flies.



    ----
    Jim Lubin               
    [EMAIL PROTECTED]
    http://makoa.org/jim 
    disAbility Resources: http://www.makoa.org




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