Hi Jude - Great to hear from you - hope & pray you are better. I have posted from time to time, but I don't know if I always get through.
My life (with Mr. MS) now is: get up, go to work (using walker), come home (totally exhausted) eat, then bed, & do it all again. On weekends, rest up as much as possible for next week. The positive effects are that I feel better for a while, a month or two, then after 3 months get another dose. I also do it because my neuro recommends it (?) I think it's worth it. Plus up until now, I get it done at home. What's a "dose pack"? After the fourth day, I have no pain really, just ill, like, flu-ish - I take two naps per day for two or three days, then I begin to come back to "normal" Bernie ________________________________ From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] Sent: Friday, November 14, 2008 3:39 AM To: Butcher, Bernard G (NY80); TMIC-LIST@eskimo.com Subject: Re: [TMIC] Question from Randy Hello Bernie It has been ages since we have heard from you. What has been going on in your life? You always have such interesting stories to tell and new ideas you say we ought to try. What is the big idea about Solu-Medrol? What kind of positive effects do get from it? Isn't is comparable to a "dose-pack"? How bad is the pain on the fourth day? I figure that it must be worth it. God Bless, Jude In a message dated 11/12/2008 2:26:12 P.M. Eastern Standard Time, [EMAIL PROTECTED] writes: Diagnosed with TM in 2002, MS in 2008. But I was getting it before the MS diagnosis. Last time I got it was 9/08, due next month. The sick effect goes away completely in a week, then I feel better. Overall, I don't know if it does anything, but it is supposed to reduce inflammation in my spinal cord and nerve myelin, and therefore prevent damage. Bernie -----Original Message----- From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] Sent: Wednesday, November 12, 2008 1:55 PM To: Butcher; Butcher, Bernard G (NY80); Jenna; TMIC Subject: Re: RE: [TMIC] Question from Randy > Yes, I get this infusion every 3 months, 1G/day for 3 days. It's > prednisone. For me, I get a bit sick after the fourth day, but my neuro > says that that is not the norm - just me. After that I feel pretty good, > stronger. Bernie, That'sa lot of medication!! For what disease do you get that much Solu-Medro?? Have you started to get the side effects? Good Luck F ________________________________ Get the Moviefone Toolbar <http://pr.atwola.com/promoclk/100000075x1212774565x1200812037/aol?redir =http://toolbar.aol.com/moviefone/download.html?ncid=emlcntusdown0000000 1> . Showtimes, theaters, movie news & more!
