Re: [TMIC] Lack of Communication

[kimr1999]

Same here! my feet burn 24/7, they fell like there in grease frying all the time. I can not take socks or shoes on my feet, even the blankets oin the bed hurt them.

-------------- Original message from "Janice" <jan...@centurytel.net>: --------------

Can we switch problems?!    I also love St. Crois Falls, Wis.   I have relatives there and it is beautiful!

----- Original Message -----

From: Patricia Cooley

To: 'jrushton' ; 'Janice' ; 'tmic'

Sent: Wednesday, April 08, 2009 3:50 PM

Subject: RE: [TMIC] Lack of Communication

HI JANICE:

I DIDN’T GET YOUR ORIGINAL POST ABOUT BEING WARM ALL THE TIME, BUT DID GET JEANNE’S ANSWER TO YOU.  I HAVE THE COMPLETE OPPOSITE PROBLEM.  I AM COLD BRRRR!  ALL THE TIME.  THE WORST ARE MY FEET.  THEY FEEL LIKE A BLOCK OF ICE MOST OF THE TIME.  THIS WINTER I HAVE BEEN MEISERABLE.  I HAVE HAD TO HUDDLE UNDER BLANKETS WHENEVER I AM SITTING STILL FOR A WHILE.  EVEN LAST SUMMER WHEN WE HAD THE AIR CONDITIONING ON, I HAD TO HAVE A SWEATER.  I HAVE BEEN TOLD TM SCREWS UP YOUR INTERNAL THEMOSTATE.   I DON’T WANT TO TAKE ANY MORE MEDS SO WILL JUST KEEP A SWEATER HANDY WHEN IT IS TIME TO HAVE THE AIR ON THIS SUMMER. 

TAKE CARE, JANICE.

 

 

PATTI IN WISCONSIN

 

 

 

 

 

From: jrushton [mailto:jrush...@columbiaenergyllc.com]
Sent: Wednesday, April 08, 2009 9:08 AM
To: Janice; tmic
Subject: Re: [TMIC] Lack of Communication

 

Hi, Jan,   It looks like we TMer's are back in business with all of the notes going back and forth and your temp. problem is one of the main subjects right now!  I'm so glad we're back in business as I miss you all when we take our 'naps' as we do off and on.   I'm off to stay with my little Sis for a couple nights so we can meet up with my big Sis and go to our monthly '60's Chicks' luncheon in Grandview which is where we graduated from.  All Grandview 'chicks' no matter what year they graduated try to meet and we have lunch, chat for a couple hours and off we go.  It is really a special time as we have all learned how special life is and is not to be taken for granted. Some we haven't seen since graduation or longer.  Take care, all!  Jeanne in Dayton   -------Original Message-------   From: Janice Date: 4/7/2009 9:52:58 PM To: transverse myelitis Subject: [TMIC] Lack of Communication   Hey Guys!!!      Sounds like everyone is really ready for SPRING!    I am really ready to dig my hands into the dirt and  get my flower pots ready for summer.    I can't plant in the ground anymore, but I sure go nuts with my pots!    We have already planted pansies and they are looking great.   Won't be long for spring.   Got another question for you all.      Do you have a problem with all of a sudden getting too hot  -  and no one else is?   It isn't hot flashes, had a complete hysterectomy over 20 years ago.   This just started since TM (2007).   My doc has given me patches of clonidine.  You change it every week and it does help - doesn't cure it, but it helps.   I am dreading warm, humid weather because that is when it is the worst.  We live in Missouri and the summers get pretty warm and humid.    But we keep our house pretty cool in the winter too.    I really notice it when I am more active. What about you all?   I have only been on the site a couple of months, but I really miss your "chatting" when it is quiet.    I know every one of us has a lot to deal with, some more than others.   But, when we are emailing, we are all on level ground and getting to know the real person, not just the TM person.   I have many friends, but I count myself very fortunate to have found you all.   Janice