Sorry, no suggestions. Again, it is such a good feeling to know that many of
my "problems" are similar to you all. I used to think it was all in my head.
I would pull my gown or a blanket up my body and it would send spasms,
especially in my torso, for a few minutes and then it would settle down.
Wonder if eventually it will go away. Sure hope so for all of us. I
have no problem wearing shoes as far as pain goes, but it feels good to get
them off. I am going to have to give away a lot of my shoes because I
can't wear heels anymore. I do not want to wear tennis shoes in the summer -
too hot. So, I will have to get sandles that have no
heel and give some support. I intend to start clearing out my closet of shoes
next week. Oh well, at least I have 2 feet - even if
I can't "dress" them up anymore. Janice
----- Original Message -----
From: L T CHERPESKI
To: Janice ; Patricia Cooley ; 'jrushton' ; 'tmic' ; kimr1...@bellsouth.net
Sent: Thursday, April 09, 2009 8:55 PM
Subject: Re: [TMIC] Lack of Communication
I am exactly the same! So what do you do about shoes? I arrived at my
Rheumatologists office in flat open sandals in 8 inches of snow this winter.
He looked down at my feet and said "I don't even need to ask"
Also it hurts to have my very soft sheets touch me. I know there are a lot
of us who have this challenge. Suggestions anyone? Thanks
Linda (Idaho)
----- Original Message -----
From: kimr1...@bellsouth.net
To: Janice ; Patricia Cooley ; 'jrushton' ; 'tmic'
Sent: Wednesday, April 08, 2009 7:24 PM
Subject: Re: [TMIC] Lack of Communication
Same here! my feet burn 24/7, they fell like there in grease frying all the
time. I can not take socks or shoes on my feet, even the blankets oin the bed
hurt them.
-------------- Original message from "Janice" <jan...@centurytel.net>:
--------------
Can we switch problems?! I also love St. Crois Falls, Wis. I have
relatives there and it is beautiful!
----- Original Message -----
From: Patricia Cooley
To: 'jrushton' ; 'Janice' ; 'tmic'
Sent: Wednesday, April 08, 2009 3:50 PM
Subject: RE: [TMIC] Lack of Communication
HI JANICE:
I DIDN’T GET YOUR ORIGINAL POST ABOUT BEING WARM ALL THE TIME, BUT DID
GET JEANNE’S ANSWER TO YOU. I HAVE THE COMPLETE OPPOSITE PROBLEM. I AM COLD
BRRRR! ALL THE TIME. THE WORST ARE MY FEET. THEY FEEL LIKE A BLOCK OF ICE
MOST OF THE TIME. THIS WINTER I HAVE BEEN MEISERABLE. I HAVE HAD TO HUDDLE
UNDER BLANKETS WHENEVER I AM SITTING STILL FOR A WHILE. EVEN LAST SUMMER WHEN
WE HAD THE AIR CONDITIONING ON, I HAD TO HAVE A SWEATER. I HAVE BEEN TOLD TM
SCREWS UP YOUR INTERNAL THEMOSTATE. I DON’T WANT TO TAKE ANY MORE MEDS SO
WILL JUST KEEP A SWEATER HANDY WHEN IT IS TIME TO HAVE THE AIR ON THIS SUMMER.
TAKE CARE, JANICE.
PATTI IN WISCONSIN
From: jrushton [mailto:jrush...@columbiaenergyllc.com]
Sent: Wednesday, April 08, 2009 9:08 AM
To: Janice; tmic
Subject: Re: [TMIC] Lack of Communication
Hi, Jan,
It looks like we TMer's are back in business with all of the
notes going back and forth and your temp. problem is one of the main subjects
right now! I'm so glad we're back in business as I miss you all when we take
our 'naps' as we do off and on.
I'm off to stay with my little Sis for a couple nights so we can
meet up with my big Sis and go to our monthly '60's Chicks' luncheon in
Grandview which is where we graduated from. All Grandview 'chicks' no matter
what year they graduated try to meet and we have lunch, chat for a couple hours
and off we go. It is really a special time as we have all learned how special
life is and is not to be taken for granted. Some we haven't seen since
graduation or longer. Take care, all! Jeanne in Dayton
-------Original Message-------
From: Janice
Date: 4/7/2009 9:52:58 PM
To: transverse myelitis
Subject: [TMIC] Lack of Communication
Hey Guys!!! Sounds like everyone is really ready for SPRING!
I am really ready to dig my hands into the dirt and get my flower pots
ready for summer. I can't plant in the ground anymore, but I sure go nuts
with my pots! We have already planted pansies and they are looking great.
Won't be long for spring.
Got another question for you all. Do you have a problem with
all of a sudden getting too hot - and no one else is? It isn't
hot flashes, had a complete hysterectomy over 20 years ago.
This just started since TM (2007). My doc has given me patches
of clonidine. You change it every week and it does help -
doesn't cure it, but it helps. I am dreading warm, humid weather because that
is when it is the worst. We live in Missouri and the summers get pretty warm
and humid. But we keep our house pretty cool in the winter too. I really
notice it when I am more active.
What about you all?
I have only been on the site a couple of months, but I really
miss your "chatting" when it is quiet. I know every one of us has a lot to
deal with, some more than others. But, when we are emailing, we are all on
level ground and getting to know the real person, not
just the TM person. I have many friends, but I count myself
very fortunate to have found you all.
Janice
