thanks Akua,
I have to agree with you. and a better approach would have been " hi, I'm a TM survivor too, your accomplishments are really inspirational..." I can vouch for the fact that those openings are really exhausting and the last one I did was years before TM.
On Jun 27, 2009, at 12:09 AM, Akua wrote:

Gee, I guess I am a curmudgeon. I see no reason why anyone *must* answer questions from strangers. It's not "getting the word out" since most people have no manners, are nosy, crass and insensitive. I don't see his behavior as "rude" at all... at least not as described.
.
After all the public time and on his way away, he's asked if he has a disease that he has said he
has and because he doesn't want to engage this is considered rude?

The asker-- already knows about TM!

Especially with the death of Michael Jackson, I feel sensitized to the strange expectations that people
have, the demands and the intrusions.

This artist has many "high profile" nights --- he was there to present his ART not his ILLNESS!

When I first performed again after TM left me in pain paralyzed and wheelchair bound, the last thing I wanted to talk about was TM. Maybe you two feel differently because you are both still mobile.
Creating is my respite from pain and limitation.

I've lost several art forms because of TM. I can no longer make hot glass and my papermaking, which is plant based has been severely curtailed. It is hard to play the tenor sax in the wheelchair. I lost a publication -- I was hospitalized when my final edits were due to the publisher....

TM is an agonizing hell that I would not want to have reenter in some rare transcendent moment,

I sure wish I had his limo and assistance getting to and from events. LOL!

Akua





You know there are some days after working over 8 hours, going to the pool 3 days a week and swimming 1/2 miles I am "DONE" also but NEVER, NEVER be that rude or cold to anyone!! anytime someone wants to ask about the wheel chair, my walker, ect I am nothing short of a chatter box!! lets get the word out! and if on this night he had some type of "high profile" night he shold have been an advocate for all of us! -------------- Original message from T Kanon <sseco...@yahoo.com>: --------------

Last night was the opening of this artist's exhibit at the Brooklyn Museum and I attended. Two people helped him walk down the aisle and onto the stage. It looked as if his hands were affected too. After the lecture I saw him in his wheelchair being taken to a limo. I went over to him and asked if indeed he had TM. He didn't even look at me and just said I'm done. A guard said he is very tired. I know he was tired but he was also very rude!!!
Tobe
Brooklyn NY

--- On Wed, 6/24/09, Akua <a...@artfarm.com> wrote:


From: Akua <a...@artfarm.com>
Subject: [TMIC] Artist w TM in New York times
To: tmic-list@eskimo.com
Date: Wednesday, June 24, 2009, 9:42 PM


very interesting article on interesting artist who had...transverse myelitis. and was paralyzed. but no longer is.. regained ability to walk after three years in a wheelchair

http://www.nytimes.com/2009/06/21/arts/design/21sont.html? _r=1&scp=1&sq=shonibare&st=cse




--

You know there are some days after working over 8 hours, going to the pool 3 days a week and swimming 1/2 miles I am "DONE" also but NEVER, NEVER be that rude or cold to anyone!! anytime someone wants to ask about the wheel chair, my walker, ect I am nothing short of a chatter box!! lets get the word out! and if on this night he had some type of "high profile" night he shold have been an advocate for all of us! -------------- Original message from T Kanon <sseco...@yahoo.com>: -------------- Last night was the opening of this artist's exhibit at the Brooklyn Museum and I attended. Two people helped him walk down the aisle and onto the stage. It looked as if his hands were affected too. After the lecture I saw him in his wheelchair being taken to a limo. I went over to him and asked if indeed he had TM. He didn't even look at me and just said I'm done. A guard said he is very tired. I know he was tired but he was also very rude!!!
Tobe
Brooklyn NY

--- On Wed, 6/24/09, Akua <a...@artfarm.com> wrote:


From: Akua <a...@artfarm.com>
Subject: [TMIC] Artist w TM in New York times
To: tmic-list@eskimo.com
Date: Wednesday, June 24, 2009, 9:42 PM
very interesting article on interesting artist who had...transverse myelitis. and was paralyzed. but no longer is.. regained ability to walk after three years in a wheelchair

http://www.nytimes.com/2009/06/21/arts/design/21sont.html? _r=1&scp=1&sq=shonibare&st=cse


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