Ah yes, art openings; I've had some myself. A grueling experience indeed.
And am not even disabled......!!!!! My pre-MS wife prepared the munchies
while I did all the rest of the work.
We both had a ball.
Bobberino
From: Lawrence King To: tmic-list@eskimo.com Cc: Lawrence King
Sent: Friday, June 26, 2009 11:30 PM
Subject: Re: [TMIC] Artist w TM in New York times
thanks Akua,
I have to agree with you. and a better approach would have been " hi, I'm a
TM survivor too, your accomplishments are really inspirational..." I can vouch
for the fact that those openings are really exhausting and the last one I did
was years before TM.
On Jun 27, 2009, at 12:09 AM, Akua wrote:
Gee, I guess I am a curmudgeon. I see no reason why anyone *must* answer
questions from strangers. It's not "getting the word out" since most people
have no manners, are nosy, crass and insensitive. I don't see his behavior as
"rude" at all... at least not as described.
.
After all the public time and on his way away, he's asked if he has a
disease that he has said he
has and because he doesn't want to engage this is considered rude?
The asker-- already knows about TM!
Especially with the death of Michael Jackson, I feel sensitized to the
strange expectations that people
have, the demands and the intrusions.
This artist has many "high profile" nights --- he was there to present his
ART not his ILLNESS!
When I first performed again after TM left me in pain paralyzed and
wheelchair bound, the last thing I wanted to talk about was TM. Maybe you
two feel differently because you are both still mobile.
Creating is my respite from pain and limitation.
I've lost several art forms because of TM. I can no longer make hot glass
and my papermaking, which
is plant based has been severely curtailed. It is hard to play the tenor
sax in the wheelchair. I lost
a publication -- I was hospitalized when my final edits were due to the
publisher....
TM is an agonizing hell that I would not want to have reenter in some
rare transcendent moment,
I sure wish I had his limo and assistance getting to and from events. LOL!
Akua
You know there are some days after working over 8 hours, going to the pool
3 days a week and swimming 1/2 miles I am "DONE" also but NEVER, NEVER be that
rude or cold to anyone!! anytime someone wants to ask about the wheel chair, my
walker, ect I am nothing short of a chatter box!! lets get the word out! and if
on this night he had some type of "high profile" night he shold have been an
advocate for all of us!
-------------- Original message from T Kanon <sseco...@yahoo.com>:
--------------
Last night was the opening of this artist's exhibit at the Brooklyn Museum
and I attended. Two people helped him walk down the aisle and onto the stage.
It looked as if his hands were affected too. After the lecture I saw him in
his wheelchair being taken to a limo. I went over to him and asked if indeed
he had TM. He didn't even look at me and just said I'm done. A guard said he
is very tired. I know he was tired but he was also very rude!!!
Tobe
Brooklyn NY
--- On Wed, 6/24/09, Akua <a...@artfarm.com> wrote:
From: Akua <a...@artfarm.com>
Subject: [TMIC] Artist w TM in New York times
To: tmic-list@eskimo.com
Date: Wednesday, June 24, 2009, 9:42 PM
very interesting article on interesting artist who had...transverse
myelitis. and was paralyzed. but no longer is.. regained ability to walk
after three years in a wheelchair
http://www.nytimes.com/2009/06/21/arts/design/21sont.html?_r=1&scp=1&sq=shonibare&st=cse
