But doesn't recurrent TM usually categorize someone as having MS or
Devic's? I have lesions on my spine that caused the TM...but those
lesions are there more than likely because of my MS...if I get new
lesions (already have 2 on the spine..C6-7 and T10), then it is MS
related in my case.
Spasms can be nasty, but surgery is usually last resort (to clip
tendons)....has botox been tried?
Laura
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On 14/03/2010 10:48 AM, Grace M. wrote:
/It is very possible that she is suffering from recurrent TM, which is
rare, but does happen especially in the context of diseases like NMO,
Sjogren's, SLE. We don't have quite enough of her history to make any
assumptions. As for her spasms, they appear to be tonic Not your
usual run of the mill spasms. I have them and they are totally
debilitating, and for me require huge doses of an anticonvulsant.
(Tegretol 1500 mgs per day.) Before treatment with Tegretol, I
couldn't be left alone. My heart goes out to her and I hope that she
gets the needed funds, and finds relief./
//
/Grace/