Re: [TMIC] MedicationsHi Dalton, I can really relate. Had them for years, and years with no explanation. Mine were not as severe as yours - I would have no warning of any kind - had them at out of town business functions (lovely), at work, waiting for a bus in downtown Seattle - I even got to spend one of my birthdays in the hospital all day because of a seizure at my office that morning. Then when TM hit they became more frequent and presented much worse. Finally got answers from a great neurologist who was on call while I was in the hospital. Was put on Lamictal and have been seizure-free since then. What drugs has your doctor given you so far? And maybe I shouldn't ask this, but I will anyway - do you have confidence in this doctor??? Have you worn an EEG machine around your waist for the 24-hour evaluation? Had brain scan? Hang in there. Someone will find an answer. Please keep posting updates.
Linda ----- Original Message ----- From: Dalton Garis<mailto:malugss...@gmail.com> To: Janice Nichols<mailto:jan...@centurytel.net> ; j.d...@shaw.ca<mailto:j.d...@shaw.ca> ; tmic-list@eskimo.com<mailto:tmic-list@eskimo.com> ; Barbara Alma<mailto:balmat...@aol.com> Sent: Friday, September 10, 2010 10:12 PM Subject: Re: [TMIC] Medications No, never. The seizures will end my career if I don't get them under control. I came back better and everyone was impressed. If they see me getting them again they will indeed replace me by next semester. Dalton ------------------------------------------------------------------------------ From: Janice Nichols <jan...@centurytel.net<mailto:jan...@centurytel.net>> Date: Fri, 10 Sep 2010 22:18:15 -0500 To: Dalton Garis <malugss...@gmail.com<mailto:malugss...@gmail.com>>, <j.d...@shaw.ca<mailto:j.d...@shaw.ca>>, <tmic-list@eskimo.com<mailto:tmic-list@eskimo.com>>, Barbara Alma <balmat...@aol.com<mailto:balmat...@aol.com>> Subject: Re: [TMIC] Medications Not to my knowledge. But, if it works on the spasms, that is part of your problem taken care of. Did you have seizures before TM? Janice From: Dalton Garis <mailto:malugss...@gmail.com<mailto:malugss...@gmail.com>> Sent: Friday, September 10, 2010 12:22 PM To: Janice Nichols <mailto:jan...@centurytel.net<mailto:jan...@centurytel.net>> ; j.d...@shaw.ca<about:j.d...@shaw.ca> ; tmic-list@eskimo.com<about:tmic-list@eskimo.com> ; Barbara Alma <mailto:balmat...@aol.com<mailto:balmat...@aol.com>> Subject: Re: [TMIC] Medications Does it work for seizures?? Dalton ------------------------------------------------------------------------------ From: Janice Nichols <jan...@centurytel.net<about:jan...@centurytel.net>> Date: Fri, 10 Sep 2010 10:20:03 -0500 To: Dalton Garis <malugss...@gmail.com<about:malugss...@gmail.com>>, <j.d...@shaw.ca<about:j.d...@shaw.ca>>, <tmic-list@eskimo.com<about:tmic-list@eskimo.com>>, Barbara Alma <balmat...@aol.com<about:balmat...@aol.com>> Subject: Re: [TMIC] Medications Remember you can work up to the amount you need. If you start with the zomby-business, cut back and see if that will work for you. Or, just take it a little before bedtime. That is what I do. Janice From: Dalton Garis <mailto:malugss...@gmail.com<mailto:malugss...@gmail.com>> Sent: Friday, September 10, 2010 5:31 AM To: Janice Nichols <mailto:jan...@centurytel.net<mailto:jan...@centurytel.net>> ; j.d...@shaw.ca<about:j.d...@shaw.ca> ; tmic-list@eskimo.com<about:tmic-list@eskimo.com> ; Barbara Alma <mailto:balmat...@aol.com<mailto:balmat...@aol.com>> Subject: Re: [TMIC] Medications OK; I'll suggest it to my neuro. He has been steering me away from the heavy-duty meds because I already take 40 mg of Prozac (have for 20 years) and he is afraid it will zomby-ize me. Dalton ------------------------------------------------------------------------------ From: Janice Nichols <jan...@centurytel.net<about:jan...@centurytel.net>> Date: Thu, 9 Sep 2010 22:22:34 -0500 To: <j.d...@shaw.ca<about:j.d...@shaw.ca>>, <tmic-list@eskimo.com<about:tmic-list@eskimo.com>>, Barbara Alma <balmat...@aol.com<about:balmat...@aol.com>> Subject: Re: [TMIC] Medications Resent-From: <tmic-list@eskimo.com<about:tmic-list@eskimo.com>> Resent-Date: Thu, 9 Sep 2010 20:22:23 -0700 There's that word again - spasms. I swear by baclofen. Had to change the number taken and the times of the day when to take them, but once that was figured out, I could sleep. Sorry to sound like a broken record and I realize that we are all different too. Sure wish it would work on you guys the way it works for me. Janice From: Barbara Alma <mailto:balmat...@aol.com<mailto:balmat...@aol.com>> Sent: Thursday, September 09, 2010 10:16 PM To: j.d...@shaw.ca<about:j.d...@shaw.ca> ; tmic-list@eskimo.com<about:tmic-list@eskimo.com> Subject: Re: [TMIC] Medications Hydrocodone: I personally do not get any relief from my nerve pain, burning/freezing or hyper sensitivity. I take it for other pain, and I also take it to sleep occassionally. Before anyone states that it isn't a sleep aid, I know it, but it allows my other aches and pains to stop hurting enough for me to go to sleep. It does not work on the really bad nights when my nerves or spasms do not settle down though. I may as well have not even bothered. Hugs, Barbara A in Auburn CA -----Original Message----- From: Janet Dunn <j.d...@shaw.ca<about:j.d...@shaw.ca>> To: 'transverse myelitis' <tmic-list@eskimo.com<about:tmic-list@eskimo.com>> Sent: Thu, Sep 9, 2010 7:59 am Subject: [TMIC] Medications Hello to all I find it very interesting the number of us that are on or have taken hydrocodone, especially when it is "said" that opoids do not help with the pain of TM For me personally, I wouldn't make it if I didn't have a member or two of the hydrocodone family in my drug repertoire. I take 20mg or 40mg of long acting HCL in the morning, depending on the legs, and have perocdan as a filler for the day. I also take Lyrica, Effexor, Wellbutrin and baclofen. Even today, after 2 days of working 8 hours, and moving around and doing housework, I hurt. I want to lay in bed. But . . . just like the rest of us . . . duty and life are calling. I really appreciate the medication information simply because I live so far away from the nearest neurologist, and the wait time is up to a year, if we can get in at all. Then we must travel either 400 miles out of province, or 850 miles to Vancouver. So the information on here is absolutely priceless. However, you cannot have my MasterCard! ;) Janet From: john snodgrass [mailto:] Sent: September 8, 2010 2:09 PM To: Rev. Craig Crossman Cc: transverse myelitis Subject: Re: [TMIC] Neurologist visit I have been taking gabapentin 400mg for the last 2 years 3 times a day. some people say that they can take 1 and it knocks them out. i have never experienced that. perhaps because of the extreem pain. I also take hydrocodone,baclofen, and lorazepam. ------------------------------------------------------------------------------ =
