Carol, how are you at staying dry during the nite? I have a real problem
with that and always have to wear protection and sometimes that doesn't always
work. Can't
seem to feel enough yet to wake up in time. I can go 2-3 weeks and have a
real wetting problem and then I can go for a couple of weeks and stay fairly
dry. We can't
seem to pin down the reason for this. I am beginning to think on the days
that I don't take a nap (45min to hour) that I sleep too hard and don't feel
the urge until it
is too late. Time will tell. It is the pits!
Janice
From: john snodgrass
Sent: Wednesday, November 10, 2010 10:15 AM
To: transverse myelitis
Subject: RE: [TMIC] hello out there
Carol E,
your sunday to present condition sounds almost exactly like mine.
heavy sigh.
--- On Wed, 11/10/10, Carol E <snow121...@hotmail.com> wrote:
From: Carol E <snow121...@hotmail.com>
Subject: RE: [TMIC] hello out there
To: malugss...@gmail.com, tmic-list@eskimo.com
Date: Wednesday, November 10, 2010, 11:06 AM
I also have the residuals as Linda mentioned...burning, banding,
weakness, bladder control. Sometimes I can void normally (pre TM) and other
times I have to sit on the pot for 5 minutes to void. I feel like I am about
to burst, but nothing comes out. I wiggle and wiggle and finally a slow
trickle that takes maybe another 3 minutes. I would say about half the time I
void normally and half of the time, I don't.
This week, my back is killing me. It started Saturday with a burning &
itching sensation and then Sunday immense pain began about 3 inches lower,
about waist level and lower. My hips hurt and painful when I stand and bear
weight. I was taking Aleve for my discomfort and this week I graduated to
Vicodin and Flexeril. I'm not sure, but I think my pain is from spinal
stenosis and bulging disks instead of the TM. I have scheduled my 2nd Lumbar
Epidural for next week, if I still need it. Would have gone this week, but I
have to discontinue Plavix, aspirin and Aleve before I can get the epidural.
What a zoo!
Carol
Worrying does not empty
tomorrow of its troubles;
It empties today of its strengths.
------------------------------------------------------------------------
From: cherp...@msn.com
To: malugss...@gmail.com; tmic-list@eskimo.com; snow121...@hotmail.com
Subject: Re: [TMIC] hello out there
Date: Tue, 9 Nov 2010 21:16:00 -0700
This is what I have been told also. My lesions can still be seen but
they are inactive (C4,5,6). I was told they are like a scar. However, I've
seen posts where others have been told something different.
Dalton, I still have all the residuals - burning, banding, weakness -
it's just that some days are better than others. It's going on 9 years for me.
Hope you get to feeling better!
Linda in Eagle, ID
----- Original Message -----
From: Carol E
To: malugss...@gmail.com ; tmic-list@eskimo.com
Sent: Tuesday, November 09, 2010 9:04 PM
Subject: RE: [TMIC] hello out there
Hi Dalton and all,
I was 1st diagnosed with TM June 2005. I had lesions from T7-T10.
Every time I have new MRI's, I am always told that I have no new lesions, but
they can still see the old ones which are inactive. So I would say the lesions
do not go away, they are there like a scar.
Carol in Addison, IL
----------------------------------------------------------------------
Date: Wed, 10 Nov 2010 07:50:59 +0400
Subject: Re: [TMIC] hello out there
From: malugss...@gmail.com
To: jan...@centurytel.net; balmat...@aol.com; tmic-list@eskimo.com
Hey, Janice!
We missed you. And I missed you. Glad to have you back with us.
I have a question for everyone. A recent set of MRIs showed that my
spine in the thoracic was clear with no lesions or swellings. It has been one
year since the diagnosis for TM.
Do these lesions clear up later on, or did somebody make a mistake
somewhere? Because my everyday symptoms are still weakness and pain from
fingers to just above the elbow, and from toes to above the knees with banding
and burning in the torso and back. And if I exercise at all, the next day I am
in for day-long spasms that leave me housebound and often unable to get around
without assistance of my dear part-time maid and helper.
Could someone get back to me on this?
Thanks a lot.
Dalton
----------------------------------------------------------------------
From: Janice Nichols <jan...@centurytel.net>
Date: Tue, 9 Nov 2010 19:28:29 -0600
To: Dalton Garis <malugss...@gmail.com>, Barbara Alma
<balmat...@aol.com>, <tmic-list@eskimo.com>
Subject: Re: [TMIC] hello out there
I do too, Dalton. You have a different set of problems that I have
not heard in other TM'ers. Sure wish you would get you act together -
scares me!!!
Seriously, I hope that is the last day you will have like that.
Janice
From: Dalton Garis <mailto:malugss...@gmail.com>
Sent: Sunday, November 07, 2010 10:23 AM
To: Barbara Alma <mailto:balmat...@aol.com> ; tmic-list@eskimo.com
Subject: Re: [TMIC] hello out there
Actually;
I had a day-long attack of spasms yesterday which left me unable to
control either my hands and arms, legs, torso or speech. Every time I tried to
talk I would cramp up. And Elvis was definitely being channeled in my body.
Thank heavens I had the assistance of a very nice and strong maid who visits me
once a week. It was her day to visit and she stayed with me and helped me to
the bathroom and into and out of chairs. It was hard to sit down because I
couldn’t make my body bend and I’d just slide off. But we got it under
control. She had to help me drink and eat. I would grab the coffee cup handle
and then could not make my hand let go.
In the mean time I was so grateful for her assistance and that the
Lord was taking care of me that I was also as high as a kite and proposing
marriage to chairs and such.
Today was the beginning of the work week here (Abu Dhabi) and I did
alright. But the lecture kept going off on these tangents making it hard for
my class to take useful notes. It was because my mental state was still flying
around the cosmos.
What is going on here? OK, I have TM in my upper spine; but what is
this mental derangement stuff? I sure wish the drs could find out what is
wrong with me.
Dalton
----------------------------------------------------------------------
From: Barbara Alma <balmat...@aol.com>
Date: Sun, 7 Nov 2010 00:48:22 -0400 (EDT)
To: <tmic-list@eskimo.com>
Subject: [TMIC] hello out there
Resent-From: <tmic-list@eskimo.com>
Resent-Date: Sat, 6 Nov 2010 21:48:30 -0700
Well, I guess since nobody has written in that all must be going well
for everyone. It's very good to hear this. I do think that it is a good idea
to keep this list going though in case there are any newbies who may need us
and don't think there is anyone here to listen to them.
If a couple of days pass without any messages, let's send in a
message or two.
Hugs, Barbara A in Auburn CA
