Re: [TMIC] hello out thereHi Dalton & Everyone ~~ You're right Dalton. Many of us seem to be having additional challenges right now. Could be why we've been so quiet on the list....
After I read your post about the horrific day you had, I did a little research, and I think I came back even more confused - sorry to say. I'm sure I've asked you this before, but I'll ask again. Have you been given any drugs specifically for seizures? If not, could your doctor put you on a seizure med for a "trial period" to see if it would indeed help?? I don't understand why they haven't tried this. How does anybody know if nothing has been tried??? Is Lyrica the only medication you take? Is there another neuro you could see or would your neuro consider consulting another neuro about your case? So many questions - so few answers. I don't know what to say. It's so frustrating to see you going through all of this. Hang in there and keep posting. Linda ----- Original Message ----- From: Dalton Garis<mailto:malugss...@gmail.com> To: L T CHERPESKI<mailto:cherp...@msn.com> ; tmic-list@eskimo.com<mailto:tmic-list@eskimo.com> ; Barbara Alma<mailto:balmat...@aol.com> Sent: Sunday, November 07, 2010 5:19 PM Subject: Re: [TMIC] hello out there Seems as if everyone went down at the same time. Is it possible that I might have recurrent TM? I wish I could get the neuro interested in my case. But he just keeps me in Lyrica and has no further interest. Dalton ------------------------------------------------------------------------------ From: L T CHERPESKI <cherp...@msn.com<mailto:cherp...@msn.com>> Date: Sun, 7 Nov 2010 16:33:40 -0700 To: <tmic-list@eskimo.com<mailto:tmic-list@eskimo.com>>, Barbara Alma <balmat...@aol.com<mailto:balmat...@aol.com>> Subject: Re: [TMIC] hello out there Resent-From: <tmic-list@eskimo.com<mailto:tmic-list@eskimo.com>> Resent-Date: Sun, 7 Nov 2010 15:33:39 -0800 Have been trying to keep myself calm and quiet as I am in a full blown flare. I'm 2 months past my Rituxan infusions, which obviously is not good. Hoping they were approved last Friday and will be scheduled this week. I have Recurring TM and Rituxan has kept me "attack" free the last 2 years - I guess that teaches me a lesson - the hard way. Get infusions every 6 months on schedule. A real bummer~~~~~ Linda in Eagle, ID ----- Original Message ----- From: Barbara Alma <mailto:balmat...@aol.com<mailto:balmat...@aol.com>> To: tmic-list@eskimo.com<about:tmic-list@eskimo.com> Sent: Saturday, November 06, 2010 9:48 PM Subject: [TMIC] hello out there Well, I guess since nobody has written in that all must be going well for everyone. It's very good to hear this. I do think that it is a good idea to keep this list going though in case there are any newbies who may need us and don't think there is anyone here to listen to them. If a couple of days pass without any messages, let's send in a message or two. Hugs, Barbara A in Auburn CA
