Would you believe that on "House" that they had a patient they diagnosed with
TM?! It was brought on by some other problem, not idiopathec. But, it was
at
least exposure to TM.
Janice
From: john snodgrass
Sent: Wednesday, November 17, 2010 7:18 PM
To: transverse myelitis
Subject: Re: [TMIC] Doc Pomus
lol,,sounds like a good "House" episode
--- On Wed, 11/17/10, Dalton Garis <malugss...@gmail.com> wrote:
From: Dalton Garis <malugss...@gmail.com>
Subject: Re: [TMIC] Doc Pomus
To: bgunny7...@aol.com, "TMIC" <tmic-list@eskimo.com>
Cc: "Brooks Garis" <bga...@optonline.net>
Date: Wednesday, November 17, 2010, 7:18 PM
Well, Bernie;
I can fully appreciate the problem of mis-diagnosis, because I have
gone from being a whole bunch of things this past year, to wit:
1.. Could be Lyme Disease. No, that’s not right. All tests were
negative for Lyme. But you never know!
2.. Ok! Multiple Sclerosis. That’s it, because it is targeting just
the left side and you had two attacks more than one month apart from which you
mostly recovered. Ah, not so fast. We’ll call it, “demyelinating disease,
unspecified.”
3.. It’s TM. Definitely! It is on both sides of your body equally
now; it followed a severe, unexplained backache, it affects you from the level
of several thoracic vertebrae, and your reactions are hypersensitive, you are
spasmodic all over, there is banding pain in the torso, and . . . , and . . . ,
and . . . . Diagnosis: “Transverse myelitis, partial.”
4.. (5 months later) Well, good news! The MRI was basically clear
in spine and brain, except where we can’t see because of your steel rods (most
of the back), and some weird stuff in your brainstem. It is therefore likely
all due to your old back fusions and the steel rods. We’ll hold off
re-diagnosing for now.
5.. OK, wait: The old back fusions and steel rods are all pristine.
No difficulty there. Maybe epilepsy, That could explain a lot of what you seem
to be suffering.
6.. Well, no epilepsy. Tests were all negative.
7.. And, your new symptoms, fatigue, facial pain on left side only;
no headache or migraine—myasthenia gravis ?
8.. Meanwhile, how is your Lyrica holding out? Need a refill?
LOL!
What happened to the TM? Am I one of those who got mostly better?
Myasthenia gravis? I am now having new symptoms of extreme fatigue and pain in
the limbs and left side of the face, needles and pins. For a while now I have
tried to get up in the morning only to be forced back to bed by fatigue and
pain. After more rest and two more attempts I succeed in getting up and
dressed. My spine is just burning up, from thoracic to lumbar. But that is an
old symptom. The attacks of spasms are mostly gone now.
Good thing I teach an 11:00 lecture and can sit in my office the rest
of the time. My old skating routine several times per week, or even once per
week, is not possible at the moment. It now hurts to type for very long.
I am desperate for ideas here. Anyone with some thoughts on this sack
of symptoms?
I have no idea what is happening, and the neuro has given up thinking
about it. I hope to get with another neuro this week or next. Hope all this
will pass and I can get back to where I was a few weeks ago.
Dalton
------------------------------------------------------------------------
From: Bernie <bpe...@austin.rr.com>
Date: Wed, 17 Nov 2010 10:57:07 -0800
To: <bgunny7...@aol.com>, TMIC <tmic-list@eskimo.com>
Subject: Re: [TMIC] Doc Pomus
Resent-From: <tmic-list@eskimo.com>
Resent-Date: Wed, 17 Nov 2010 10:57:16 -0800
I believe that a LOT of people were misdiagnosed years ago as they
did not have the diagnostic tools we have today. I believe that people are
still misdiagnosed in our times now, due to doctors either not knowing about
it, misinformation, or just plain hard heads who won't listen to anyone else.
Even though I was diagnosed with TM, I still think I have MS, but cannot
have an MRI done because of the pump in my abdomen. Just my 2 cents worth.
Peace,
Bernie in Texas
