I do wish we could all meet together somehow; Now that we are good acquaintances, so that we could really appreciate each other's suffering and daily struggles, in order to give more than emailed verbal support. There are such strong personalities and survivor characters here. America needs our kind of character, I think, especially now.
Perhaps we could think of some king of get-together/reunion for those who can travel, and make an online video meeting at that time for the rest of us. Dalton From: PAMELA S <subers...@msn.com> Date: Tue, 29 Nov 2011 22:03:33 -0800 To: <skle...@cox.net>, <jan...@centurytel.net> Cc: <jcs...@yahoo.com>, <celr...@aol.com>, TMC Group <tmic-list@eskimo.com> Subject: RE: [TMIC] quiet ot Resent-From: <tmic-list@eskimo.com> Resent-Date: Tue, 29 Nov 2011 22:06:17 -0800 > spasming used to keep me awake. Not so much anymore. I have vertigo which > manifests as nausea sometimes. Only am problem was related to BIH which was > from high protein related to TM plugging up my arachnoid villa (sorry, don't > care about spelling tonight) or my brain so to speak. > > > > CC: jcs...@yahoo.com; celr...@aol.com; tmic-list@eskimo.com > From: skle...@cox.net > Subject: Re: [TMIC] quiet ot > Date: Tue, 29 Nov 2011 18:54:28 -0700 > To: jan...@centurytel.net > > Janice, > Yes, I do. I'm actually supposed to take 10 mg of Baclofen every 6 hours. > So, I try to keep it by my bed at night. Baclofen definitely can keep my > spasms at bay, if I take it every 6 hours. > > Carpal tunnel on left hand keeps mebawake also, having surgery 1/12/12. > > On another fun note, one of my biggest problems in nausea, and vomiting if I > don't get a Zofran pronto! ( always in the AM, like morning sickness) > Anyone else have this? I have lost 17#... and struggle with a loss of > appetite and cooking in general. > I used to love to cook, and even cater. > > Susan, Phx, AZ > On Nov 29, 2011, at 4:21 PM, Janice Nichols wrote: > >> >> >> >> Susan, do you have break-through nights when the spasms keep you awake? >> >> Janice >> >> >> >> >> >> >> >> >> From: john snodgrass <mailto:jcs...@yahoo.com> >> >> Sent: Tuesday, November 29, 2011 4:15 PM >> >> To: Janice Nichols <mailto:jan...@centurytel.net> ; Susan Kleinz >> <mailto:skle...@cox.net> >> >> Cc: celr...@aol.com ; tmic <mailto:tmic-list@eskimo.com> >> >> Subject: Re: [TMIC] quiet ot >> >> >> >> >> >> i take 20 mg of baclofen at @ 5am,12pm, and 8 pm. >> >> >> >> at one point i was taking 100 mg per day. >> >> >> >> mfg. states that 80 should be the max dosage per day >> >> >> >> >> >> >> From: Janice Nichols <jan...@centurytel.net> >> To: Susan Kleinz <skle...@cox.net> >> Cc: celr...@aol.com; tmic <tmic-list@eskimo.com> >> Sent: Tuesday, November 29, 2011 1:02 PM >> Subject: Re: [TMIC] quiet ot >> >> >> >> >> >> >> Susan, I am taking your advice and not just taking it at nite too. It is >> helping. Thanks >> >> Janice >> >> >> >> >> >> >> From: Susan Kleinz <mailto:skle...@cox.net> >> >> Sent: Monday, November 28, 2011 6:32 PM >> >> To: Janice Nichols <mailto:jan...@centurytel.net> >> >> Cc: celr...@aol.com ; tmic <mailto:tmic-list@eskimo.com> >> >> Subject: Re: [TMIC] quiet ot >> >> >> >> Savella is a new drug designed to help people with fibro myalgia. >> It's purpose is to help neuropathic pain. It definitely works for me. >> >> >> >> For 20 years I took Baclofen at night only. I ended up taking way more than >> I do now, >> >> which is 10mg 3 - 4 times a day. >> >> >> >> My doctor, at BNI is a specialist in MS and TM. I am grateful for his care! >> >> >> >> Susan, Phx, AZ >> >> >> On Nov 28, 2011, at 4:20 PM, Janice Nichols wrote: >> >> >>> >>> >>> >>> Susan, >>> >>> I am on Baclofen, Neurontin, and Zoloft too. What do you take Savella >>> for? Maybe I am missing out on something! >>> >>> You are right about the website. It has done wonders for me. Great >>> for information and for handling the ³isolated² feeling of TM. >>> >>> When I first joined, I had lots of questions that I asked everyone to >>> respond to, and of course, they did. It kept things pretty active >>> >>> for a while, but things have slowed down again. It is a wonderful >>> group - take a bow everyone of you!!! >>> >>> Janice >>> >>> >>> >>> >>> >>> >>> >>> >>> From: Susan Kleinz <mailto:skle...@cox.net> >>> >>> Sent: Monday, November 28, 2011 10:33 AM >>> >>> To: celr...@aol.com >>> >>> Cc: tmic <mailto:tmic-list@eskimo.com> >>> >>> Subject: Re: [TMIC] quiet ot >>> >>> >>> >>> I was busy with Thanksgiving... >>> >>> >>> My two lesions are at T-7, so I do not have the brain thing going on. >>> >>> My first episode, I did have slurred speech...as there is a 3rd lesion in >>> my brain that doesn't seem to be activated now. >>> >>> I would take any drug that would help me. Ritalin included. >>> >>> I'm on Baclofen, Neurontin, Zoloft and Savella. I should be smiling all >>> day long! >>> >>> >>> >>> I am grateful to this website. I joined the TM Association and received a >>> bunch of good literature. Also ordered The Official Patient's Source Book >>> on TM. >>> >>> I am amazed that my neurologist didn't recommend these resources. Nor did >>> I know how rare this illness is... >>> >>> >>> >>> My husband says I'm one in a million. >>> >>> >>> >>> Susan K., Phoenix, AZ >>> >>> >>> >>> >>> >>> On Nov 28, 2011, at 7:10 AM, celr...@aol.com wrote: >>> >>> >>>> >>>> I hope everyone is ok. It has been very quiet on this site since >>>> before Thanksgiving or maybe I am kicked off again. Missing you. >>>> >>>> >>>> >>>> Jane/Splendora Tx >>>> >>>> >>> >>> >> >> >> >> > >
