it is one of the symptoms of TM...according to my Doc, and TM info I
have read...
Good to know carpal tunnel surgery works!
Susan
On Nov 29, 2011, at 9:46 PM, Janice Nichols wrote:
What causes the nausea? Haven’t heard of that complaint.
Had carpal tunnel a couple of years ago. No problem and it does
work.
Janice
From: Susan Kleinz
Sent: Tuesday, November 29, 2011 7:54 PM
To: Janice Nichols
Cc: john snodgrass ; celr...@aol.com ; tmic
Subject: Re: [TMIC] quiet ot
Janice,
Yes, I do. I'm actually supposed to take 10 mg of Baclofen every 6
hours.
So, I try to keep it by my bed at night. Baclofen definitely can
keep my spasms at bay, if I take it every 6 hours.
Carpal tunnel on left hand keeps mebawake also, having surgery
1/12/12.
On another fun note, one of my biggest problems in nausea, and
vomiting if I don't get a Zofran pronto! ( always in the AM, like
morning sickness)
Anyone else have this? I have lost 17#... and struggle with a loss
of appetite and cooking in general.
I used to love to cook, and even cater.
Susan, Phx, AZ
On Nov 29, 2011, at 4:21 PM, Janice Nichols wrote:
Susan, do you have break-through nights when the spasms keep you
awake?
Janice
From: john snodgrass
Sent: Tuesday, November 29, 2011 4:15 PM
To: Janice Nichols ; Susan Kleinz
Cc: celr...@aol.com ; tmic
Subject: Re: [TMIC] quiet ot
i take 20 mg of baclofen at @ 5am,12pm, and 8 pm.
at one point i was taking 100 mg per day.
mfg. states that 80 should be the max dosage per day
From: Janice Nichols <jan...@centurytel.net>
To: Susan Kleinz <skle...@cox.net>
Cc: celr...@aol.com; tmic <tmic-list@eskimo.com>
Sent: Tuesday, November 29, 2011 1:02 PM
Subject: Re: [TMIC] quiet ot
Susan, I am taking your advice and not just taking it at nite
too. It is helping. Thanks
Janice
From: Susan Kleinz
Sent: Monday, November 28, 2011 6:32 PM
To: Janice Nichols
Cc: celr...@aol.com ; tmic
Subject: Re: [TMIC] quiet ot
Savella is a new drug designed to help people with fibro myalgia.
It's purpose is to help neuropathic pain. It definitely works for
me.
For 20 years I took Baclofen at night only. I ended up taking way
more than I do now,
which is 10mg 3 - 4 times a day.
My doctor, at BNI is a specialist in MS and TM. I am grateful for
his care!
Susan, Phx, AZ
On Nov 28, 2011, at 4:20 PM, Janice Nichols wrote:
Susan,
I am on Baclofen, Neurontin, and Zoloft too. What do you take
Savella for? Maybe I am missing out on something!
You are right about the website. It has done wonders for me.
Great for information and for handling the “isolated” feeling of TM.
When I first joined, I had lots of questions that I asked
everyone to respond to, and of course, they did. It kept
things pretty active
for a while, but things have slowed down again. It is a
wonderful group - take a bow everyone of you!!!
Janice
From: Susan Kleinz
Sent: Monday, November 28, 2011 10:33 AM
To: celr...@aol.com
Cc: tmic
Subject: Re: [TMIC] quiet ot
I was busy with Thanksgiving...
My two lesions are at T-7, so I do not have the brain thing going
on.
My first episode, I did have slurred speech...as there is a 3rd
lesion in my brain that doesn't seem to be activated now.
I would take any drug that would help me. Ritalin included.
I'm on Baclofen, Neurontin, Zoloft and Savella. I should be
smiling all day long!
I am grateful to this website. I joined the TM Association and
received a bunch of good literature. Also ordered The Official
Patient's Source Book on TM.
I am amazed that my neurologist didn't recommend these
resources. Nor did I know how rare this illness is...
My husband says I'm one in a million.
Susan K., Phoenix, AZ
On Nov 28, 2011, at 7:10 AM, celr...@aol.com wrote:
I hope everyone is ok. It has been very quiet on this site
since before Thanksgiving or maybe I am kicked off again.
Missing you.
Jane/Splendora Tx
