What causes the nausea? Haven’t heard of that complaint. Had carpal tunnel a couple of years ago. No problem and it does work. Janice
From: Susan Kleinz Sent: Tuesday, November 29, 2011 7:54 PM To: Janice Nichols Cc: john snodgrass ; celr...@aol.com ; tmic Subject: Re: [TMIC] quiet ot Janice, Yes, I do. I'm actually supposed to take 10 mg of Baclofen every 6 hours. So, I try to keep it by my bed at night. Baclofen definitely can keep my spasms at bay, if I take it every 6 hours. Carpal tunnel on left hand keeps mebawake also, having surgery 1/12/12. On another fun note, one of my biggest problems in nausea, and vomiting if I don't get a Zofran pronto! ( always in the AM, like morning sickness) Anyone else have this? I have lost 17#... and struggle with a loss of appetite and cooking in general. I used to love to cook, and even cater. Susan, Phx, AZ On Nov 29, 2011, at 4:21 PM, Janice Nichols wrote: Susan, do you have break-through nights when the spasms keep you awake? Janice From: john snodgrass Sent: Tuesday, November 29, 2011 4:15 PM To: Janice Nichols ; Susan Kleinz Cc: celr...@aol.com ; tmic Subject: Re: [TMIC] quiet ot i take 20 mg of baclofen at @ 5am,12pm, and 8 pm. at one point i was taking 100 mg per day. mfg. states that 80 should be the max dosage per day ------------------------------------------------------------------------------ From: Janice Nichols <jan...@centurytel.net> To: Susan Kleinz <skle...@cox.net> Cc: celr...@aol.com; tmic <tmic-list@eskimo.com> Sent: Tuesday, November 29, 2011 1:02 PM Subject: Re: [TMIC] quiet ot Susan, I am taking your advice and not just taking it at nite too. It is helping. Thanks Janice From: Susan Kleinz Sent: Monday, November 28, 2011 6:32 PM To: Janice Nichols Cc: celr...@aol.com ; tmic Subject: Re: [TMIC] quiet ot Savella is a new drug designed to help people with fibro myalgia. It's purpose is to help neuropathic pain. It definitely works for me. For 20 years I took Baclofen at night only. I ended up taking way more than I do now, which is 10mg 3 - 4 times a day. My doctor, at BNI is a specialist in MS and TM. I am grateful for his care! Susan, Phx, AZ On Nov 28, 2011, at 4:20 PM, Janice Nichols wrote: Susan, I am on Baclofen, Neurontin, and Zoloft too. What do you take Savella for? Maybe I am missing out on something! You are right about the website. It has done wonders for me. Great for information and for handling the “isolated” feeling of TM. When I first joined, I had lots of questions that I asked everyone to respond to, and of course, they did. It kept things pretty active for a while, but things have slowed down again. It is a wonderful group - take a bow everyone of you!!! Janice From: Susan Kleinz Sent: Monday, November 28, 2011 10:33 AM To: celr...@aol.com Cc: tmic Subject: Re: [TMIC] quiet ot I was busy with Thanksgiving... My two lesions are at T-7, so I do not have the brain thing going on. My first episode, I did have slurred speech...as there is a 3rd lesion in my brain that doesn't seem to be activated now. I would take any drug that would help me. Ritalin included. I'm on Baclofen, Neurontin, Zoloft and Savella. I should be smiling all day long! I am grateful to this website. I joined the TM Association and received a bunch of good literature. Also ordered The Official Patient's Source Book on TM. I am amazed that my neurologist didn't recommend these resources. Nor did I know how rare this illness is... My husband says I'm one in a million. Susan K., Phoenix, AZ On Nov 28, 2011, at 7:10 AM, celr...@aol.com wrote: I hope everyone is ok. It has been very quiet on this site since before Thanksgiving or maybe I am kicked off again. Missing you. Jane/Splendora Tx