Susan, do you have break-through nights when the spasms keep you awake?
Janice
From: john snodgrass
Sent: Tuesday, November 29, 2011 4:15 PM
To: Janice Nichols ; Susan Kleinz
Cc: celr...@aol.com ; tmic
Subject: Re: [TMIC] quiet ot
i take 20 mg of baclofen at @ 5am,12pm, and 8 pm.
at one point i was taking 100 mg per day.
mfg. states that 80 should be the max dosage per day
--------------------------------------------------------------------------------
From: Janice Nichols <jan...@centurytel.net>
To: Susan Kleinz <skle...@cox.net>
Cc: celr...@aol.com; tmic <tmic-list@eskimo.com>
Sent: Tuesday, November 29, 2011 1:02 PM
Subject: Re: [TMIC] quiet ot
Susan, I am taking your advice and not just taking it at nite too. It is
helping. Thanks
Janice
From: Susan Kleinz
Sent: Monday, November 28, 2011 6:32 PM
To: Janice Nichols
Cc: celr...@aol.com ; tmic
Subject: Re: [TMIC] quiet ot
Savella is a new drug designed to help people with fibro myalgia.
It's purpose is to help neuropathic pain. It definitely works for me.
For 20 years I took Baclofen at night only. I ended up taking way more than I
do now,
which is 10mg 3 - 4 times a day.
My doctor, at BNI is a specialist in MS and TM. I am grateful for his care!
Susan, Phx, AZ
On Nov 28, 2011, at 4:20 PM, Janice Nichols wrote:
Susan,
I am on Baclofen, Neurontin, and Zoloft too. What do you take Savella for?
Maybe I am missing out on something!
You are right about the website. It has done wonders for me. Great for
information and for handling the “isolated” feeling of TM.
When I first joined, I had lots of questions that I asked everyone to respond
to, and of course, they did. It kept things pretty active
for a while, but things have slowed down again. It is a wonderful group
- take a bow everyone of you!!!
Janice
From: Susan Kleinz
Sent: Monday, November 28, 2011 10:33 AM
To: celr...@aol.com
Cc: tmic
Subject: Re: [TMIC] quiet ot
I was busy with Thanksgiving...
My two lesions are at T-7, so I do not have the brain thing going on.
My first episode, I did have slurred speech...as there is a 3rd lesion in my
brain that doesn't seem to be activated now.
I would take any drug that would help me. Ritalin included.
I'm on Baclofen, Neurontin, Zoloft and Savella. I should be smiling all day
long!
I am grateful to this website. I joined the TM Association and received a
bunch of good literature. Also ordered The Official Patient's Source Book on
TM.
I am amazed that my neurologist didn't recommend these resources. Nor did I
know how rare this illness is...
My husband says I'm one in a million.
Susan K., Phoenix, AZ
On Nov 28, 2011, at 7:10 AM, celr...@aol.com wrote:
I hope everyone is ok. It has been very quiet on this site since before
Thanksgiving or maybe I am kicked off again. Missing you.
Jane/Splendora Tx
