HI Janice
It is not really what I was talking about – but I am very careful about the shoes I wear – because tight shoes grieve my feet, loose shoes I trip in, so I mainly wear crocs and a slip on clog type. I used to have that sensitivity – and then it left. But now it is back with a vengeance – way worse than before and it feels like I am always stepping on a sizzling cord. The banding is back – and I am not happy about the hemangioma. Janet From: Janice Nichols [mailto:jan...@centurytel.net] Sent: December 15, 2011 4:28 PM To: Janet Dunn; 'TMIC'; tmic-l...@eskimo.net Subject: Re: [TMIC] New MRI results Janet, I have always had real sensitivity in my feet. If someone rubbed them, they would really spasm. I have had TM for 5 years now. What I am just recently noticing is that shoes that fit my foot – leather – have started to be a problem. My right foot, right side has always been a problem, spasms bad enough that it lifts my whole leg up. Weird feeling! I then have to go to a shoe I would consider slight loose. No problem with tennis shoes, but sure don’t want to wear them out to dinners, etc. I know I am more active now, but the shoes are beginning to be a real problem. Is this what you were talking about? Janice From: Janet Dunn <mailto:j.d...@shaw.ca> Sent: Wednesday, December 14, 2011 3:11 AM To: 'TMIC' <mailto:tmic-list@eskimo.com> ; tmic-l...@eskimo.net Subject: [TMIC] New MRI results Hello Everybody I have had TM and the various symptoms of since August of 2004. I have a lesion on my spine at T4-5. There are a few issues with that, put I have been managing. Take my meds, keep my stress down, rest, - you all know the routine. I was doing so well that this summer I actually began to wear “proper ladies shoes” - including a pair of boots with a 1.5 inch heel – a sturdy heel, but a heel none the less. I was weaning down on my meds – life was grand to say the least. Then in October my feet began to tingle when I dried them with a towel. I really didn’t think too much of it until that feeling moved up the legs. I went to visit my daughter in Victoria in the beginning of November, and found that the right leg (the troubled one) would give out quite easily, and I would tire out. I got back to my home town and went to see my Doc. He sent me for an MRI. And this is the news I want to share. It is rather a “good” news, “bad” news situation. The MRI showed that the lesion of the cord at T4-5 were somewhat technically different, and the cord is somewhat attenuated (squished) . Essentially the clinical changes, and the subtle increased signal at the t4 – 5 levels do not present any significant change, and not of clinical significance. However, the report continues, there is a hemangioma at t4 and t7. Basically a growth on the spinal cord. And that of course is pushing on the cord itself which in turn is causing all the extra pain, and the return of all the burning that I am experiencing, as well as the numbness that is creeping up my abdomen. Wonder when it will stop, and what kind of damage will it inflict before it does. Two months ago you would have had no idea that I had a chronic illness with bothersome side effects – today you do not see me very far away from a cane. The joys, the joys. Anyone ever heard of this and the outcome? Anyone going to see anybody at John Hopkins or at the Mayo? I am supposed to be seeing a neurologist again but that could take a year. So whether there is a clinical significance or not, there is definitely a physical significance, and I really don’t care for it! Thanks for “listening” - that is why I love this list, and the people on it. Janet Dunn Fort St John BC
