My wife goes to her neuro once a year, or less. Bobberino ----- Original Message ----- From: john snodgrass To: transverse myelitis Sent: Tuesday, January 15, 2013 6:37 PM Subject: Re: [TMIC] Face book
as far as going to the neuro unless there are circumstances that would cause you to have to have help 6 month visits are normal.theres not much they can do anyway.managment of symptoms can be done by primary care after you find out what works best ------------------------------------------------------------------------------ From: Linda Egli <le...@sbcglobal.net> To: "Butcher, Bernie (S&FS)" <bernie.butc...@honeywell.com> Cc: "tmic-list@eskimo.com" <tmic-list@eskimo.com> Sent: Tuesday, January 15, 2013 3:35 PM Subject: Re: [TMIC] Face book I was offered Copaxone by my neurologist about 2 years ago. He had a study showing the drug could prevent TM from progressing to MS. However the study was by the manufacturer of Copaxone so I declined to take it. One question - when saw my neurologist Dec, 2011, I was told he no longer needed to see me unless there was a problem. Is this normal not to be followed at least yearly? I do see my Primary care doctor 3-4 times a year. ------------------------------------------------------------------------------ From: "Butcher, Bernie (S&FS)" <bernie.butc...@honeywell.com> To: Linda Egli <le...@sbcglobal.net>; "tmic-list@eskimo.com" <tmic-list@eskimo.com> Sent: Tuesday, January 15, 2013 10:54 AM Subject: RE: [TMIC] Face book I agree. I was diagnosed with TM in 2002 and MS in 2008. I think it was MS all along. I stopped getting the flu shot in 2002, and no flu. (just lucky I guess). I had a transplant in 1993, and my immune system is knocked down by the anti-rejection meds. My doc and my neuro say to get the shot, but I don’t. it’s my belief that they just don’t know, they don’t really know what causes TM, they don’t know what causes MS, and they don’t really know what effect the flu shot has with my condition. So, I’ll take my chances. I’m taking Copaxone injections for MS. BERNARD BUTCHER Honeywell Engineering 516-577-5868 From: Linda Egli [mailto:le...@sbcglobal.net] Sent: Tuesday, January 15, 2013 11:10 AM To: tmic-list@eskimo.com Subject: Re: [TMIC] Face book I have had TM for 9 years , & was told by my neurologist to never get another flu shot or any other type of immunization (ex: tetanus or chicken pox). He thought the flu shot was what precipitated my TM. I worry about catching the flu, but everyone knows not to come around me if they have any type of illness. I also pretty much stay at home & avoid crowds in the winter, so far no flu. I agree with Gary. I got a bad cold a few months ago & it about did me in. I can't imagine what the flu would do. I miss the old group on TM, but I just don't trust Facebook. The TMIC list is my contact with other TMers. Nice to see some conversation on this site. Linda E. in East Texas ------------------------------------------------------------------------------ From: Gary Thomas <gbthomas8...@sbcglobal.net> To: Transverse Myelitis list <tmic-list@eskimo.com> Sent: Tuesday, January 15, 2013 8:25 AM Subject: Re: [TMIC] Face book I used to get flu shots but stopped after getting TM in 2004. I have not had the flu.....until this season! I got it at around Christmas and am still not up to full strength (which is not that great anyway due to the fatigue I already had from the TM). So, I am rethinking, should I get the shot next year, or not? Fortunately, I did not pass the flu to my 87-year-old dad who always gets the shot but forgot this time, or my pregnant daughter and her family visiting us while I was sick, or my wife who has not gotten the shot either. I think her chiropractor is not for getting it. I don't think my doctor or neurologist had anything against getting the shot. I guess I'll have a year to think about it??? The worst part about the flu was that my grandkids were here from Georgia and I did not get to do much with them. Gary in Niles, MI ----- Original Message ----- From: Robert Pall To: jcs...@yahoo.com ; tmic-list@eskimo.com Sent: Tuesday, January 15, 2013 8:11 AM Subject: Re: [TMIC] Face book I get the Flu and Pneumonia shot and have never gotten the flu in the past 15 years. And The TMIC_LIST is pretty much the only one I read...it is too bad that so many of our group has gone to facebook...I guess you can't stop progress!~ Rob in New Jersey -----Original Message----- From: john snodgrass <jcs...@yahoo.com> To: transverse myelitis <tmic-list@eskimo.com> Sent: Mon, Jan 14, 2013 10:59 pm Subject: Re: [TMIC] Face book i had the flu shot and the pneumonia shot the same time and i still cant play the violin! ---------------------------------------------------------------------------- From: Dalton Garis <malugss...@gmail.com> To: Pat Cooley <patticoole...@gmail.com>; pjv1...@chartermi.net Cc: tmic <tmic-list@eskimo.com> Sent: Monday, January 14, 2013 9:31 PM Subject: Re: [TMIC] Face book I still listen and read. Because I still have TM and always will. By the Way, that mustard cure has greatly reduced seizures for me. Now, I only get them every 10 days or so. DG Dalton Garis Flushing, Queens New York, USA Mobile: 718-838-0437 From: Pat Cooley <patticoole...@gmail.com> Date: Monday, 14 January 2013 8:33 PM To: <pjv1...@chartermi.net> Cc: tmic <tmic-list@eskimo.com> Subject: Re: [TMIC] Face book Resent-From: <tmic-list@eskimo.com> Resent-Date: Mon, 14 Jan 2013 17:33:21 -0800 Patti I think you made the right decision. You have to do what is best for you and your family. You need to protect your mom, hubby & grandchildren. Patti C. in Wisconsin On Mon, Jan 14, 2013 at 5:39 PM, <pjv1...@chartermi.net> wrote: I've noticed some talk of people comng back to the tmic list for discussions and wondered just how many people actually look at this site anymore. The onky discussion I have is that I received my first flu shot last Wednesday since my 9 years with TM. We had two deaths from the flu in our area and I had a fear of carrying the flu to my 86 year old Mom, my diabetic hubby, or my grandchildren. My fears of being a carrier outweighed my fear of a reaction. I called my Neurologist and asked if he had any objection to me getting the flu shot. His answer was go ahead and get it. Patti V - Michigan
