She probably has seen your email. Sounds like she has been on a lot. Janice
From: Dalton Garis Sent: Wednesday, May 29, 2013 3:39 PM To: Janice Nichols ; amy shultz ; TM group Subject: Re: [TMIC] Re: Transverse Myelitis Janice; Has Amy tried Lyrica? For me it is the only medicine that has kept the bee stings away. Dalton (TM Class of '2009) From: Janice Nichols <jannic...@gmail.com> Date: Wed, 29 May 2013 11:38:19 -0500 To: amy shultz <mic...@hotmail.com>, TM group <tmic-list@eskimo.com> Subject: Re: [TMIC] Re: Transverse Myelitis Resent-From: <tmic-list@eskimo.com> Resent-Date: Wed, 29 May 2013 09:38:16 -0700 (PDT) Amy, I think we have talked before, but I did not know the extent of how TM left you. I am so very sorry that that damn TM did this to you and at such a young age. You are a very courageous lady. You have not let TM claim the real you - just your body. But, it would be pretty hard to live with. Family and good friends are a tremendous help in this situation. Some with TM have lost spouses, family, and friends due to TM. They just don’t want to deal with it – so you are lucky in that way. I am too. Keep bugging the doc’s to find a medication that can ease the pain – with all that is out there now, there has to be something for you for pain relief. Keep in touch with us and let us know what you are doing and how you are doing. Believe me, we care. Janice From: amy shultz Sent: Thursday, May 23, 2013 7:40 PM To: TM group Subject: RE: [TMIC] Re: Transverse Myelitis My TM story began in March of 96. I was 19 yrs old and had graduated from High School and had a soccer scholarship to Notre Dame. While having an MRI on my jaw for TMJ the doctors said I had an "unrelated" seizure. After waking up in the hospital my arms were really heavy and had horrible pain around my mid section, and couldnt move my legs. By the next morning I couldnt move my arms or legs, couldnt talk. Couldnt breathe. I endured test after test after test. They kept thinking MS as my mom has MS but they couldnt confirm it.I was in a rehab hospital and a nursing home for a total of 14 weeks. After many weeks I was finally diagnosed after a second MRI showed lesions on my spinal cord at C 4-5. Due to it being so long since I had had the initial attack and doctors not familiar with TM, I was not treated with any steroids or any other treatment. After intense therapy and many prayers after about 8 months I got use of my arms. Not 100% but some. My arms came back very slowly. I was in therapy for months and months. I have yet to show any improvement with my legs and am ventilator dependent. I had a neurogenic bladder and bowels. I had my bladder removed in 03. I havent show much improvement after the one year mark. I hold on to hope that one day there will be treatment for us, or others like us. I deal with horrible pain and spasms daily. Something I wouldnt wish on anyone. I have been unable to return to school. It seems I am in and out of the hospital so much it makes doing anything nearly impossible. Last year alone I was inpatient 13 times. Not counting ER visits. I am on over 30 medications a day. I get exhausted very easily and nap alot. But I still enjoy having fun and hanging with family and friends and this TM will NEVER stop me from being me. Amy Shultz Columbus Ohio ------------------------------------------------------------------------------ From: heyjude48...@aol.com Date: Fri, 26 Apr 2013 23:09:12 -0400 To: tmic-list@eskimo.com Subject: [TMIC] Re: Transverse Myelitis Hi Everyone! It's Jude Hoops. I was just reading the quad list and they are talking about their injuries at what level they are injured, how it happened and when it happened. Do you think that that would be something we could do too? I think it might be interesting to know how we were all injured or got sick and how long ago it was. We've all been on this list for a long time now and I was wondering whether any of us had gotten any better over the years. Let me know what you think. Just write a small paragraph about how you came to have TM, what level your injury is at and if you have seen any improvement over the years. I love you all so much and have been thinking of you. Hugs, Jude (TIAD)
