I would like to write my story, but in some kind of relapse.  My feet hurt so 
bad and they never have before.  Has anyone gone to a pain specialist?  Thanks
Susan in Phoenix, AZ
On Apr 28, 2013, at 2:39 AM, Janet Dunn <j.d...@shaw.ca> wrote:

> I woke up one morning in late August 2004 and my right leg was tingling and 
> numb, like I had a muscle knot.  I went to the chiropractor, the massage 
> therapist, and the rolfer - and none of them could change the feeling.  The 
> numbness increased, as did the banding (now I know what that is!) and the 
> pain in my legs.  In mid-September I went to my doctor and mentioned it to 
> him - he said I was overreacting when I mentioned the possibility of MS.  Ok, 
> whatever.  In October I realized that I had no feeling on the right side of 
> my body - so the doc finally sent me for an MRI.  The results came back that 
> I had MS.  Huge panic for the doc - put me in the hospital and gave me 
> prednisone.   That didn't help.  I was sent to the MS clinic in Vancouver 
> (800 miles away) - they told me to go home and rest.  Symptoms continued to 
> worsen, and finally in 2006 I had a spinal tap - and the diagnosis of TM.  
> 
> Here I am almost nine years later - managing the pain, and the numbness and 
> the burning, and the . . .  and the  . . . - I know that you can fill in the 
> blanks.  I am working full time - at great expense to my body and my fatigue 
> - but I have no choice as I am a walking wounded.  On bad days I use a cane, 
> on worse days I stay in bed, and on good days I am so grateful.
> 
> The lesion is at T4-5
> 
> Of course the diagnosis is idiopathic TM - but interestingly enough about a 
> month earlier I fell out of the back of a pickup truck (after using an 
> outhouse in the back of the truck while partying with the seniors - be 
> careful when partying with seniors!) and broke my wrist.  To this day I 
> believe the blunt force trauma of hitting the ground that hard - the stairs 
> collapsed - contributed or caused the TM.
> 
> I have had no further attacks, but I do have some excruciating days.
> 
> Janet
> BC Canada
> <j_dunn.vcf>

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