Janice; Has Amy tried Lyrica? For me it is the only medicine that has kept the bee stings away.
Dalton (TM Class of '2009) From: Janice Nichols <jannic...@gmail.com> Date: Wed, 29 May 2013 11:38:19 -0500 To: amy shultz <mic...@hotmail.com>, TM group <tmic-list@eskimo.com> Subject: Re: [TMIC] Re: Transverse Myelitis Resent-From: <tmic-list@eskimo.com> Resent-Date: Wed, 29 May 2013 09:38:16 -0700 (PDT) > Amy, I think we have talked before, but I did not know the extent of how TM > left you. I am so very sorry that that damn TM did this to you and at such a > young age. You are a very > courageous lady. You have not let TM claim the real you - just your body. > But, it would be pretty hard to live with. Family and good friends are a > tremendous help in this situation. > Some with TM have lost spouses, family, and friends due to TM. They just > don¹t want to deal with it so you are lucky in that way. I am too. > Keep bugging the doc¹s to find a medication > that can ease the pain with all that is out there now, there has to be > something for you for pain relief. > > Keep in touch with us and let us know what you are doing and how you are > doing. Believe me, we care. > Janice > > > From: amy shultz <mailto:mic...@hotmail.com> > Sent: Thursday, May 23, 2013 7:40 PM > To: TM group <mailto:tmic-list@eskimo.com> > Subject: RE: [TMIC] Re: Transverse Myelitis > > My TM story began in March of 96. I was 19 yrs old and had graduated from High > School and had a soccer scholarship to Notre Dame. While having an MRI on my > jaw for TMJ the doctors said I had an "unrelated" seizure. After waking up in > the hospital my arms were really heavy and had horrible pain around my mid > section, and couldnt move my legs. By the next morning I couldnt move my arms > or legs, couldnt talk. Couldnt breathe. I endured test after test after test. > They kept thinking MS as my mom has MS but they couldnt confirm it.I was in a > rehab hospital and a nursing home for a total of 14 weeks. After many weeks I > was finally diagnosed after a second MRI showed lesions on my spinal cord at C > 4-5. Due to it being so long since I had had the initial attack and doctors > not familiar with TM, I was not treated with any steroids or any other > treatment. After intense therapy and many prayers after about 8 months I got > use of my arms. Not 100% but some. My arms came back very slowly. I was in > therapy for months and months. I have yet to show any improvement with my legs > and am ventilator dependent. I had a neurogenic bladder and bowels. I had my > bladder removed in 03. I havent show much improvement after the one year mark. > I hold on to hope that one day there will be treatment for us, or others like > us. I deal with horrible pain and spasms daily. Something I wouldnt wish on > anyone. I have been unable to return to school. It seems I am in and out of > the hospital so much it makes doing anything nearly impossible. Last year > alone I was inpatient 13 times. Not counting ER visits. I am on over 30 > medications a day. I get exhausted very easily and nap alot. But I still enjoy > having fun and hanging with family and friends and this TM will NEVER stop me > from being me. > > Amy Shultz > Columbus Ohio > > > From: heyjude48...@aol.com > Date: Fri, 26 Apr 2013 23:09:12 -0400 > To: tmic-list@eskimo.com > Subject: [TMIC] Re: Transverse Myelitis > > Hi Everyone! > > It's Jude Hoops. I was just reading the quad list and they are talking about > their injuries at what level they are injured, how it happened and when it > happened. Do you think that that would be something we could do too? > > I think it might be interesting to know how we were all injured or got sick > and how long ago it was. We've all been on this list for a long time now and > I was wondering whether any of us had gotten any better over the years. > > Let me know what you think. Just write a small paragraph about how you came > to have TM, what level your injury is at and if you have seen any improvement > over the years. > > I love you all so much and have been thinking of you. > > Hugs, > Jude (TIAD)
