My Neurologist said better not to risk it. Haven't had one since about 2005... a year before TM.

On 10/6/2013 11:18 AM, Butcher, Bernie (S&FS) wrote:

No flu shots for me either, since 2000. my doctor tells me it's OK, but I don't think they really know for sure

**/Bernie/**

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*From:*Linda Egli [mailto:[email protected]]
*Sent:* Sunday, October 06, 2013 12:35 AM
*To:* Pat Voorheis
*Cc:* [email protected]
*Subject:* Re: [TMIC] Re: Getting a flu shot

I don't which I am more afraid of the flu shot or its effects. My neurologist said to never receive another immunization of any kind every - that it would aggravate my TM & make it worse. I also worry about shingles & ask about the shot for that & was told no. I am pretty much a hermit during flu season. Everyone knows not to come around me with any kind of cold symptoms any time of the year.

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*From:*Pat Voorheis <[email protected]>
*To:* Dalton Garis <[email protected]>
*Cc:* Janice Nichols <[email protected]>; Linda Egli <[email protected]>; "<[email protected]>" <[email protected]>; "<[email protected]>" <[email protected]>
*Sent:* Saturday, October 5, 2013 8:22 PM
*Subject:* Re: [TMIC] Re: Getting a flu shot

Dalton,

I hope this is a short-term problem for you and the pain subsides soon. Thanks for the info and keep us informed. I was planning on getting one this year, because I had no adverse reaction to the shot last year. It was my first shot since TM. We had five deaths in our area last year and I turned chicken and got the shot.

Patti - Michigan


On Oct 5, 2013, at 9:25 AM, Dalton Garis <[email protected] <mailto:[email protected]>> wrote:


          *Fellow suffers;*


          *I can now report on getting a flu shot.*


          *So far, it is not good. It is the fifth day and the base
          pain level, the level of pain experienced all the time
          without any additional loads, has increased to the extent
          that even the Lyrica is no longer able to contain it. My
          body is in a constant state of nerve pain and physical
          anxiety. I have increased the dosage of both Lyrica and
          Gabapentin. Hopefully, this is not a new normal; but if it
          is, then I have made a big mistake in getting a flu shot.*

          Thus, unless you expect to be circulating around many
          people, and many new people with whom you have not
          previously spent much time, then, I don't recommend it. But
          living in New York City and taking the subway and other
          forms of public transportation, and having to use
          hand-holds all over the City, I thought it prudent to get
          the flu shot. It may still be the right move, but at this
          reckoning has come at a high cost, that of being in a
          distracting level of pain all the time now, just as I was
          during the early days of the disease.

          Dalton

*Dalton**Garis*

*Flushing, Queens*

*New York**, USA*


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