Dear Susan, If you should ever need this new drug then at least you know about it. However, I hope that you can just continue to be off all drugs and do well.
Susan, you are a miracle! [?] 18's Marty On Sat, Oct 27, 2012 at 4:35 PM, Susan Zimmerman <rszim0...@aol.com> wrote: > Thank you Marty for the article on both new drugs. My oncologist told me > bosutinib was for something else altogether and he certainly never heard of > the newest one either. Makes me think I need to change docs. He's never > used anything except gleevec and sprycel. I'm the one still off all meds, > and when or if I need it I choose tasigna or one of the two new ones....due > to unusual bleeding. We'll see! Think I'll call for my doc's e-mail on > Monday and send your article to him. Thanks again. > 18's to you, > > Susan F. Zimmerman > "Look among the nations and watch; be utterly astounded! For I will work > a work in your days which you would not believe, though it were told you." > Hab. 1:5 > > > -----Original Message----- > From: Marty Gartenberg <wa2...@gmail.com> > To: cmlhope <cmlhope@googlegroups.com> > Sent: Sat, Oct 27, 2012 2:54 pm > Subject: Re: [CMLHope] Why are my posts not coming through? > > Hi Millie, > > As you can see your post to me did come through. Thank you for your reply. > > I would like to answer your questions and comments so I will write in > between your lines in CAPS. > > On Sat, Oct 27, 2012 at 12:13 PM, C.M. Houtz <ho...@ptd.net> wrote: > >> ** >> *Hi Marty.....Please let me know if this post gets through to you. I >> received your message about the new drug that's out, and was going to >> write last night and thank you for sending out the information, but got >> tired, shut down, and went to bed. I've been in a lot of pain lately, and >> laying down seems to help.* >> > > YES I KNOW ABOUT ALL OF THE PAIN YOUR HAVING, AND I AM REALLY SORRY TO > HEAR THAT. I PRAY THAT IT WILL EASE UP ON YOU. I ALSO HAVE SOME TERRIBLE > PAIN IN MY BACK AND JUST LIKE YOU I HAVE TO LAY DOWN IN BED TO EASE IT. I > SOMETIMES USE A HEATING PAD AND IT WORKS BUT ONLY TEMPORARILY. I EVEN WENT > TO A MASSAGE THERIPIST AND THAT SEEMED TO HELP BUT JUST TEMPORARILY AS > WELL. I TRY NOT TO TAKE ANY PAIN MEDICATION BECAUSE OF MY KIDNEY FAILURE > AND IT WOULD INTERFERE WITH MY DIALYSIS TREATMENTS > >> * I was using a pain patch (Lidocaine) and stopped as when I took it >> off a couple of weeks ago, there was blood on the patch. My cardiologist >> said that it was probably because of my thinning skin.* >> > > MILLIE, WHY DON'T YOU TRY SOMETHING CALLED BAG BALM ON THE SKIN THAT IS > BLEEDING. JUST DON'T PUT ANYTHING ON IT UNTIL IT STARTS TO HEAL. BAG BALM > IS VERY GREASY SO NOTHING WILL BE ABLE TO STICK TO IT. IT'S ORIGINAL USE > WAS FOR COWS UTTERS ESPECIALLY IN THE WINTER WHEN THEY ARE CHAPPED BUT IT > REALLY WORKS WELL FOR ANY SKIN PROBLEMS. IT COMES IN TWO SIZES. MAKE SURE > TO BUY THE SMALL SIZE BECAUSE IT WILL LAST FOREVER. JUST A DAB WILL DO YOU > AS THEY SAY. IT COMES IN A GREEN SQUARE CAN AND CAN PROBABLY BE PURCHASED > AT SOME OF THE LARGE DRUG CHAINS LIKE CVS OR WALGREENS. > > >> * I didn't use them all of the time, but maybe once or twice a week. >> I may try it again when it is all healed. Don't know yet! At any rate, >> trying to control the pain is difficult and I don't like to take a lot of >> the Vicoden, so limit myself to once or twice a day. * >> ** >> *I hope that this finds you doing okay. I know that you go through a >> lot and that you are a very strong person.* >> > > ACTUALLY MILLIE, ANYONE THAT HAS TO GO THROUGH ANYTHING LIKE YOU OR ME IS > AUTOMATICALLY A STRONG PERSON. WE DIDN'T ASK TO BE SICK BUT NOW THAT WE ARE > WE JUST HAVE TO FIND WAYS TO BE ABLE TO DEAL WITH IT. > > >> * I think of you when I'm hurting and know it's nothing compared to >> what you have to deal with. You are always here for all of us, and I know >> you are appreciated by all.* >> > > MILLIE, I AM NO DIFFERENT FROM YOU OR ANYONE ELSE. WE JUST HAVE TO DO > WHATEVER WE CAN TO JUST KEEP ON GOING. AGAIN I AM VERY SORRY TO HEAR ABOUT > YOUR PAIN. I HOPE THAT IT WILL GET BETTER REAL SOON. > >> ** >> *We have a bad storm headed out way, and it looks like the whole state >> of PA will be involved. I'm only hoping that it won't last to long and not >> cause a lot of damage. I worry about the trees coming down on the house, >> but there's nothing I can do about that either. My middle son always >> tells me that worry doesn't help anything....or stop anything from >> happening. I know that he's right. Actually, he and his family live in >> New Jersey and will get more of the storm then we will.* >> > > IT SOUNDS LIKE YOUR MIDDLE SON IS A BRIGHT PERSON. YOU MIGHT WANT TO TAKE > SOME ADVICE FROM HIM BECAUSE WORRYING CAN DO NOTHING FOR YOU BUT TO JUST > MAKE YOU UPSET. I ALSO HAVE A HOME IN PA AS YOU ALREADY KNOW AND IF > SOMETHING HAPPENS TO IT WELL AT LEAST I'M NOT IN IT AND NITHER ARE MY > FAMILY. INSURANCE IS WHAT IS NEEDED AND I HAVE IT SO I JUST CAN'T WORRY > ABOUT IT. > >> ** >> *You take care, and let me know how you're doing. I do keep you in my >> prayers and think of you often. Were you able to get to PA this year?* >> > > THANK YOU FOR YOUR PRAYERS. YES WE DID GO UP TO PA THIS PAST SUMMER. IT > WAS A LITTLE DIFFICULT BECAUSE WE MUST DRIVE ALL THE WAY UP THERE. WE SPEND > TWO NIGHTS OUT AT MOTELS BECAUSE I RAISE CANARIES AND HAVE ABOUT TEN OF > THEM RIGHT NOW. I HAD MORE THEN FIFTY SEVERAL YEARS AGO BUT IT WAS TO > DIFFICULT TO MANAGE ALL OF THEM. I HAVE A LOT OF FRIENDS THAT ARE ALSO INTO > CANARIES SO I WAS ABLE TO FINF THEM VERY GOOD HOMES. I ALSO HAVE A > BEAUTIFUL DOG THAT I RESCUED FROM A KILL SHELTER FIVE YEARS AGO. > > I ALSO HAD TO MAKE ARRAINGMENTS FOR MY DIALYSIS TREATMENTS, AND THERE IS A > DIALYSIS CLINIC IN A TOWN CALLED HONESDALE PA ABOUT TWENTY FIVE MILES FROM > WHERE I LIVE. > >> ** >> *18's to you,* >> *Millie* >> > > AND 18'S TO YOU AS WELL. > > Marty > >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to CMLHope@googlegroups.com >> To unsubscribe from this group, send email to >> cmlhope-unsubscr...@googlegroups.com >> For more options, visit this group at >> http://groups.google.com/group/CMLHope > > > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at > http://groups.google.com/group/CMLHope > > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at > http://groups.google.com/group/CMLHope -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope
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