That's right Beth, I always say 18's. We must all help each other because we are all in this together. Not so much me because I already traveled through this journey. However, I always try to help others simply because it is the right thing to do.
Times have changed so much since I fought my battle but I wish there was a group such as this when I needed other peoples help but there wasn't then. There is now! 18's to each and every one of you. Marty On Sat, Jul 13, 2013 at 4:22 PM, <myvet...@aol.com> wrote: > ** > Well Said, Beth from greenie > > In a message dated 7/13/2013 2:36:18 P.M. Eastern Daylight Time, > bkbar...@aol.com writes: > > Dear Millie and Pat and Marcie and Norm and Tom and Greenie and Judi, > Suziq, and Susan, and.....everybody! all our new combers, and our > oldies...too tired today to list everyone..but just wanted to say that the > past week, reading everyone's post, has been truly insipiring and helpful. > We are all in this together. For those who do not have family or spouses, > for younger or older folks, people of all ages, each of our circumstances > is different....but what we all share, cml, and it's impact on our lives, > fears, , our capacities, our dreams...it's quite profound...sharing it > means we are not alone and united, as witl the picture Pat sent from the > conference she recently attended, it just breeds hope for improved futures, > and more and more possibilities down the road...we need to buoy each other > when we are down, and help each other to stay strong, manage side > effects, share with each other whatever we have learned along the way....so > we stay well held....in this world, and fighting this illness, there is > strength in numbers. > I wish everyone a good weekend. ..and Millie, those doctors are going to > find out what exactly is causing what, get to the bottom of it, and > hopefully you can get some relief...!!! > 18's as Marty would say, Beth > > -----Original Message----- > From: C.M. Houtz <ho...@ptd.net> > To: cmlhope <cmlhope@googlegroups.com> > Sent: Sat, Jul 13, 2013 11:41 am > Subject: Re: [CMLHope] > > *Hi Marcie,* > ** > *I am trying to get myself going today. I woke up with terrible back > pain. It's always in the same area and my Onc. says that it's my gall on > the left side and my liver on the right. I couldn't get out of bed, so I > took my pain meds and put some heat on it and was able to get up after an > hour or so. I'm still in some pain, but not to bad.* > ** > *I was on Gleevec for years and it simply stopped working for me. I was > on 800 mg. at one point. I did have a prescription which helped to control > the diarrhea and for the life of me, can't remember the name. I still had > to watch everything that I ate. I found that anything with tomatoes in it > was a no-no and other things triggered it too. On Tasigna, the worst I've > had is constipation, and, of course, the liver problem. My Onc. still > thinks it's the gall causing the problem, and neither of us will know until > the biopsy comes in. I'm sure he'll do a lot of blood work on Monday to > see if I'm still in remission, so I pray that I am. As far as memory is > concerned. I don't feel I've lost any. I always did have good recall, so > I feel fortunate in that dept.* > *I am a loss for a word every now and then, but think that's normal for > 74. It does frustrate me, but I find that if I just put it aside, it will > come to me sooner or later. Usually, it's such a simple word or name. I > do have good long and short term memory though, and that's a good thing. I > also feel that the drugs affect my bones and muscles. I had arthritis > before all of this, but the progression has been fast and now have > polymialgia, which is a form of Arthritis. They do a sed rate check when I > get blood work, and have me on prednisone for that. That can fluctuate > from one blood check to another. Right now it's bad and I can't lift my > left arm very well. It mainly affects me in my neck and arms...shoulders, > etc. It's quite painful, so I just deal with it the best way I can.* > ** > *You are right that people don't understand. There are times I could > scream at them, but it wouldn't do any good. I get told that I look good > and must be feeling fine, but they haven't a clue. It is a life time thing > for us, and so we do the very best that we can.* > ** > *It is so nice putting a face on you and the others. I am going to print > out the photo's and make a small album of all of my CML friends. * > ** > *You take care, and we'll talk again soon. I find that in the past few > days we've been able to open up more to one another and that's a great > thing for everyone.* > ** > *Love, prayers, and many hugs,* > *Millie* > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/groups/opt_out. > > > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/groups/opt_out. > > > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/groups/opt_out. > > > -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/groups/opt_out.
