Hey Terri,

Just realized that HICAP is in Calif. where I live.  Maybe they can direct 
you to a healthcare advocate in your state, or maybe using info on their 
website you can locate one yourself.  So sorry.  Not quite awake yet this 
morning.  peg

On Tuesday, August 6, 2013 12:16:50 PM UTC-7, peg wrote:
>
> Terri,
>
> Your Nephrologist is an ass...and is not the final word on whether you are 
> disabled or not, there are plenty of folks on disability because they are 
> on dialysis.  However, remember that you don't want to file a NEW claim but 
> rather, reopen the old one.  If you were to file it on the basis of 
> dialysis it would start an entirely new claim with a new wait period for 
> your Medicare.  You want to show that your health has deteriorated as a 
> result of the ORIGINAL claim, so all of that time applies to the wait and 
> you could have Medicare immediately.  ANY doctor that cares about you and 
> recognizes that you are unable to work can file your disability.  If you 
> don't have one on your team that will do that for you, perhaps a disability 
> lawyer can recommend one.  
>
> Sorry about the tough road ahead...I relate...I have just been diagnosed 
> with my third primary cancer since being diagnosed with CML three years 
> ago, have had MS for 24 years and care for my husband who has brain 
> damage.  The best advice I can give you besides find a caring doc and a new 
> lawyer is to take each day, one bite at a time.  Message me any time I can 
> be of help.  I care.  peg  
>

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